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Help Our Community & Experts Help You - Please Rea...

Welcome to the WebMD Multiple Sclerosis Community! Please don't respond to this discussion....

Posted by Elizabeth_WebMD_Staff

Welcome to the WebMD Multiple Sclerosis Community! Please don't respond to this discussion. Instead, please read before you start your own new discussion. Here are a few tips to get the best response when asking about your MS symptoms and concerns.

To adjust your font size. Ctrl + to make larger. Ctrl - to make smaller.

If you have a question, please post it as a new discussion...being specific in your title as to your subject matter.

We have wonderful experts volunteering their time with us. Dr. Lava checks the community weekly and I also send our experts questions for consideration. Please understand, they are unable to diagnose or offer second opinions. Referring to problems with other physicians or asking questions that may contradict another professional's opinion can not be addressed.

Without examining a patient, there is no way our experts could give an accurate diagnosis, but they can provide tips on what may help, or what questions you should ask your doctor.

This community is fortunate to have expertly informed members as well. Many questions are answered by our members as they would be answered by our Experts. If you would like to call attention to our Experts, just begin the title of your post with either Dr. Lava, Dr. Rambaugh or simply Att: Expert.

Please understand titling or addressing your post to our experts will not prevent members for also offering advice and support.

Please check the date of discussions when replying. Some of the discussions you see, especially in the right hand column, are very popular but also very old. The original poster may not be following the discussion. So, please post your questions as NEW discussions rather than posting to a very old one. We don't want questions to get overlooked.

Please do not post in all caps. It is difficult to read and viewed as "shouting" in community forums and discussions.

When posting long discussions break into paragraphs. It is difficult to follow large blocks of print, so please break up your discussions into small paragraphs.

Yours in Health,
The WebMD StaffView Thread

Posted by Elizabeth_WebMD_Staff

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"I am NOT the DIsease"

I am NOT MS. It doesn't determine if I smile or laugh. I have a medical condition. In life we all face...

Posted by TShalla

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"I am NOT the DIsease"

I am NOT MS. It doesn't determine if I smile or laugh. I have a medical condition. In life we all face...

Posted by TShalla

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It's just a girl thing

So has anyone else noticed that their symptoms get worse around that time of the month??? I was diagnosed...

Posted by MissMia10

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0 Replies | ReplyReport This| Share this:It's just a girl thing So has anyone else noticed that their symptoms get worse around that time of the month??? I was diagnosed...

Natural medication for MS

There is a natural treatment for MS. Only problem is you have to take multiple pills(24) each day. Its not a...

Posted by Duck101

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0 Replies | ReplyReport This| Share this:Natural medication for MS There is a natural treatment for MS. Only problem is you have to take multiple pills(24) each day. Its not a...

JUST WAIT...

THAT'S WHAT I DID IN 98 WHEN I HAVE OPTICAL NEURITIS EPISODE,IN MY CASE THE INFLAMATION WAS CLEAR ON THE MRI,I...

Posted by ZALJO65

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Take an active stance in your health

I was first diagnosed in 1984 (before diffinitive techniques were really available) complete numbnes from arm...

Posted by tlcharles

I was first diagnosed in 1984 (before diffinitive techniques were really available) complete numbnes from arm pits down! and also no feeling in my hands (arms yeshands no!) Did not believe diagnosis and sought help through alternative medicine. Ended up at a chiropractor who after 2 weeks of daily treatment was able to get me walking again again and back to normal after about 6 weeks. ......went on with life (as I too had small children to raise ) and did not have another REAL flre up until 1998 where everything on the entier left side went numb. By then they had MRI's EEG's, spinal taps etc and came the "most probable cause is MS diagnosis. I was lucky enough at the time to have a neuro who listened to my concerns about starting on a medication (Betaserone, Copaxone, or Avonex where the choices of then and now pretty much). She said it was MY decision to make and if alternative therapy was what "I" chose to do then she would still treat me even though I did not chose to do the drugs.
Back I went to the chiro and (it took 6 months of intensive treatment almost daily but I once again was back to 95% of my original self.

