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I want to share a few things with all of you (new and old members) to improve your experience here...

We must let go of the life we have planned, so as to accept the one that is waiting for us.
~Joseph Campbell

Posted by Caprice_WebMD_Staff

15 Replies | Reply | Watch This Discussion Report This | Share this:Please Read Before Posting I want to share a few things with all of you (new and old members) to improve your experience here...

Chronic Chest Pain

Hello, I'm 19 years old, and I've been suffering from chronic, constant, every single day, pain in my chest for...

Posted by Nivakon

Hello, I'm 19 years old, and I've been suffering from chronic, constant, every single day, pain in my chest for over five years now. I'm sort of running out of options, the pain is seriously disrupting my daily life and activities now.

It all started when I was in 8th grade. In April, five years ago, my left hand turned blue. (I know this sounds crazy.) It wasn't my entire hand, just my thumb and index finger and the area in between. After some labs, and seeing a doctor we discovered I had a severe case of strep that only infected my throat for a few days before moving on to my kidneys and hand. It's rare, but I was told it can happen. The doctor said it was an unusual manifestation of the infection, but that similar cases had been seen. Anyways, by the time I had been diagnosed my body had pretty much fought off the infection so I was never given antibiotics. Shortly after having this, a pain began in my chest. At first, I thought nothing of it.

But some time passed and I grew angry and irritable all the time because there was a constant dull ache in my chest. When I got upset, or stressed, or if I did strenuous activity where my heart rate and breathing increased the pain would go from a mild 4 to a horrific 10. After a couple months, my parents took me to the doctor. He said it was likely a pulled muscle, and prescribed maximum strength ibuprofen. Did nothing. No relief. So we went back. Same doctor gave me different medication naproxen. When that didn't work and I went back complaining of the pain he recommended I see a cardiologist. So I did. We discovered I had mitral valve prolapse and I had suffered minor regurgitation. The cardiologist gave me a beta-blocker suggesting it could relieve my pain. It didn't. By this time, two years had passed. I had a few x-rays done, and they of course found nothing.

So I was referred to a pulmonologist. I took a breathing testing and a methocholine(spelling?) challenge to check for asthma. Came back clean. By this time, I had given up entirely. A year later, I donated blood to discover I had inherited Hep C from my biological mother.

Last May the drug known as telaprevir was approved by the FDA and I started my treatment for my hepatitis. I endured six months of chemotherapy, finishing December 23rd, 2011 - all the while having this chest pain. I had a wonderful GI who treated me, and prescribed me hydrocodone for both the bone aches from my treatment and my chest pain. However, the hydrocodone did not relieve my chest pain.

I still suffer from this pain. I'm at a loss as to what to do. I've had multiple x-rays, a CT scan, I've seen a cardiologist, pulmonologist, as well as a massage therapist - and no one can offer relief or even an answer.

The pain is directly behind the heart and resonates to the front. It is a constant dull ache. When I inhale, the pain worsens. The deeper I inhale the worse it hurts. Any sort of physical exercise where my heart rate/breathing increases agitates the pain and it usually hurts worse for the rest of the day. At the very least, once a day when inhaling there is a strange cracking noise. My parents have heard it, my husband has heard it. Most days it happens 5+ times...but there are days where it only happens once.

I married my husband because he endured the challenge of being sick with me, he has helped me through difficult times in my life and he loves me as much as I love him. But this pain prevents me from enjoying physical intimacy with him. I can't be intimate for longer than 10 minutes with him, because shortly in my chest pain becomes worse and worse as I breathe harder.

I feel anxious and have been increasingly depressed about this pain. I just want help. I want it to stop. I appreciate all answers and any support offered. Thanks in advance.View Thread

Posted by Nivakon

1 Reply | Reply | Watch This Discussion Report This | Share this:Chronic Chest Pain Hello, I'm 19 years old, and I've been suffering from chronic, constant, every single day, pain in my chest for...

Morphine pump pain?

