I finally had the test but haven't seen my doc yet. The nurse says it was negative. That's good of course, but I wonder if they'll ever figure out what is wrong... My biggest problem right now is the ptosis and the muscle pain/fatigue is moderately annoying... I'm definitely out of ideas. He's done a muscle biopsy for mitochondrial disorder as well and that was negative.View Thread
Thank you so much for your reply. This is a very strange situation because when I told the nurse/tech that I will do the test with the Cleveland clinic she called back in a few minutes saying they can do the test right at the hospital. I'm not liking how this office is handling things because this isn't the first time I have felt fleeced by them. I think I'll find another dr as soon as I'm done with these test. Thanks again - it was great advice!View Thread
I was wondering if anyone can help me with this MUSK antibody test for myasthenia gravis.
My neurologist's office says that they want me to do this test with this Athena labs as they 'hold the patent' on this test. But when I looked around, it seems that the Cleveland Clinic, for example, does the same test - the name, cpt codes, methodology are all the same as the Athena test.
Does anybody know if there's any truth to what my doctor is suggesting about this supposed patent? Athena test will cost me around $1400 while the Cleveland Clinic test would be completely covered by my insurance.
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