First, neuropathy indicates "injury to a nerve or nerves". Whether mechanical, chemical, or from diabetes, it is always that a nerve/nerves have been 'hurt'.
Second, surgery is one more type of 'hurt' for numerous nerves and nerve endings. Indeed, surgery can be the cause of something developing neuropathy!
Third, when your nerves are already 'hurt' and you hurt them more, it's only going to increase the neuropathy.
Fourth, whoever told her that garbage is a quack. RUN.
Fifth, there IS ONLY medication to treat neuropathy. They use in the USA either Neurontin (Gabapentin) or Lyrica. They can use ANY anti-epilepsy drug---it "covers up" some of the pain so it doesn't hurt as badly. They can try Trileptal also. Keep the diabetes under control.
Sixth, wrapping the area firmly with a soft pillowcase or sheet or just a cotton wrap can help distract the nerves from producing pain sensations. Neither ice nor heat help. Light massage can help some people.
Seriously... you know the white cotton gloves women and girls wore in the 1920-1960s? That kind of soft cotton gloves or stretchy winter knit gloves and medication would give more comfort than doing surgery.
But... neuropathy is horrid. It can cause severe pains and weird painful sensations. Water and even air blowing can "hurt". NOTHING makes it go away. There is NO cure.
Let's focus a bit on your baby. Is she your first child? How are you coping with feeling so badly, but having to take care of her? Do you have helpers?
Tell me about her?
When you are rocking her or caring for her, what happens with your symptoms? If there is a time when things are good, can you identify why?
Are you sleeping? Neuropathy can interfere with sleep. Lack of sleep can make the symptoms worse. Can anyone help at night with baby so you can get some sleep?
I know I'm not a doctor and I could be wrong, but I hope the info here helps you. If it is neuropathy, it can be controlled, not perfectly, but enough so you can function. It isn't easy, but it is doable.
First, trileptal is NOT for mood swings. It is an anti-seizure med which is used to treat NEUROPATHY. They also use Neurontin (Gabapentin).
Neuropathy is a very strange type of "nerve pain". The symptoms can be extremely varied--- pins & needles, stabbing, jabbing, numbness, BURNING... water and just air movement like the wind or a fan can HURT.
It sure sounds (at least partly) like neuropathy. See www.neuropathy.com
Neuropathy is not completely understood. Even a minor injury to a nerve can start it--in any area of the body.
Second, I think (but I'm not a Dr) you might have several things going on at once. Your anxiety and panic are probably confusing the "clinical picture"--- and docs will think you don't fit any diagnosis except anxiety. So you need to focus on staying calm.
I have neuropathy with tremor and a "stiffening" sometimes, like Cerebral Palsy toddlers have a lot. The back stiffens and arches, arms and legs go "stiff". But for me, this happens before tremors start. In my case, it started after a spinal cord injury. I also feel the tremors start IN muscles before it builds up to a tremor.
You are NOT going to find any abnormalities on CBC-- Complete Blood Count. So ignore that, except for anemia and B12.
You say you delivered a baby 3 months ago. Any complications during pregnancy or delivery? Any back injuries before or since? What are your Sodium and Potassium levels? Low Potassium (K ) is supposed to cause flaccid, weak muscles--but mine goes slightly low and I get rigidity and tremor.
Does wrapping your hair in a towel (turban style) help reduce the running water feeling? Does wearing a hat (like a ski cap) relieve it? Pressure on areas of neuropathy often 'helps'. Like I have to pile pillows on my legs or wrap them tightly in bedsheets when it gets really bad.
What makes the sensations worse? Can you still wash your hair, brush/comb it, for examples? Does massaging your scalp make it better, or worse? Normally, some light pressure, massage, or counter-sensation can help make it temporarily stop. But it won't go away.
Has your doc thought about the negative effects of discontinuing Valium? Valium is one of the oldest muscle relaxers, not just treatment of anxiety. I doubt it is withdrawal BUT it could be that your muscles got so used to the relaxed state from Valium that going off it triggered all your nerves to 'react' with hypersensitivity.
When I had neuropathy really bad in 1 foot, a surgeon suggested I soak in TEPID water, then COLD water. After drying, massage, then wrapping it. Can you try ending your hair washing/rinsiing with cool-to-cold water rinse (just a few seconds), just to see if it distracts those nerves with a different sensation?
Every person with neuropathy has to find what works for THEM. Meds help but it only "covers up" the pain so you can tolerate it more. But you need (MUST) identify non-med ways to get those nerves to stop sending only negative sensations. Docs cannot help you to find alternate means. They have never experienced this and most do not know squat about treating it!! See part 2View Thread
However, this website discusses concussion / TBI and these cysts. https://prezi.com/wlvaqkg8ybak/concussions-and-arachnoid-cysts/ Scroll down below the empty picture place-holder where it says Transcript of Concussions and Arachnoid Cysts See the full transcript <--- click that on the webpage so it opens the article. Note: It gives no credentials for this author. Check the journal articles listed at the end, though.
I'm not a doctor. But from reading these, it seems yes a TBI could cause or aggravate a congenital cyst. Treatment appears to be based on symptom severity. If the cyst is collecting CSF, a shunt may be needed.
I don't know military procedures... Like, in civilian life, you must make a claim immediately after an on the job injury. So I hope you "claimed" in whatever ways the military required to do at the time. If the mil likes to fight 'claims' though, they could argue a cyst could have been there since babyhood and you just didn't know about it. But then, you'd argue that even if it was congenital, the blast likely caused a concussion that made the cyst worse. All this really depends on what your docs say, though. And at this point, the docs haven't said for sure if you had a TBI. But it sure sounds to me a mortar blast very near to you could rattle your brain inside the skull.