I have Lupus that is bone and muscle destructing; it's taken out spinal fusions and then some, I can no...

Posted by Mairekaye

0 Replies | Reply | Watch This Discussion Report This | Share this:Morphine pump pain? I have Lupus that is bone and muscle destructing; it's taken out spinal fusions and then some, I can no...

I'm new here and want to say hi

Hi Everybody, I'm a new member and was drawn to this site because I see some ppeople that are in the same...

Posted by HelloTNOM

1 Reply | Reply | Watch This Discussion Report This | Share this:I'm new here and want to say hi Hi Everybody, I'm a new member and was drawn to this site because I see some ppeople that are in the same...

I'm new here and want to say hi

Hi Everybody, I'm a new member and was drawn to this site because I see some ppeople that are in the same...

Posted by HelloTNOM

0 Replies | Reply | Watch This Discussion Report This | Share this:I'm new here and want to say hi Hi Everybody, I'm a new member and was drawn to this site because I see some ppeople that are in the same...

Dating and Chronic Pain and Disability

We've often talked here about how being in chronic pain and/or being disabled can impact our...

We must let go of the life we have planned, so as to accept the one that is waiting for us.
~Joseph Campbell

Posted by Caprice_WebMD_Staff

0 Replies | Reply | Watch This Discussion Report This | Share this:Dating and Chronic Pain and Disability We've often talked here about how being in chronic pain and/or being disabled can impact our...

New to community

Hi, I've been putting posts out for the last hour at least but thought I better give some background: I am...

Posted by Dot2Dot2Dot

Hi, I've been putting posts out for the last hour at least but thought I better give some background:
I am 56, I was a Registered Nurse, graduated in 1977. But I had the misfortune of being in other driver's fault auto accidents since then that have put me out of nursing for 9 months to 5years at a time in the very serious ones 4 times &close to 2 doz other bizarre car accidents (one on the way home from PT.) In the 1986 accident I suffered a closed head injury (TBI) that was not diagnosed for almost 6 years. The accident end of May, 2002 fit the perfect description of causes of Fibromyalgia - (a trifecta of crisis)recent new promotion & a routine State Inspection going on & sister in hospice w/family providing care when a car pulled into my lane/my car hitting me 3 times. Within days, I had severe fatigue, severe pain, unable to concentrate & several other Fibromyalgia symptoms. On Med Leave by the end of July, discharged in Oct. NO income & lawsuit netted $46.00 (too many accidents even though I completed therapy & deemed fine & had been working). The Dr. I saw was a pain specialist & was terrific & when my Ins. changed (Med Assistance) he referred me to another excellent Pain Mgmt specialist in 2004 who gave me the official diagnosis of Chronic Unremitting Pain, Fibromyalgia & Chronic Fatigue. I also have PTSD, depression & general anxiety disorder. I had a chance to try many meds by samples until finding THE ONES. Meds include MS Contin 30mg every 12 hours, Topamax for migraine prevention, Amrix 15mg at night for control of muscle spasms (with Flexeril then Skelaxin for breakthrough spasms.Maxalt for both aura& non-aura migraines Xanax for anxiety as needed. Other treatments are ice packs, warm packs, back knobber, "China Gel cream",light exercises, NUCCA chiropractic which worked wonders to finally literally get my head on straight by realigning the first vertebra with the axis, the base of the skull. (I have the xrays to prove it), straighten my spine by allowing the muscles to realign so that Migraines dropped from 4-5 days long 4 X/mo to easily controlled with Maxalt & maybe 1 day in bed a month, pain 8-10 to 3-5 or less, & no limp. Also take Vit D 10,000IU Calcium Citrate wZinc &Mg 500mg 3Xday, Lovaza 2caps2xday which all help lower muscle pain & Vit D helps concentration & fine finger feeling. Also use Alpha Stim 100 ear clips & probes (allergy to patches) & Lidoderm patches. Armour Thyroid & other meds, too.On SSDI 2006(applied 2003) & Medicare. Had to give up TH, live in subsidized Sec 8 apt. Do volunteer with a Fibromyalgia Support group & with Friends of the Library. I came in with some education but I've learned a lot along the way. I get frustrated & depressed but I keep going. I keep helping others to learn & cope with their symptoms & share my knowledge so that really helps me to feel I have something worthwhile to give back to the world.View Thread

Posted by Dot2Dot2Dot

1 Reply | Reply | Watch This Discussion Report This | Share this:New to community Hi, I've been putting posts out for the last hour at least but thought I better give some background: I am...

