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Because you're already on Forteo and have already had a vertebral fracture with kyphoplasty that is crumbling, in my opinion there is no side effect of the medicine that is worse than your future if you don't take it.
The jaw necrosis is very rare and the only documented cases of it being caused by bisphosphonates are with nursing home patients who are already ill and who've had IV infusions of the med.
I wish you a successful experience with whatever osteo med you decide on and a fracture free future.View Thread



You're doing the right thing with the Forteo. It will grow you new bone. It is important that you take a bisphosphonate when you finish the Forteo to strengthen your new bone.
I also would suggest getting with a physical therapist for some exercise to strengthen your back muscles to further support your spine. Also double check your calcium consumption that you're getting 1200 mg spread out throughout the day. This is the time, when you're on meds that need calcium in order to perform, that you really need to make sure you're getting that calcium.
This is the point I try again and again to stress to those who "are doing fine and have never had a fracture" who shy away from the meds. There is no turning back once you fracture. It is very painful and it changes your life. There are times when you need more help than the natural approach can give you.
The more you move (correctly - no bending or twisting the spine) and the more those back muscles strengthen, you will get some relief. I wish I could say that doing those things would end or better, reverse, your problems, but I can't. You will always have problems, but overall your pain should be better tolerated.
In addition to the muscle strengthening, you would also benefit from PT instruction on ADL's (Activities of Daily Living.) They can show you how to get into and out of a car, grocery shop, do housework and/or gardening, sneeze, etc. in order to avoid another fracture. This should also give you a better path to becoming active again, but safely.
I've seen several dozen women like you who've gone through our rehab and education classes who swear that their quality of life has improved simply by doing these things. It's very important to them. On the flip side of the coin. we have lots more who say they wish they'd not waited so long to do something when they learned they had "only osteopenia."
Please keep up apprised of your progress (and you will progress). You can also look at the NOF website (www.nof.org ) for an osteoporosis support group near you.View Thread

Too many questions and not enough info at this time.
My suggestion would be that depending on her Tor Z scores (which are determined by menopausal status) the doctor would order some testing to see if there is an underlying reason for the low bone density.
If she has only had one DXA and it's low, it could be that she never reached her maximum bone mass and will always be low. If she's had two or more and the score is outside the margin of error and shows a loss, the doctor may want to talk about some intervention meds.
If she's not gone through menopause, her numbers will fall as she goes into and through menopause. Depending on how low they are, again, the doctor may want to prescribe something.
As for the back pain, low bone density doesn't cause back pain until there is a fracture. If she hasn't had x-rays, that should be considered.
The blood test don't give all the information needed for bone health results.
To sum up: If she hasn't had a DXA and xrays, that needs to be ordered. If she has and the numbers are low, the doctor should order further testing to see what's causing it.View Thread

I know this is frightening for you and your mother. I would talk to her doctor about possible reasons and solutions. I would not rest until I had some treatment plan in force. I can tell you with chemo and steroids, your mom's risk for fracture is huge. If she has a hip fracture, her chances of survival are not good. Do what you can to make her home safe and eliminate any risks for falls. Physical therapy might also help with the strength and activities of daily living.
You know, it might not even be the effects of any drug, but a manifestation of some other physical illness. She should be checked out for that first. I certainly hope you can find some answers and treatment.View Thread

Strontium Citrate is not regulated nor tested. No one knows exactly how much to take, or even if what's labeled as in the bottle really is what's in the bottle. The reason people who take it believe that their density has improved is because it gives a false positive on the DXA scores. Because the software used in bone density testing only measures calcium, putting strontium citrate, another mineral, in your body appears to elevate the calcium levels, making you think your bones are better than they are.
At a -3.5 score, you need to do some immediate and proven intervention. There is nothing natural, no matter what you read on the internet or hear from lay people, that will reverse what you have at this point. We've had this discussion many times on this board. As a disclaimer to myself, I do not work for a pharmaceutical company, nor do I or my coworkers write prescriptions or advocate for a particular medicine. We do work in an internationally accredited osteoporosis center within a hospital where we test, hold rehab and education classes, have a support group where we hear their stories, initiate and moderate exercise and yoga classes for people with osteoporosis right here in our own hospital fitness center. We also have a mobile unit that goes out into rural areas to test people who can't get in to us,we've participated in two special studies on osteoporosis in conjunction with UNC Chapel Hill, and...we've been filmed twice by PBS out of NYC on our multidisciplinary program. We see about 4000 patients a year and I can tell you without qualification that no one, not a single one, has reduced her risk of fracture by natural means alone. Not one.
Conversely, we hear many times how they wish they'd not wasted the years necessary to determine gain or loss by taking unregulated supplements or increasing calcium only, etc. During that time, their bone density decreased as their fracture risk increased.
I can also tell you that the lifelong side effects of a vertebral or hip fracture are many times worse than any side effects from a prescription drug that has been proven to help. Once your spine breaks and you become bent over and suffer pain until you die, and your independence is at risk, you will wish you could have a do-over.
What you decide to do about your health is totally up to you. I'm just giving you the benefit of my knowledge and experience so that you can make an informed decision. As I tell my patients who feel they have to convince me, "If you break a hip, I can still walk. Your decisions affect you, not me."
I wish you years of good health with the ability to do the things you want.View Thread

For people whose first DXA results in a low score, it's a toss up as to whether your bone density has always been low as a result of not building up your maximum bone mass during your bone forming years or whether there's something else going on that would cause your bone density to be low.
If your blood tests are normal and you've had hormone tests that are normal, other reasons it could be low at your age would be a chronic medical problem you've had, such as an illness that necessitated your use of steroids or anti-seizure meds, anorexia or bulimia or another condition that impeded calcium absorption, low Vit D levels, your genetic makeup (look at your parents/grandparents) amenorrhea, heavy alcohol consumption, the use of depo provera birth control shots. Any number of reasons your score could be low. It could even be that you're going through an early menopause.
What we see now are young women with low bone density because of environmental changes in our culture. They are smoking, reducing their milk intake by replacing it with soda, not going outside for recreation, thereby reducing their exposure to the sun (use of sunscreens too) and exercise. More kids are indoors on computers, video games, etc and aren't getting adequate PE in school anymore. We're seeing the results of these lifestyles show up in our osteoporosis center with stress fractures. Girls especially are prone to this as they are concerned about their weight and forego a healthy diet with exercise.
At 35, you've already reached the maximum bone density you'll have. What you need to focus on now is preserving that, and if your doctor has ruled out any medical reason for this, not losing any more bone mass.
Look at the NOF website for information on this. www.nof.org There's a really good FAQ section that has a lot of good advice and information for you.View Thread

You are very fortunate that you have not had a compression fracture. But there's no way to know if those small bones aren't breaking. I would be very careful if I were you. Bending and twisting in all directions is not worth the risk you're taking.View Thread
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