Describing pain to doctors is beyond frustrating. They only understand basic pain. Chronic pain is a whole different thing. Your pain meds obviously aren't helping, so why take them? I know how it is when the pain is more than you can handle. I also know how it affects your mind. I swear there is nothing louder than the sound of overwhelming pain. Especially when you can't stop the pain even when you try to rest. Marijuana will help, but you obviously need a more permanent relief.
First you have to change doctors. I found a very progressive surgeon in Dunmore, PA USA. I know there is an experimental surgeon in Seattle, WA USA. I don't know what there is in Istanbul. You may need to travel. Ask your family doctor where the closest world renowned joint replacement center is in Europe. The next few surgeons probably won't know what to do for you, so ask them where they would go if THEY needed the latest technology. I don't like fusion, I think it is a bad surgery. If they suggest that, I think you can dismiss them as under qualified for your situation.
Joint replacement worked for me. Before surgery my mind had turned to mush. So much of my mind was focused on trying to deal with the pain that I couldn't think of much else. Occasionally I am a little sore, but I haven't had overwhelming pain even once since surgery. If you want someone to talk to, you can e-mail me at firstname.lastname@example.org. I may not have all of the answers you need, but I do understand your current situation. If you think you want to consult with a doctor in the USA I can give you a couple of suggestions. I am sure there are many in Europe as well, I just don't know who any of them are.View Thread
I feel your pain. I dealt with a bad ankle that steadily got worse for years. For years I just put on a happy face and ignored it. Then I put on a happy face and walked slower. But at some point the pain messes with your head. I took pain relievers when I was unable to walk without blacking out. That worked for a long time. Eventually it didn't. I used marijuana at night to help me sleep, but was unwilling to do so during the day. Worst of all, the doctors never had any answers. I was in a severe migraine for many years and felt like I couldn't function on even a basic level. I jumped from surgeon to surgeon but they had no options. Pain management is a joke. Physical therapy only works for joints which are improved with movement. And Psychiatrists can't help with this level of chronic pain. My solution was a total ankle replacement. My head was clear from the moment I left the operating room. Consult with a surgeon in your area which has the Scandinavian Total Ankle Replacement (STAR). My sub-talar is fused, but doesn't affect me now that my total ankle operates without pain. I don't know if this is going to be an option for you, but know that you aren't going crazy. The pain is simply overwhelming. Don't give up, keep on searching for the right doctor. My head is clear now, but I remember what it was like to try to function in overwhelming pain. Good luck.View Thread
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