Hey friends...I've posted about this condition a couple times on this forum. Just an update on me...I have extreme pain in both arms and my arms have been losing feeling 3 to 4 times a day. Doctor says it could be because the way my bones grew my nerves in my arms lay differently than normal so my bones are pressing on my nerves now causing my arms to "fall asleep". I'm making an appt with an orthopedic surgeon asap. I'll let you know if he can fix my joints or just fix the layout of my nerves. Stay tuned....
I have the problem in both arms. My parents found out when I was 5 years old. I never had any problems growing up, I just did things differently when I had to turn my palm. Your son will find out ways to do things by himself, like instead of turning his palm over to receive something you can put it in a cup or on a table so he can just pick it up. I'm 40 now and just started looking around for a surgeon because I'm having pain in my arms, but up until now I've never had problems. Good luck with your son I'm sure he will be fine:)View Thread
The condition is called congenital radioulnar synostosis. Some insurances cover the surgery and some don't. It would probably be helpful to get the orthopedic surgeon to recommend the surgery to the insurance company they might consider covering it then.View Thread
I guess it's different for everyone, but I'm unable to do any kind of lifting, even hammer curls. I've tried and my arms swell after 1 set and then their completely immobilized for 2 weeks afterward, I can't even pick up a coffee cup. That's when I went to a specialist and he said lifting anything repetitively even if it is weightless will damage my arms. This obviously upsets me since lifting weight is so important for a person's well being.View Thread
Yes my elbows click too! Years ago the doctors said surgery today would leave scars on my arms...today they say it can be done several different ways without leaving any scars. You just need to find an insurance company that will cover it.View Thread
I was also born with my ulna and radius fused together. I'm very surprised at how many people have this condition. I'm 39 years old and I've never had any problems with pain, just normal problems like trying to receive change and anything where I would have to put my palms up. About 5 years ago I started a membership at a gym and started using light weights. This caused a lot of pain in my elbows to the point where they would "lock up" and I couldn't use my arms at all for 2 weeks afterward. I saw an orthopedic surgeon to review the status of my arms, (the last time I checked with a doctor about them I was 5 years old), he said because the way they are fused that repititive motion would deteriorate the bone so I should never use any kind of weights. I went to get a second opinion and they said the same thing. They said I could get surgery to fix the problem, but insurance would probably not cover it. So I'm seeking other ways to lose weight and strengthen my body without using my arms.View Thread