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When I got Diagnosed...

When I got diagnosed, I was scared out of my wits. I live in Red Bank, NJ, but got diagnosed from an MS...

Posted by TravisMom

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5 Replies | ReplyReport This| Share this:When I got Diagnosed... When I got diagnosed, I was scared out of my wits. I live in Red Bank, NJ, but got diagnosed from an MS...

FIR-TEX farinfraredradiation textile

You may have a look at fir-tex. some users with MS are having great results. Improved balance and power/energy....

Posted by firtex

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4 of 9 found this Tip helpful

1 Reply | ReplyReport This| Share this:FIR-TEX farinfraredradiation textile You may have a look at fir-tex. some users with MS are having great results. Improved balance and power/energy....

Fatigue

I've had MS for almost 2 years, my doctor put me on Nuvigil for fatigue. I take of my 1 year old grandson and i...

Posted by 1234jan

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3 Replies | ReplyReport This| Share this:Fatigue I've had MS for almost 2 years, my doctor put me on Nuvigil for fatigue. I take of my 1 year old grandson and i...

Red Hot Chili Peppers

Soul to sqeeze Thats been my MS song Ive considered

Posted by TOMMYBOY82

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Red Hot Chili Peppers

Soul to sqeeze Thats been my MS song Ive considered

Posted by TOMMYBOY82

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About the Gilenya pricing scam

Last week I googled "buy fingolimod" and got several wholesale outlets that sell fingolimod for non-human...

Posted by eileenkq

Last week I googled "buy fingolimod" and got several wholesale outlets that sell fingolimod for non-human research (so more applications can be found). At one company it costs $42.00 for 50mg. The Gilenya website says that the pills would be 0.05mg each day. That's about 15mg a month. Simple math shows that we could all get fingolimod for about $14 a month if we were allowed to buy it that way. Based on their projected price of $4,000 a month, that's a 285 times markup!
It is also my opinion that the $4,000 a month was figured by adding a thousand to the average $3,000 a month of the other therapies. They figure that no needles are worth $1,000 a month. The company line is that there is assistance available. Sure there is — if your family income is less than $30,000. Another company line is that insurance will cover most of the cost. With 40% of Americans not insured, I wonder how many people with MS aren't able to afford any therapy at all. I have a co-pay with my insurance of 25%.
As much as I hate needles and as good as the product predicts to be, I suggest we all boycott Novartis' Gilenya until they lower their price to at least $1,000 a month. That's still exorbitant but they do have the clinical trials to pay for - an estimated $25 million from what I've heard. There's also the research money they paid out in advance to recoup.
In case you're wondering, I use Copaxone and I have a $777.10 a month co-pay (25% of their "negotiated"cost). I did use Betaseron and got drug-induced Lupus and had to change. At least Betaseron uses the overies of Guniea pigs (in China) and that requires mfg. cost (and yuk!). I can almost see the large manufacturing cost for Betaseron but it looks like all of the other therapies base their price on Betaseron's high price. I was infuriated with Copaxone 's price (soon to go generic) and really hoped that the new oral medication would be cheaper. When I found out the price I nearly stroked out. A cure that took maybe 12 months of treatment would be worth that, maybe, but the drug companies are really taking advantage of the fact that there is no cure and they've got us over a barrel. The new medication is based on a Chinese herbal remedy.
Yes, I'm posting everywhere but y'all do the same and spread the word. Let's show Novartis' Gilenya that people with MS are tougher than they think!View Thread

Posted by eileenkq

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7 Replies | ReplyReport This| Share this:About the Gilenya pricing scam Last week I googled "buy fingolimod" and got several wholesale outlets that sell fingolimod for non-human...

RITUXIN

JUST TO SHARE, MY SON HAS MS AND STARTED A TREATMENT OF RITUXIN IN THE FALL HE HAD 8 ACTIVE LESIONS AND NOW HE...

Posted by ENNAB

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3 Replies | ReplyReport This| Share this:RITUXIN JUST TO SHARE, MY SON HAS MS AND STARTED A TREATMENT OF RITUXIN IN THE FALL HE HAD 8 ACTIVE LESIONS AND NOW HE...

Help with MS pain

My mom has severe back and leg pain from her MS. Recently, her doctor prescribed Cymbalta Oral and she is...

Posted by daughter73

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5 of 10 found this Tip helpful

0 Replies | ReplyReport This| Share this:Help with MS pain My mom has severe back and leg pain from her MS. Recently, her doctor prescribed Cymbalta Oral and she is...

Wealth of vitamin D and MS information

There is a lot of information on vitamin D and MS at VitaminDWiki. Shortcut to the MS material is ...

Posted by HenryLahore

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1 Reply | ReplyReport This| Share this:Wealth of vitamin D and MS information There is a lot of information on vitamin D and MS at VitaminDWiki. Shortcut to the MS material is ...

Hives as a symtom ?

Hi... I just wondered if anyone has had an issue with chronic hives as perhaps being caused by the auto...