HELP....PLEASE!!!!

I have been living with many different chronic pain issues for quite awhile now without ever really getting a...

Posted by apes19

2 Replies | Reply | Watch This Discussion Report This | Share this:HELP....PLEASE!!!! I have been living with many different chronic pain issues for quite awhile now without ever really getting a...

Breast Implants

Recently had breast implants and the pain is considerable. I'm taking Vicoden but doesn's seem t be doing a...

Posted by An_245339

1 Reply | Reply | Watch This Discussion Report This | Share this:Breast Implants Recently had breast implants and the pain is considerable. I'm taking Vicoden but doesn's seem t be doing a...

Searching for good pain management doctors in san ...

Hi, my neurologist has referred me to a pain management doctor. Unfortunately upon research that doctor I found...

Posted by crt45

1 Reply | Reply | Watch This Discussion Report This | Share this:Searching for good pain management doctors in san diego Hi, my neurologist has referred me to a pain management doctor. Unfortunately upon research that doctor I found...

new here with pain

Several years ago i had a double mastectomy with reconstrustion. Several surgeris actually. I am left with...

Posted by Anon_63744

0 Replies | Reply | Watch This Discussion Report This | Share this:new here with pain Several years ago i had a double mastectomy with reconstrustion. Several surgeris actually. I am left with...

cymbalta withdrawal

I keep reading that the withdrawal from cymbalta can be difficult. Can someone tell me what the withdrawal...

Posted by betseyj

1 Reply | Reply | Watch This Discussion Report This | Share this:cymbalta withdrawal I keep reading that the withdrawal from cymbalta can be difficult. Can someone tell me what the withdrawal...

Surgery on May 24

I am a 55 year old female who has had lower back pain with leg numbness since November. I injured my...

Posted by TeachermominTucson

1 Reply | Reply | Watch This Discussion Report This | Share this:Surgery on May 24 I am a 55 year old female who has had lower back pain with leg numbness since November. I injured my...

Mother's Day 2012

To those who are mothers: I am very thankful to have a wonderful mother-in-law. I am also very...

Click on my user name or avatar picture to read my story.

Blessings,

Dave

Posted by davedsel57

To those who are mothers:

I am very thankful to have a wonderful mother-in-law.

I am also very thankful that my wonderful wife Fayrda is a great mother to our two sons, Russell and Geordan.

I posted a tribute to my mother in another message board and want to share it here:

My mother passed away on September 22, 2000 from heart failure at age 82. She was12 years older than my dad.

My mother was a 4' 11" strong woman. Her parents and 3 of her 5 sisters immigrated from Poland in the early 1910's, several years prior to her birth in Buffalo, NY. My grandparents never learned English and I vividly remember the family having conversations that I never understood.

As with many people, the fondest memories I have of my mother are in the kitchen. She was an excellent cook and baker, and delighted in having lots of family over and feeding them. Christmas cookies were the highlight of the year for her. She started making doughs in September and produced more cookies than any bakery I know. The cookies were given as gifts each year and tasted better than those from any gourmet shop. My mother made at least 20 or 30 varieties - cut-outs (dark ginger and regular sugar), bars, drop cookies, thumb-prints, etc. At Christmas time each year I get a strong craving for cut-out cookies. I've searched and just can't find the taste I grew up with. What I have now realized is that I am craving my mother's cut-out cookies.

