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If you've had compression fractures, you might gain some height by having a procedure, but it's not just something you can ask for to increase height. I would think that if your vertebrae were in perfect alignment (as they should be) and the cushioning between them is full (as it should be) that you would get no benefit from a procedure - IF you could find a doctor who would do it.View Thread

Do you know that half of people who have an osteoporotic hip fracture will die from complications of that fracture in the first year following the fracture? I can't think of any medication side effect that is that bad.
I'm confused when you say bone density tests have shown that your shoulder bones are thinning. What kind of bone density test? The DXA only measures the lumbar spine, the total hip, the femoral neck and sometimes the wrist. I've not heard anything about shoulder bones - although all the bones in your body can thin when you lose bone density. But the testing measures the bone mass in the areas most likely to fracture, the back, the hips and the wrist.
Be sure to get in your calcium daily when you're on the medication so that you get the full benefit of it. Also get 1000-2000 IU of Vit D each day. Medicine won't work effectively without it.
Go forward with no second guessing or regrets. You're doing the right thing for your life.View Thread

With your history of vertebral fracture, you certainly don't want any more, but you're at an extremely high risk of having another.
Have you fractured since being on an osteo drug? We consider our patients to be responding to treatment if they have no further fractures and their scores do not significantly decrease. They're deemed stable in response to care.
If you have fractured and your scores have decreased significantly (as determined by the testing center's precision study) then I believe I would try another med. Either Prolia or Forteo. Your life with increasing fractures will be much much worse than any side effect of any medication - and there are no second chances once you fracture.View Thread

With both of them doing this, it may very well be that something genetic is going on. I would certainly ask that their Vitamin D levels be checked and ask for a referral to an endocrinologist for a thorough workup.
I'd also look on the ISCD website, www.iscd.org , under the Certification tab at the top, then click on Registry and look for a CCD in your area. That's a doctor who's certified as an osteoporosis expert clinician. That may be a starting point. Many of them are endos and rheumatologists.
Make sure they're consuming enough calcium, especially at this age. They will reach their peak bone mass around age 25, so you want to be sure they're building up bones now. I'd give them a calcium supplement at supper. Maybe try one like Viactive, which is almost like dessert.
I know this is worrying you. Hopefully the specialist can give you some answers.View Thread

Look again at the ISCD site for Certification then Registry for your state. Look for CCD's. Those are the doctors certified to manage osteoporosis patients. Also look next to their name to see if they're members of the ISCD. I'd go for one who is. It doesn't give their speciality so you'll have to google them to find out, but that's the best way to get what you want.View Thread

Why were your boys tested? Routine testing of teens is not done unless another illness that would lead to bone loss is suspected.
How were their bones broken? Football? Rough play? Falls from above ground? Violence? If the bones were broken from a standing position (without them being slammed into by someone) that is a red flag. Sports injuries aren't a big deal unless they're multiple occurrences.
Why does their doctor want them to see a specialist? Is there a genetic predisposition to fractures?
If they're outside a lot, get plenty of calcium in their diet, aren't on corticosteroids, don't have a genetic factor, other illnesses have been ruled out, I wouldn't worry too much about this. That being said, I have to say I'm not a doctor and I don't know their medical history.
Go online to the National Osteoporosis Foundation website (www.nof.org ) to get some more information and talking points for your doctor visit.View Thread


We know you're at a very high risk for fractures. We know that without medication, your risks will increase and your quality of life and independence will be affected. We know that you have vertigo when on the Forteo. We know that the spinning sensation will certainly increase your risk of fracturing. We also know that medications work and can increase your bone density.
What we don't know is if the Prolia will affect you like the Forteo did.
With these facts, you need to make the decision to take the Prolia or not.
As for the Fosamax not working. It may not have. Every medicine doesn't work for everybody. To say that you went from osteopenia to osteoporosis can be a big deal or not. It depends on your T-scores. If your T-score for the osteopenia was -2.3 or -2.4, you did not in all likelihood have a significant change. How we explain this to our patients is to give the analogy of obesity. If, say obesity was defined as 200 lbs and you were at 199, according to the parameters, you would not be obese. So does that mean you're OK until you hit 200 lbs? Osteopenia is a huge area that can be nearly normal or nearly osteoporotic or just low bone density.
I'd log my calcium intake for a few days if I were you, remembering that the body can't absorb more than 500-600 mg at a time. Many people think they are getting plenty when they're really not. It's very difficult to actually get more than 1500 mg into the body in a day. You'd practically have to set your clock to take the calcium.
I don't know how you feel about putting on some weight or if that's a problem for you,but I think that would be of benefit to you too, for a lot of reasons.
As I said before, all medications have risks, but sometimes we have to take the risks to get the benefits. These decisions are not always easy or clear cut and there is no right or wrong for you. You just need to look at your life in the long run and how it would be with either choice. I certainly wish you success.View Thread

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