I have the same type cancer only at the base of my tongue and in the lymph nodes in my neck. I was diagnosed on 10/01/2012. I went through 7 weeks of radiation, twice a day and chemo once a week for seven weeks. The tumor on my tongue was to big for surgery so I did the chemo and radiation to shrink it, hopefully completely so I don't have surgery. I got a good report from both doctors saying I won't need the surgery. I was really dreading the chemo. I had heard so many horror stories of how sick it made you and how bad you always felt, but the chemo was the easiest of the two. the radition burned my neck and throat really bad and my throate is still really sore. It feels like you are draging something prickly across the raw tissue every time you swallow. the salava glands are gone so I have to drink water all the time to keep my throat moist so I don't loose my voice talking. I can finally eat whatever I want as long as its not too spicy.The taste buds are coming back so the food tastes better. I use Biotene toothpaste & mouthwash to help with the dry mouth. I use a prescription swish & swallow medication to dull the pain when I eat. I was like your husband the first few weeks. When I got still i went to sleep.I still don't sleep but an hour at a time and wake up. I do that all night long still.I still drink a lot of Boost and Ensure to keep my strength up and take a good Multi- vitamin & Mineral suppliment.I'm still a little weak in my legs and have to be carefull not to fall going up & down steps. I was lucky I guess to be over weight when I started with treatments. Some had to have a feeding tube put in they had lost so much weight and was so weak. I have lost 75 lbs. so far but I had it to loose and wasn't much of a problem. I've talked to several people with this same type of cancer and they all say it gets better. It just takes longer than we expected or wanted. Good luck to your husband and I hope this in some way was helpfull to you and him. If I can help or answer any other questions, please let me know.View Thread
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