Hi there, I was diagnosed with M.E.N.1, about 15yrs. ago. My Parathyroids had to be removed, due to tumors. Which means, they were not producing Calcium for a looooong time! Not sure, how long, but I'm 52yrs. now, & my hip broke @ age 35yrs.! I have Severe Osteoporosis, and have been on Forteo for almost 2yrs. After that, I'm not sure, I guess another bone density, hopefully, it will have improved from the start of the Forteo. This all stems from a genetic illness I inherited, the M.E.N.1. My Pituitary is non-functioning & my Pancreas overproduces, "Gastrin", which causes very bad ulcer type tumors in my stomach. (aadenomas) It goes on & on as every Endocrine Gland which is infected, has some sort of harm somewhere else in my body. You don't always know what is happening, until it's too late! Hopefully, my Endo, will be on top of all of it!! Thanks for listening, periwinkleView Thread
I didn't have any idea I had a genetic illness, (MEN1), passed on from my Mother until my hip broke, under normal conditions @ age 35. I then was diagnosed with Hyperparathyroidism! My calcium was actually going into my blood, hence all the kidney stones, no calcium into my bones! They call that Hungry bone syndrom". Ever since then, my life has been turned uupside down! MEN (Multiple Endocrine Neoplasia" Many tumors of the Endocrine system, It is slowly killing me. All 4 parathyroids were removed, due to tumors, my pituitary is non-functioning, & my pancreas over-produces (I can't remember the name!) which causes tiny tumors in my stomach! But the hyperparathyroidism is what has caused most of my issues as my bones are so weak, they hurt 24/7! I fall all the time, my back has literally been re-built, along with 2 knee replacements! And I'm only 52yrs. old now! My house is on stilts, I live on a river, so getting up & down the stairss is an adventure! Usually, going down happens quite quick! Thank goodness, my son is usually there to catch me! Anyway, I was just being curous & wanting to know, Does antone else have this disease?? Thanks for listening, periwinkleView Thread
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