Posted by himilayancat

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7 Replies | ReplyReport This| Share this:Hives as a symtom ? Hi... I just wondered if anyone has had an issue with chronic hives as perhaps being caused by the auto...

the walking drug, ampyra

was diagnosedwith MS in 2000. my walking has been getting harder to do but i was still able to work. i recently...

Posted by kgnsn

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51 of 62 found this Tip helpful

21 Replies | ReplyReport This| Share this:the walking drug, ampyra was diagnosedwith MS in 2000. my walking has been getting harder to do but i was still able to work. i recently...

Copaxone side effects?

Have put in a call to Neuro, but wanted to ask anyways. I always get the "weird side effects of the meds. I...

Posted by SusieT0114

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9 Replies | ReplyReport This| Share this:Copaxone side effects? Have put in a call to Neuro, but wanted to ask anyways. I always get the "weird side effects of the meds. I...

exercise for MS

Hi folks, if any of you live in Denver/Lakewood CO there is an Ai Chi class available which is done in...

Posted by Petrifiero

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0 Replies | ReplyReport This| Share this:exercise for MS Hi folks, if any of you live in Denver/Lakewood CO there is an Ai Chi class available which is done in...

Laughter is a great Medicine!! Ladies can you equa...

WARNING TO WOMEN!! Some of you may have already been warned of this..... You've heard about people who...

Posted by Csewhappy

WARNING TO WOMEN!!

Some of you may have already been warned of this.....

You've heard about people who have been abducted and had their kidneys removed by black-market organ thieves.

My thighs were stolen from me during the night a few years ago.. I went to sleep and woke up with someone else's thighs. It was just that quick. The replacements had the texture of cooked oatmeal. Whose thighs were these and what happened to mine?

I spent the entire summer looking for my thighs.

Finally, hurt and angry, I resigned myself to living out my life in jeans. And then the thieves struck again.

My bum was next. I knew it was the same gang, because they took pains to match my new rear-end to the thighs they had stuck me with earlier. But my new bum was attached at least three inches lower than my original! I realized I'd have to give up my jeans in favour of long skirts.

Two years ago I realized my arms had been switched.
One morning I was drying my hair and was horrified to see the flesh of my upper arm swing to and fro with the motion of the hairbrush. This was really getting scary - my body was being replaced one section at a time.

What could they do to me next?

When my poor neck suddenly disappeared and was replaced with a turkey neck, I decided to tell my story. Women of the world wake up and smell the coffee! Those 'plastic ' surgeons are using REAL replacement body parts -stolen from you and me! The next time someone you know has something 'lifted', look again - was it lifted from you?

THIS IS NOT A HOAX. This is happening to women everywhere every night.

WARN YOUR FRIENDS!

P.S. Last week I thought some one had stolen my Boobs. I was lying in bed and they were gone! But when I jumped out of bed, I was relieved to see that they had just been hiding in my armpits as I slept. Now I keep them hidden in my waistband.

Thought this was too 'important' not to pass on. Have a wonderful day - with a joy filled heart.

P.P.S. - These same thieves came into my closet and shrank my clothes! How do they do it????

Just thought you should know.
Have a fun day if you can,
best wishes to you all,
CarolView Thread

Posted by Csewhappy

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13 Replies | ReplyReport This| Share this:Laughter is a great Medicine!! Ladies can you equate yet? Gents ... have sympathy! WARNING TO WOMEN!! Some of you may have already been warned of this..... You've heard about people who...

A TOTAL MESS

OK, ENUF IS ENUF. tHERE HAS TO BE A BETTER WAY TO FIX THIS BOARD SO THAT IT IS USER-FRIENDLY AND NOT SUCH A...

Posted by magickalme

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0 Replies | ReplyReport This| Share this:A TOTAL MESS OK, ENUF IS ENUF. tHERE HAS TO BE A BETTER WAY TO FIX THIS BOARD SO THAT IT IS USER-FRIENDLY AND NOT SUCH A...

Legibility

Use the BOLD type to make the type at least a little more legible for those with visual issues. Use the...

Posted by gojude

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8 Replies | ReplyReport This| Share this:Legibility Use the BOLD type to make the type at least a little more legible for those with visual issues. Use the...

Want to read "discussions" only?

Well that's easy too, on the left hand side you see many links one of them is "discussions", click on...

Posted by Emma_WebMD_Staff

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1 Reply | ReplyReport This| Share this:Want to read "discussions" only? Well that's easy too, on the left hand side you see many links one of them is "discussions", click on...

Want to change font size?

It is easy to make the font bigger press and hold your contro l key and click on the + key...

Posted by Emma_WebMD_Staff

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Looking for Tips on how to get around?

Be sure to check out the Community News Blog and the WebMD Welcome Exchange

Posted by Emma_WebMD_Staff

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the walking drug, ampyra

was diagnosedwith MS in 2000. my walking has been getting harder to do but i was still able to work. i recently had an exacerbation of my ... More

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