I'm a 48 yr old female. I've known I've had low bone density since 2004, when I was diagnosed with Celiac disease. I've been completely gluten free since the diagnosis and have exercised regularly. In 2009 I had another DEXA scan done because, for various reasons, I wasn't convinced that the Celiac disease was the only reason for being osteopenic. It showed additional bone loss, though not yet osteoporosis. Went to an endo and the testing she did showed I had hypercalciuria (I was peeing out my calcium), so I went on HCTZ to help the kidneys retain calicum in my body. After being on the HCTZ for one year I had another DEXA scan in Dec 2010--it showed I'd lost 5% bone density from the previous year and that I now had osteoporosis in my spine (-2.5). Upped the dose of HCTZ, added weight lifting to my exercise routine and started eating a little meat (was previously a 24 yr vegetarian). I just had another DEXA scan in Dec 2011 and it showed I'd lost an incredible 15%, in just one year, from my spine. I plan to go on an osteoporosis drug, but my endo is stumped as to why this has happened. I'm really afraid for what my future holds and plan to aggessively look for this new cause of my bone loss. I'll add that I've been diagnosed with spinal arthritis and fibro. I'd welcome an ideas on what to pursue and where to do that at, plus any other suggestions. Thank you.View Thread
The issues you discussed on building bone mass (or not) are certainly an issue for younger women. I've noticed with dismay the poor eating and exercise habits of younger woman I know(under 35) and the worse habits of teenagers today. But those don't apply to me in this instance.
If I didn't reach peak bone mass, it wasn't because of my personal eating or exercise habits. I'm 5'3", 116-119 lbs and have been throughout my entire adulthood. I've always had a good diet, even in childhood. Soda and junk food weren't a part of diet except as occasional treats and that continued into my adult life. Dairy products were a central part of my diet until 5 years ago, when I realized how much intestinal distress they were causing me, so at that time I greatly decreased the amount of them I ate, but also greatly upped the amount of the calcium/vit D supplement I was taking. I have also been active all my life--walking, hiking, rollerblading, gardening, biking. I lifted weights sporatically throughout my twenties, but started on a regular lifing program at age 30, which I continued until age 42.
Has your osteoporosis center looked in inflammation as a major cause of bone density? In the last few weeks, as I've tried to pinpoint other bone loss causes, I've been looking further into whether inflammation from my spondylitis could account for this rapid loss. Many things I've read about inflammation make passing reference to its ability to "thin" bones. Just this week I was in an email exchange with someone from the Spondylitis Assoc. of America regarding this issue. They sent me a link to a 2004 article written by a Canadian rheumatologist discussing how on-going severe inflammation, whether, let's say, from inflammatory bowel disease, ankylosing spondylitis or some other inflammatory condition can lead to osteoporosis because inflammation causes the release of certain chemicals into the blood that activate osteoclasts. He notes that inflammation isn't taken that seriously for its bone thinning potential. Is that true today? Does your center look at long-term inflammation when evaluating people for osteoporosis and its causes?
In my case, I'm beginning to think that this might be the reason for such rapid & severe bone loss. I was diagnosed with spondylitis less than one year ago and currently not taking any medication for it. This will change in March, when I will be put on one of the biologic drugs (have to wait until I've taken the Forteo for at least 1.5 mos to note how my body reacts to it).
I'd be interested to know what you all know about the severe inflammation/osteoporosis link. Thanks for your time.View Thread
Had an appointment with my endo a week ago. She now thinks the 15% bone loss in 1 yr. is the "high" side of normal, wants me to go on Forteo (I will begin it in about 2 weeks once insurance issues get resolved) & doesn't think I need to look for any other cause for the bone loss. She thinks that since I went through menopause 7 months ago that this is the cause of all the loss. Saw my rheum. yesterday and he thinks the same thing, with perhaps a bit of the loss caused by the immflamation of the spondylitis. If this is indeed the case, I feel I've been greatly let down by my doctors. At no point did anyone warn me that I could have such rapid bone loss--if they had, I would have gone onto an osteo drug sooner. In fact, for years I've been told that bone density doesn't change much from one year to the next.
I'm starting to think that doctors don't take bone loss in "younger" women seriously. Perhaps they (and medical researchers) don't really understand how bone loss occurs nor the rate at which it can happen when bone loss isn't age-related.
You mentioned in a previous reply that a perimenopausal woman can lose 20% of their bone density in the years leading up to menopause. I've never heard of such a high rate. From where did you obtain that information?View Thread
I appreciate the information Bonebabe. My forearm was measured and it hasn't changed much from 2010 (-1.3 then & now) I plan to go to the ISCD website to see if the facility is certified. Also, I have had my Vit D checked and it is normal (35.4). I've been to the NOF website. They have a lot of good information. I will order the booklet you suggested.
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