If the doctor noticed frail bones on a regular x-ray, you did indeed have something going on. Bone loss doesn't usually show on x-ray unless there's significant loss. They aren't designed to pick up bone density.
Have they looked for illnesses that could cause osteoporosis to be a result of that?
How old are you? Are you still premenopausal? Were you on Depo-Provera for birth control? Were you ever bulimic or anorexic? Any IBS or Crohns?
Forteo is a good drug. It's the only one that will actually grow new bone. Because you've tried others with no success, it's likely to be a good thing for you.
How was your lack of improvement measured? When our patients don't lose bone, they're determined to be stable - and that's a good thing. The goal of osteoporosis treatment is not to improve T-scores (although in your case it would've been Z-scores) in themselves, but to reduce fracture risk.
You can have a score to remain the same or even drop a little. This is not alarming. T and Z-scores do not determine change. The BMD does, and it's determined by a very precise formula. A layperson cannot simply look at her T-scores and say whether or not there's loss or gain.
Just make sure when you're taking any kind of osteo med, that you get 1200 mg of calcium a day. Spread it out. The body can only absorb 500 mg or so at a time. You also need about 1000 IU of Vit D so that the calcium will be sent to the bones. If you don't do this, your medication loses effectiveness.View Thread
It won't. Sorry. If for no other reason than bone does not respond to change that rapidly. That's why bone density tests are recommended every two years.
As for this doctor, I haven't seen the video, but will check it out. Does he also sell some of these or other products or a book?
His way might work if you're still building bone. It won't work if your T-scores are below -2.5. People do more harm to themselves by wasting time doing something "natural" than they would by taking a proven verified prescribed medication for osteoporosis. If you do this and your bone density hasn't changed, you have to wait two more years for another result. During those two years you could've been doing something that really would help your bones instead of giving them time to weaken further.
All natural is alway all good. Peanuts are all natural, yet can kill. Same with strawberries.
The weighted vest won't hurt you unless you've had vertebral fractures. Then you wouldn't want to put any weight on your spine.
You also have to be careful with Vit K, etc due to the blood clotting issue.
So many people are hoping for a natural, cheap, easy fix to osteoporosis. There's not one that's proven to decrease your risk for fractures. There's sooooo much more to bone health than a T-score. T-scores can be artificially elevated by arthritis and strontium - giving you a false sense of success.
You're not doing yourself any favors to go this route if you truly have low bone density or a history of fractures. There's no shame in taking a medication that works for a condition you have. I am thankful we have medications that prolong our lives, make us feel better and allow us to remain independent for a long time.View Thread
I doubt that a physician will respond to you. If one on this board does, it won't be subjective. They are bound by the rules of posting to be objective only.
I can tell you that there is no clinical diagnosis given to premenopausal women. It makes a difference when applying for insurance or when making treatment options. Doesn't mean your bones aren't fragile - just no clinical diagnosis.
That said, even though your numbers are in the normal range, the fact that you've had nontraumatic fractures would give you a diagnosis of osteoporosis (regardless of T/Z-score) if you were postmenopausal. The fact that you have had fractures does indicate that there is a problem with your bone density. Healthy bone would not have broken. You lose bone at different rates in different areas of the body. We normally only scan the "hot spots" (lumbar spine, left hip and possible forearm). Your thoracic density could be low or you could have low bone density secondary to something else.
At age 31, it's entirely possible that you hadn't finished building your peak bone mass. It's also possible that during your bone forming years, you didn't consume enough calcium and/or Vit D to get them as strong as they could be.
Bottom line is - you're where you are and have to deal with it.
Having one fracture makes you twice as likely to have another - as you've experiences. Are you on any high risk medications like prednisone, depo provera shot, antiseizure meds, diabetes treatment etc?
I agree with you that the Forteo seems extreme to start with, but then I don't have your health history and I'm not a doctor. Ask your doctor why he believes you should start with the Forteo?
Go online to the NOF website for a lot more information on everything osteoporosis (www.nof.org ) you need to pay particular attention to the body mechanics. You NEVER should bend forward at the waist or twist the spine. There's a whole section on this. You can also order their booklet "Boning Up on Osteoporosis." We use it in our osteo rehab classes and it's a wonderful resource book. Costs $5.
It may be too that you're peri-menopausal and your estrogen is getting lower. You wouldn't know this without lab work.
One other nugget of information to have, especially when you're talking to a doctor. If this was your first bone density test, whoever told you that you had any kind of loss, much less a 22% and 25% doesn't know what he's talking about.
You won't know you have a loss until you know where you started. Something to measure a loss from. When you have another DXA, then with those numbers you can compare them to this DXA. Then you'll know if you're losing or gaining or remaining stable.
