I have been diagnosed with osteoporosis. I am a 43 year old female with a T score of -2.5. My doctor has recommended Aclasta and Lilly Forteo for the next 2 years. Should I go ahead with the medication?View Thread
I took oral meds (fosomax) for about 4 years. It became known as my 'Saturday pill' as I had to take it on Saturdays--it was the only day that I had the time to put up with the debilitating headache side effect. I opted for the Reclast infusion. The side effect was a little fever that day and nothing else. I hope to see Reclast on the company preventative medicine list for insurance coverage. Good luck.View Thread
I am a 36 year old man having a dexa scan z score of -1.7 and t score -1.9. Also I am experiencing a bone density loss of 1.2% since last year. I have a normal calcium and vitamin D level. Is my bone density very low, do I need to be exceedingly alarmed of developing osteoporosis. Do people of my age have such low bone density.View Thread
I went through surgical menopause at 41, struggled to find suitable HRT that didn't make me depressed and...
Posted by An_259728
I went through surgical menopause at 41, struggled to find suitable HRT that didn't make me depressed and fat, and find myself now at at 55 with a T-score of -3.0 in my spine. I also have muscle pain, depression an extreme fatigue. My bone density has decreased 8% in the last 2 years. I discussed it with my rheumatologist and she recommended Evista which I am now taking. On 30 September I finally got in to see an endocrinologist for a second opinion, she endorsed the use of Evista but ran a lot of bloodwork and a 24-hour urine test to rule out other causes for the low BMD. The blood tests all came back normal but the 24 hour urine showed excess calcium in my urine, my result was 466 where normal is 35-250. But the endocrinologist didn't even call me to tell me about that, I had to get the results myself from the lab. When I questioned the endo, she basically said that since all my other test results were OK, the hypercalciuria is probably not significant -- some people just have lots of calcium in their urine. I accepted this at the time but in fact I feel unsatisfied with this answer, like there ought to be a reason for it to be so high, or some kind of treatment, or else why bother even doing the test? I would also like to know if I should be trying to get more calcium from my diet or will that increase my risk of kidney stones. Any one else in a similar situation? What would you do next if you were me?View Thread
I have read so much bad stuff on the reclast. I am paranoid to take it. the nurse and dr. are blowing off the possibilities of me having more than a mild case of flu symptoms. I have PVC's that i take atenolol for and GURD and gasteritis, and TMJ, plus alot of allergies , and top it off with the fact that i seam to always get the bad side effects from new meds. What else can i do? i feel that if i take this infusion- I will die. By heart attack or kidney failure or an allergic reaction. There is NO way of really knowing. I know i sound paranoid , but..???? Wouldn't you be leery of it too? I also do not absorb vitamin D - like - at all. I had my blood drwn for a post test for the IV today , but think i am NOT going to go thru with it. ANY THOUGHTS??? I need better options! I am 49 and my t-scores are - 2.4 , 2.6, 2.9 all negative.View Thread
I am a healthy 74 year young woman who works out every day for an hour...tread mill, bike, elipse, stair climber etc... I have taken osteoperosis meds for years...first fosamax and then reclast. My Mother had osteoperosis and I take synthroid for hyperthyroidism so I am at high risk. The reclast has actually improved my numbers the last couple of years but 3 months ago I had a critical fall from a bicycle trying to avoid a car. I broke my pelvis in 2 places...a compression fracture in my mid back and a fractured rib. I have 1 or 2 Doctors who want me to take Forteo but 3 other Doctors who are against it because of possible side effects, the most troubling is bone cancer as I had DCIS of the breast and had radiation. Prolia is another possibility but I don't like the side effects such as the high risk of infections...bladder...I have had bladder infections before and they are not pleasant. I am so confused. I have to do something but I am just scared of the options. Reclast was working but doesn't build bone but am thinking of going back to that and see what happens. Any suggestions? I need help fastView Thread
I'm 54 years old my PCP sent me for what was to be a baseline BDT. No previous doctor felt it necessary to...
