Hoping bonebabe is around to weigh in on this. All comments welcome. My compounding pharmacist recommends this product, saying it is widely used/accepted in Europe. My daughter likely has osteoporosis due to non-weight bearing muscular/skeletal condition. She has metal in her spine and both hips (spinal fusion for scoliosis, hip plate to address dysplasia, rod for spontaneous broken femur) making DEXA difficult. Endocrinologist is considering fosomax or other type med, but since there is no protocol for an older teen, and without DEXA, we have no baseline, not sure what to do. I asked our pharmacist for his thoughts and this was his recommendation. MDs recommend 1200mg calcium plus 800IU vit D and possibly fosomax type med. Daughter's D2 is a little low. D3 is 65. Parathyroid is ok. Thyroid is ok. Can't think of anything else to add, but glad to give more specific info if needed. Thanks in advance.
Can DEXA be taken with metal in spine/hips? If not, is there another measure to take?View Thread
Thanks so much for your opinion. Well, I guess the scan doesn't offer much in light of what you said. Her fusion is L1,2,3,4. Metal in both hips. I'll ask about the forearm. The pharmacist offers a wrist scan (think its the wrist, not forearm). What do you think of that? I am interested just so I'd have something for myself. For now, the endo is waiting six months to see if her labs go up for Vit D and Calcium. We'll talk about another scan (possibly forearm) at that point. The pharm is a friend of mine and is offering his scan for free and the repeat on down the road. I realize it may not be definitive, but I would like to see some measure.
Good to know the biggest risk of bone building drugs is birth defects. That isn't a good side effect; forgive my insensitivity. I mean that isn't an issue since my daughter is on BCP and for now is not and has never been in a relationship at all. I'm glad you mentioned BCP. She has been on BCP for about five years now.
I asked her orthopedist (who does not manage bone density) and he said he has had some patients treated with just a six month course of fosomax type meds and has seen some improvement. I might ask the endo about that next time.
My daughter is as physically active as her disability allows. She will be meeting with a physical therapist soon to come up with a doable weight bearing program.
As always, thank you for your valuable point of view.View Thread
Hello, I am newly dx'd with osteopenia. I've upped my calcium, vit D. I have a question about getting vit D naturally via sunshine. Recently I read an article which stated we get 20,000 iu of vit D in just 15 minutes of no-sunscreen sun exposure. I use sunscreen. My question is, does sunscreen prevent vit D absorption or production or however it is we get the vitamin? Do we get enough through skin no covered with sunscreen such as my head or body covered in clothing? I only use sunscreen on exposed skin and do not wear clothing with SPF.
I was going to post this on the skin community page, but it doesn't seem to have an expert weighing in and is mostly about rashes. Hoping this community can help.
I was thinking along the lines as bonebabe. Have you had a full thyroid panel including antibodies testing? If not, I think you should ask your endo for this. Perhaps you have thyroid disease causing low bone density and low vitamin D.View Thread
Do you have osteopenia or osteoporosis? To what does your rheumy attribute this? I have hypothyroidism which is a factor in my osteopenia.
I do understand your concern and am hoping bonebabe weighs in on your questions. I have a daughter with osteopenia. We learned this when she was about nine. We did not start any meds, such as fosomax or reclast because there are no protocols for this age group.
Good luck and I hope you keep this group updated. This inquiring mind wants to know!View Thread
I'd love to have had a shot of vit D and then maintenance. I think I will recheck levels at six months then annually if my doctor agrees to this.
I perused the site you suggested. Awesome link! I understand the limit on what the body absorbs. I pretty much eat or take calcium/vit D about every three hours all day long.
Thank you for the reminder regarding my kids. One of my kids is outside all day long. He is an avid cyclist, hiker, hunter, and more. Two need to boost their weight bearing activities and sun exposure. One of my kids has a disability and has since childhood, had osteopenia. She is on a low dose of estrogen (BCP) and supplements in addition to appropriate foods. Its been awhile since DEXA and never had labs, so I am going to revisit this. I appreciate the prodding.
I can't believe peak bone mass is reached so young! Why is that? Thirty five to 21 is a drastic reduction in time!
Thank you again, I just can't say that enough. Your input is invaluable.View Thread
Thank you again. For now, the calcium and vit D levels are at the dose recommended by my internist. I just started this about three weeks ago. I take supplements three times a day in addition to milk, yogurt and cheese every day. I have had labs that show low levels. I have the report, but not in front of me at this moment. I will get that and add it to this thread. I have lab work every three months right now as we adjust the the thyroid med. I did not take any supplements during breastfeeding years, dang, wish I had known! How often do you have your vit D level checked? How quickly can one get levels back up to optimum level?
As far as estrogen, I have an appointment with my gyn in about three weeks to get her input. I'll have some blood work to see where I am in the peri/meno-pausal stage. I know it isn't as accurate if one is peri, but we'll see. For now, I have mammograms every six months because my breast tissue shows some changes. I've had a biopsy recently showing nothing remarkable thankfully. I don't have a family history at all for breast cancer, but still. I guess we'll have to weigh that out: raise risk for breast cancer slightly or take measures that slows bone loss. Thoughts?
Thanks on the tip regarding response on insurance applications. I understand osteopenia for the most part, but wondered specifically if sunscreen completely blocks it, which apparently it does. I'm in a southern climate so I do get outdoors. I also supplement with 1800mg of calcium and 2000iu of vit D.
Does our body, and if so, how long does our body store vit D absorbed from sunshine? Just wondering if anything we get from sun lasts through the winter at all? I guess not since it is necessary to supplement.
My osteopenia is likely a symptom of hashimoto hypothyroidism, so I wonder if as it (hypo) progresses, will that speed osteopenia?
Can you address BCP or other HRT as a treatment? I am near menopause, just have about two periods per year the past couple of years. I will be going to my gyn soon to discuss this. Additionally, I may not be as near to menopause as it seems because irregular periods is also a symptom of hashi. I'm wondering if even a couple of years on estrogen might be a good idea.
If it matters in how you formulate a reply, I am 48, always had very regular periods until the past two years. I only took BCP for about four years in my early 20s. I've had four pregancies and breastfed my kids for a total of four years. I'm a slim framed, caucasion woman. Never smoked. Need to exercise more regularly, but am busy, active. No family history of osteoporosis.
Thank you very much. Your input here is quite valuable.View Thread