It may very well be that you're losing bone density. We just don't know what your peak mass was. Or you may never have reached your maximum bone mass and were always on the low side.
As much as it hurts, a broken toe doesn't count when looking for osteoporotic fractures
Good luck in your mission for healthy bones!View Thread
How old are you? Have you gone through menopause? Are you on hormone therapy? Do you take steroids for an inflammatory illness? Have you fractures a bone as an adult? What were your prior T-scores and your current one?
A 22-25% bone loss is a lot. In what amount of time? 2 years? more?
There's not enough information to give a valid suggestion. If you've already had a fracture, that ups the ante as you'll be twice a likely to have another. If you're under 65 or so and at a -2.5 T-score with none of the above risk factors just the strong family history, you'd probably be fine with Fosamax
If your T-scores are low and are continuing to drop, don't even entertain the idea of a "natural" solution. There isn't one. You'd be wasting your time and money and continuing to worsen.
The best advice I can give is to go to the National Osteoporosis Foundation website (www.nof.org ) for a lot of answers to your questions. They have a section on medications that compares and contrasts them. It's very helpful. They also have a wonderful booklet called Boning Up on Osteoporosis. We use it in our osteoporosis rehab classes. It gives illustrations too of movements to make and to avoid.
As for your activity.....do not do any forward bending at the waist. Bend from the hips, keeping the back straight. No pilates or jogging. You can do yoga if your instructor is educated in adjusting the positions to make them safe for you. No twisting of the spine. Ever. You'll want to be on your feet at least 4 hours a day total.
Whatever medication you decide on (wacky is scary) be sure to consume 1200 mg of calcium and 1000 IU of Vit D each day. The body will only absorb 500-600 mg of calcium at at time so be sure to spread it out. Take your supplements with food for best absorption. Without the calcium and D, any medication you take won't work effectively.View Thread
My first suggestion is that you stop running. I know, I know...you don't want to. Walk instead - power walk. Running pounds the spine. It causes tiny fractures that you can't feel. Eventually these tiny fractures in the honeycomb bone will cause the vertebrae to collapse. You'll feel this. There's no going back after this happens. You'll wish you'd stopped running. Walking benefits the bones and is easy on them.
You'll get your cardiac workout from the biking. That won't help the bones, but is a good workout.
Did you go on hormone therapy after your hysterectomy? Are you on them now?
Either the Reclast or Fosamax would work. The Reclast is convenient and bypasses any gastric issues you could have.
What were your T-scores? When was your last DXA?
Just remember that you need to consume 1200 mg of calcium and 1000 IU of Vit D each day in order for any osteo medication to work effectively. If you don't do that, you may as well save your money on the medication.
When you take the calcium, read the labels carefully. Calcium citrate takes 2 pills to equal 600 mg. Calcium carbonate takes one. Your body will only absorb 600 mg at a time. Best to take supplements with meals for best absorption.View Thread
My first advice to you is to immediately go on the National Osteoporosis Foundation website (www.nof.org ) and go into their "store." Look for the booklet called Boning up on Osteoporosis. It costs $5 and will be your new Bible.
Specifically what you need to learn are the movements to do and to avoid. There are illustrations that will be critical to you.
So you had a DXA 1 1/2 years after being on Forteo, did I understand that correctly? If I did, and your scores were the same, that's not a bad thing. The reason is you're to have a DXA 2 years after the Forteo, not 1 1/2. Bone is very slow to respond to change and 1 1/2 years is not long enough to accurately measure change. That said, not showing any loss is a good thing. It means you're stable. You may even have shown some measurable improvement had your doctor waited until the full treatment was completed.
Did you go on a medication after the Forteo? That's important. Also consuming 1200 mg of calcium and 1000 IU of Vit D each day. Without that, no osteo med will work effectively.
While a -4.4 is very low and very scary, it's not as bad for a 58 year old as it would be for an 80 year old. You may go the rest of your life without another fracture. But..you have to be aware of your body mechanics. No forward bending at the waist and no twisting of the spine. Ever. That's all explained in the booklet.
I understand the job frustration. It may be possible to qualify for disability since the opportunity for other employment for you is nonexistent. Maybe there are some civil service jobs in a neighboring community that you could do. Go online to the government jobs websites and check it out. You'd be surprised at what government employment is available.
I get it that you're overwhelmed now . But all is not lost. You're doing the right things and are aware of your health limits. Some people never are.
Tackle one thing at a time to feel in control. The booklet first, then your medication choice along with calcium and Vit D, your knee surgery and then a job.
Have you thought about pet/house sitting? My husband and I started doing that by accident and through word of mouth and now we have to turn down jobs. It's flexible, fun and pays well. Something like that might work for you. Especially if you can stay at a person's house overnight. There's a big demand for that. Lots of information on the web about how to get going on it.