Fast forward to Sept 2011....another major relapse (into a wheelchair much of the time) and I am scared, scared, scared.....even though I have fundamental belief that the "disease modifying drugs" will ultimately do more hard (i.e liver, kidney heart damage etc) I am desperate to feel better. I had after 3 months worked my way out of the wheelchair, off the walker, and onto a cane which mainly was for if I needed to travel outside the home. With my can I had worked my way up to a mile each day and was feeling proud of my progress........then came the nurse to show me how to do the Copaxone injection and my first dose. As anyone who has taken this drug knows it will make you flush and very warm feeling and leave a large lump at the injection site, but I was willing to deal with those things for this drug that was supposed to make it so my exasterbations would be "less". Well with in 3 days of injections I lost 2 months of physical therapy that I had achieved! I could no longer NOT walk a mile with a cane....I could NOT even make it across a room without one!

It took me another 2 months to get almost back to where I was BEFORE I took their wonder drug.....so PLEASE do NOT let some DR who has never had the experience of MS bully you into doing something that you do not want to. check out some info on DR. Terry Wahls from Iowa City IA. This DR ACTUALLY HAS MS and a sever case and has gone from a wheelchair to riding her bike to work 5 miles each day and has done it with changing her DIET. I was told about her by a nurse at the hospital and am following her diet advice and I am back to walking without a cane for up to 2 miles and do not have to stop each day and take a nap for 3 hours just to make it through the rest of the day!
Please understand I am in NO WAY CURED and do not want to make that representation but this diet is healthy and I KNOW it is NOT doing damage to my other organs while it helps me.
You should also be able to find many videos on youtube about her.

God Bless you and I hope you find the help you need. FYI Lyme disease has almost mirror ymptoms to MS and can be diagnosed with a simple blood test and CURED with anti-bioitics especially if caught early enough. If you live by a grassy area (as most of us do) and go out for walks on a regular basis i would MAKE sure that they ALSO do the test for lyme disease. I do not know what the reasoning behind it not being a standard test when people such as ourselves come in with symptoms....but you will have to INSIST probably that they at least RULE it out as a possibility of your illness.

Again best of luck to you. This disease is isolating and scary and one I wouln'd wish on even my worst enemy.....but attitude has a GREAT DEAL to do with how it progresses I think!View Thread

Posted by tlcharles

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Fatigue

Has anyone ever included bee pollen with their diet? I also take niacin. Bee pollen seems to have help me...

Posted by rickander

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Fatigue

Has anyone ever included bee pollen with their diet? I also take niacin. Bee pollen seems to have help me...

Posted by rickander

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Guide for MS Activism

Lisa Emrich recently visited legislators on Capitol Hill to discuss MS concerns. Here is her article...

Posted by hackwriter

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New Girl

am a little down, just signed up. Have not slept well the past two nights and well thought why not try...

Posted by msmom36

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a suggestion for those taking Rebif shots...

may i highly recommend that at least 30 minutes before taking the Rebif injection, you take about 3 - 200mg...

Posted by rafe11

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Vitemin B-12

Hello, I have MS and I am alergic to the injections from the Interferon. My Doctor thought that b-12...

Posted by charli2011

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If patient has a shunt, it MUST be reset after MRI...

should patient have a shunt i.e. as a treatment for a hydrocephelic condition, the shunt MUST be re...

Posted by msannabrams

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Have to share this for injections

with fellow injectors of painful meds : I tried the alcohol pads Wal-Mart have with Benzocaine They say :...

Posted by tlltroy

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Fatigue

Fatigue has been a debilitating symptom with my MS. After 5 years of taking Provigil, I have found that...

Posted by An_204691

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5 Replies | ReplyReport This| Share this:Fatigue Fatigue has been a debilitating symptom with my MS. After 5 years of taking Provigil, I have found that...

Drop Foot Correction

My drop foot was corrected via surgery by a podiatrist. The Achillies tendon was lengthened. Unfortunately,...

Posted by AstridS

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Does anyone have a suggestion for constant burning...

Does anyone have a suggestion for constant burning in the legs????

Posted by An_204690

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Does Anybody Have' Cognitive' Challenges......?

I havevarioous Cognitive Deficits----but sometimes, THEY ARE NO BIG DEAL..................... ...

Posted by girlgeorg3

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Does Anybody Have' Cognitive' Challenges......?

I havevarioous Cognitive Deficits----but sometimes, THEY ARE NO BIG DEAL..................... ...

Posted by girlgeorg3

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Criscoy58

I spent the early 90's having local drs. running test after test to figure out what was wrong with me....

Posted by An_204689

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When I got Diagnosed...

When I got diagnosed, I was scared out of my wits. I live in Red Bank, NJ, but got diagnosed from an MS...

Posted by TravisMom

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