I was diagnosed 2 years ago. I am a 34 year old male. Never smoke, no drugs, no alchohol, no meds, no family history. For 2 years I have been taking vitamin D and calcium. My scores have gradually declined from -3.2 to -3.4 on spine and -1.7 to -2.1 on hip since diagnosis. I currently see an endocrinologist. I was wondering if there is a specialist or facility that would be better at handling this or have a better chance of figuring out what the cause is. Of all the testing I have had (which is alot) , the only things that sticks out is my first vitamin D (when I didnt take supplement) was low at 24 and my testosterone was in the low normal at about 260. Took Test..shots for a year, but a second endo.. felt like it wasnt neccesary and took me off of it. At my age I really should stay above 650. I kind of lost on which direction to go with this now. I don't really want to take any bone meds., I just want to find if there is a cause before treating symptoms and the osteo.. Any help would be appreciated.View Thread
Well not really sure what all they tested for and looked for. I am so new at this. This is why I wanted to get more involved and learn about it. I have all my blood and urine test compiled into one spreadsheet that is only two pages, if anyone is interested in peeking at it. I know very little at what to look for. Sound like I need to find good Rheumatologist. Will any Rheumatologist work or are there special ones that better relate to osteoporosis?View Thread
So if my scores there differ or - .5 or even 1.0, I should still seek help on this. The bottom line is that a Rheumatologist is the best person suited to my problem, rather than an endocrinologist? I called the place that was here and on the ISCD list and they said they could do the scan, but would need to seek a Rheumatologist. They used to have one there and immediatly gave me the rheumatologists' phone number, because she left them and started an office on her own.View Thread
So I just went to the ISCD website and looked at my state Oklahoma and was surprised to see that the only one in my state is the the town I live in! Duncan is a small town, so I was surprised since there are so few listed on the website. Does this look like the one I should use? Or are they only listed for the DEXA scan credentials?View Thread
Again thanks for your reply. good information for me! I was under the impression that osteoporosis was related to how low your T score is and not age, but I am new to this. Not sure if I have been tested for the autoimmune illness. What types of tests are needed for this? I have not seen a rheumaologist only endocrinologist. That was my biggest concern, whether I am seeing the correct specialist or not. I have had alot of blood work done and some urine analysis, that's about it. I have composed all of my blood and urine work into an Excel spreadsheet that will allow me to quickly look at blood scores over last 7 years quickly (all of it fits on two pages so far). Hopefully it can also help doctors just as a reference, as I am sure they will want to test me themselves. The advice you have given me has been much needed insight. I just want to get a good clear aim of the direction I need to pursue. I would be fine with taking the bone meds if I had more peace about whether not I have an underlying cause that needs to be addressed.View Thread
Thank you for the information!! What is the difference between low bone density and osteoporosis?? Why do you have to be older than 50 to have a diagnosis? The reason I seeked help when I was 32 was because of repeated rib fractures, joint problems, and fatigue.View Thread
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