As I said, I'm not a Dr. But I always caution people to wait to see what the doctor says. It sounds like your one doc has an idea... so just see what the consulting Dr says. Until then, try not to worry over this (worrying won't change the outcome anyway).
We are not doctors on this forum, so we'd only be guessing. While I understand how to read and interpret test results, I do not have enough sophisticated knowledge (such as what a physician has).
I can say that, from experience, not every finding (even noted or noted as 'abnormal') is significant by itself. Some changes are very normal with aging (like loss of normal curvatures throughout the spine). Some appearances can be present for years, even from childhood, without symptoms or problems.
The art of medicine combines physical exam, clinical picture (the patient's overall physical condition on assessment), plus interpretation of test results with the exam and physical condition factored into that equation. Often, physicians discount or believe "unimportant" anything that does not fit a particular pattern for a certain condition or ailment. Also, even if the doctor and the tests show something wrong, it may not be serious enough (or serious enough yet) to do anything medically or surgically.
In particular you will have an uphill battle because some symptoms (dizziness/nausea, fuzzyheadedness, tingling, weakness) are so non-specific and could have numerous causes. Docs (esp. neuros) practically ignore these small symptoms, and only give heed to what jumps up and 'bites' -- figuratively speaking, of course. That doesn't mean you aren't having the symptoms--but that you might find docs do the "pat on the head" and never seem to really hear you.
Of anything, I'd focus on hand/leg weakness. BUT did they check your shoulders? Your wrists? Hand/arm probs can originate in wrists, elbows, shoulders, or---> neck. If they rule out any big problems at those sites, and surg is not indicated, ask about meds that could help your daily functioning.
For the nausea/dizziness, have they checked ears/sinuses? If nothing can be done re: the sinus finding... again, ask about meds to improve both or either.
ASK about the "flattening" findings. But, if they say they just want to watch / follow you... you'll find it less taxing to trust the doc and treat symptomatically. Try your primary doc for meds... many neuros don't want to follow pts just for medications.
I'm sorry I can't be more help. You also don't need to apologize about lack of exercise-- most of us here can easily understand that issue!
It's very common to have "sex headaches" or "orgasm headaches". They are like an "ice cream headache"-- sudden onset, strikingly severe initial pain, then the usual dull thud-headache.
However at 50yo, you have more things to consider. Rather than low BP, could you have transient high BP or the beginning of hypertension? Has a doc listened to your carotid arteries for narrowing? Has he listened to your heart?
Also, you don't mention it, so I will assume you do NOT use Viagra (which can also produce blood flow changes).
I'd get your heart rate, BP, and carotids/heart valves listened to... and ask your doc if the headache is of any concern.
It's definitely NOT too much sex. X It's very likely NOT anything like a brain tumor. X It's likely quite the opposite of low blood pressure; instead a transient high BP, if BP is the problem at all. X
As you probably know, Bell's can reoccur. Since you had two bacterial infections within a short time, I don't doubt you're exhausted, irritable, worried, and--fed up!
My suggestion is to pick whichever doc you feel listens to you best--hopefully your primary doctor. Request he put you back on another short term antibiotic -- just to be sure to cover the bacterial side. He might not, but perhaps he'd give 5 days.
Second, ask if he'd put you on a very low dose steroid for 30 days. Then, you'll have to titrate down over 10-15 days. Why the steroid-- first, it will continue to help any nerve inflammation. Second, it will likely help you feel better, more energy. But approach the doctor from the idea that a steroid will continue to help the inflammation. Even 1/2 to 1mg per day could be enough to help. Make sure you follow the schedule when getting off the steroid. Ask that he goes slowly in getting you off it. However, steroids can mess up your periods, so be sure to use birth control if you have sex and don't want an unintended pregnancy.
Third, when nerves get irritated or injured, they can produce neuropathy. Most docs only think of neuropathy if diabetic and the nerve symptoms are in the feet. But neuropathy can occur without diabetes-- and in any body area. It includes all the creepy-crawly symptoms you described. So ask for a short term trial of Neurontin 100mg at bedtime (or 100mg at a.m. and p.m.) Don't let him start you at 300mg-- it can interfere with alertness. 100mg should be enough to give a little relief. BUT before you start this drug, you must know you can't abruptly stop it or it can cause seizures. Make sure your Dr knows how to titrate you OFF it before you start it. If he doesn't know, push just for the short term steroid and antibiotic.
I'm NOT a doctor. But I think if they give just a little longer of antibiotic and steroid, your body might feel better.
Otherwise, a thin ice pack might help reduce the facial/ head tingling--- if you knew what nerves are irritated. Also, an alternate sensory stimulation *might* bring the nerve some distraction. For example, does it help to rub the area? A hat with a tighter band? A loose elastic head band or forehead sweat band? Can you put a throw pillow against your scalp when you lie down? Experiment to see if anything disrupts the painful /irritating nerve response--even for a few minutes. Sue, neuropathy can make you very irritable. It isn't in your head or made up. You just need a doctor who will really hear you.
Waiting for test results is horrid. All kinds of things go through your mind. But worrying won't help or change the outcome---whatever it is. Trust your doctors. And ASK questions when they have the report in front of them!
There are so many things that can go on with the brain and ear-- I mean just in that small physical area. For example, an ear infection can become bad enough to affect nerves in the face or brain. But there's SO many other things. So it's really impossible to tell over the Internet what they are looking for. The "urgency" might be to rule something OUT not just to rule something in.
The good and bad thing is you should get the results today. Just breathe. Take one thing at a time.
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