Posted by Anon_18674
I'm 54 years old my PCP sent me for what was to be a baseline BDT. No previous doctor felt it necessary to have BDT due to my age and the fact I was taking calcium. I took calcium supplements until a couple of years ago when my cardiologist said due to recent studies, the supplements may not be good for my heart. I have always drank milk, yogurt, calcium enriched oj and take vitamin supplements with calcium and vitamin D. Now I hear I have to be very careful because my density is so low, the term that was used was "severe". I was told I have it in my lower spine and hips. How can this be? No doctor prior thought I was at risk. I'm between disbelief and extremely concerned. My Dr. is talking about medication such as Fosamax. The only problem is I also suffer from bad reflux. I still am trying to figure out how this could have happened so quickly. Again it concerns me my doctors didn't think I needed BDT earlier due to age and health. Any ideas on how osteoporosis comes on quickly and treatment options are greatly appreciated.View Thread
Hello, I have osteo in my upper back and osteopenia in my hips. I have been having terrible pain ,which really cripples me where I can barely walk/ I take reclast once a year, so far nothing,on pain pills low dose take some pain doesn't last long. Is it normal to constantly have pain? I been through therapy,did some good ,but they won't send me back.. What do you all do for the pain? Thanks.View Thread
I am a reasonably active 44-year old male, (walking, swimming, cycling, some jogging) who was diagnosed with osteopenia about 10 years ago (T-score L1-L4 -2.0). Histories of T-scores are listed below.
My doctor 10 years ago put me on Actonel 35 mg once a week, plus calcium/vit D supplement. I encountered no side affects from the medication. I made no particular different dietary or exercise modifications.
After about one year, the T-score had improved slightly to -1.9. A new doctor (the previous one had left) looked at my case and suggested discontinuing the Actonel, and look at diet and exercise. After a period of a few years, and many 24-hour urine collections, there seemed to be a connection between high dietary sodium and high calcium in the urine.
I became quite careful about sodium intake, (lots of home cooking) and saw some improvements, for example in Aug 2011 improving the T-score from -2.4 to — 2.2.
However, my most recent year (a stressful work year, reduced exercise, increased alcohol intake) saw a significant decrease down to -3.5. However, as yet no fractures that I am aware of, or changes in height. Reflecting carefully on my diet, it is quite possible that although I strictly watched my sodium intake, I think that my calcium intake was not 1000 mg per day.
(As a side note, the machine that made the latest reading was different from the same machine making the previous readings — I discussed this with the Doctor, she spoke with the technicians who assured her it was correctly calibrated).
I have commenced Actonel, stopped alcohol/caffeine, and commenced regular exercise, (but am very wary of potential fractures). Calcium supplements may be an issue as I have a kidney stone (7mm), so I am carefully making sure dietary calcium is now around 1200 — 1500 mg per day (approx. 400 - 500 mg 3x daily). Testosterone, Vitamin D2 and D3 levels were checked and came back in the normal range, and the specialist also carried out other tests to check for bone cancer but this was also negative.
Last week my specialist mentioned that Forteo is another option to consider. My initial response to that was to stay with Actonel for one year, and then reconsider. She explained that results are better on Forteo when Actonel has NOT been taken prior. Apparently Actonel can be used after the course of Forteo to maintain any increases.
So my questions are:
Should I switch to Forteo now?
Which exercises can be safely used to help build bone at L1-L4 ?
Can stress have a huge impact in bone loss (-2.7 down to -3.5 in one year?)
Should I look to supplement calcium (and deal with kidney stone issues if and when they arise?)
Are significant errors in the DEXA measurements possible?
Would it be wise to check to see if there are any current micro-fractures in the spine?
Nov 2004 (first scan) = -2.0 Aug 2006 = - 1.9 (after Actonel) Aug 2007 = - 2.1 Aug 2008 = - 2.3 Dec 2009 = - 2.4 Aug 2011 = - 2.2 Aug 2012 = - 2.5 Aug 2013 = - 2.7 Aug 2014 = - 3.5 View Thread
I have read all the posts here on this subject, and no one has mentioned why some people's bones release more calcium out of them than others. I started to think that maybe the medication that I have been on for over 16 years might have something to do with my T score of -2.9! I take Synthyroid and have read that ones thyroid has a lot to do with Calcium absorption. I went thru menopause at the age of 52 and my mother didn't have osteoporosis until she hit her 70's! My bone loss is mostly in my neck and spine and I don't know what weight bearing exercises to do to increase the density there. I walk 40 minutes a day 7 days a week with my 3 dogs so my hips aren't as bad!
I am soo frustrated since I was on the Aldronet (sp) for a year and I still got worse!!!! I have been told to get on the Prolia now! I don't think I will be doing that since the side effects look to be really bad and if the Aldronet didn't do anything why would this new drug work! I need to find what keeps Calcium in my bones. Any suggestions or tests that I should take to find out some answers? blood tests look normal but my LDL is low. I eat good (no fried, fast food maybe once every 2 weeks and eat veggies with every meal!)
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