I am allergic to both Gabapentin and Trileptal. I have been put on everything they have for this condition. I can only take Lyrica and Tramodol. I am at max dose for both. I resisted he Neural Stimulator for years telling them I would not get it until they dx what type of neuropathy I had since some are treatable. Once I finally received my dx (most doctors are not interested in finding out the type b/c they are lazy and/or don't care), I caved and have had the implant for 2 years. After finally getting it programmed right, it helps but now I think it is causing the severe pain in my back where the wires tie in. I have a bone scan scheduled in 2 weeks to try and see a spot they noticed there from my CAT scan. I hope you have found some relief by now, it seems to be in short supply for people who suffer with Neuropathy. I have found a certain herbal remedy to be very helpful, but I can only take it at night as I cannot work or function well with it. This herbal remedy has not been approved in all states, if you know what I mean. Lol.View Thread
I guess if misery loves company, I'm here with you. I can now re-read books from a year ago and do not recall anything. It is like reading them for the 1st time. I have thought my memory loss was due to the constant medicated state that I must remain in to deal with the agony that I have without medication. Now I am not so sure. I wonder if it is part of the disease itself causing the loss of memory and the difficulty of recalling names of people I know well. I have small fiber sensory neuropathy and like the others I have seen, we are just shunted aside. There is no hope is what we have been told. Does anyone know of any research going on to further medical knowledge of our disease?View Thread
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