Every Saturday night we would have steak, salad with thousand island dressing, french fries (crinkle cut, of course) and butterflake biscuits. My mother would use her two large cast-iron frying pans to render the steak fat and fry the steaks while a third was in use to deep-fry the french fries.

My mother taught me many things. She taught me to use both hands when doing tasks because that's why God gave me two hands. She taught me to never give up. She taught me to persevere through any trial. My mother had severe arthritis throughout her body and especially her spine. She baked all those cookies and cooked those fabulous meals despite high levels of chronic pain. Finally in her 70's she gave up baking and gave me all of her cookie cutters. Those are a treasure stored in our cabinet now, and each one has a special memory.

My mother never graduated from high school, but did go to cooking school for a few years. Even without a diploma I considered my mother to be a genius. She had more common sense and clarity of mind than many folks with doctorate degrees.

I do my best in life to emulate many of the qualities my mother had. Unfortunately, I inherited the high levels of chronic pain due to arthritis and serious spine problems, but I try to rise above circumstances and survive just as my mother did.

My mother shared all of her values with me, taught me to cook and taught me to be use common sense. Most of all, my mother taught me to become the adult that I am and I will always be thankful for that.View Thread

Click on my user name or avatar picture to read my story.

Blessings,

Dave

Posted by davedsel57

2 Replies | Reply | Watch This Discussion Report This | Share this:Mother's Day 2012 To those who are mothers: I am very thankful to have a wonderful mother-in-law. I am also very...

HELP WITH RSD

Hello. I have decided to join this forum in an effort to gain information about my disease and what I should do...

Posted by jph48

Hello. I have decided to join this forum in an effort to gain information about my disease and what I should do for pain control.

Let me begin. I had a knee replacement in 2007. After the surgery, my ppain level three months out was way above what the normal recovery level. My surgeon finally told me he could not treat my pain any longer and he thought I had RSD. HMMMM? "What is RSD?", I thought? He said I needed to seek a pain physician to help with this chronic pain condition. He offered no assistance in finding said pain physician...so I was on my own.

Fast forward to today. I have been to hell and back with this disease. I feel I am now in stage III. I have been treated with a gambit of medications and therapies. Most hurtful, however, is the attitude of most physicians toward this disease. I have been through about six pain doctors now. Is it my imagination or when they fail to help or become preplexed, they make YOU feel so bad about yourself that you leave the practice. Or the other game...they become very, very indignant (I am putting it in the best terms possible), and you never want to go back. Or one physician just sent a letter and said he could no longer treat me. What?

Currently, I am looking for a new doctor to treat me. During my last appointment with my current pain physician my pain meds were cut in half. It was such production and obviously planned in advance because he brought his whole team in with him. When he told me this I tried to discuss the fact that I am not taking much medication. He raised his voice and said "this is not a debate". He then forced me into the hospital on a Ketamine drip for four days.He did this by only giving me 7 days worth of meds. So I had to report to his office in one week to be put in the hospital. What? I know Ketamine is used to put RSD into remission but I was getting no where near a theraputic dose. (Usually 20 mg and hour) I was getting 7.5 mg an hour. What a joke. What was the purpose.? After researching his name, I have found the same story over and over concerning him and his practice. I have been through so much with the practice I now am done and moving on. This is what I take now... 40 mg oxycotin x 2 per day and 15 mg oxycodone x 4 times per day for breakthrough. Since the cut I have been practically bedridden and can't function. I guess what I am asking is if anyone knows of a better treatment or if anyone can recommend a physician who treats RSD in Central Ohio? I want to finally find a provider that fits my needs and is perceptive and compassionate, not judgemental. I want a problem solving, patient, caregiver. I know pain isn't everything but it's how the pain effects your quality of life. I am so tired and just want someone to help me. I am at my limit with pain and now have to climb the tall mountain of finding another pain physician. First they have to trust you and you them. I have never ever abused the system or the drugs in any way. I'm completely honest with everyone involved in my care. I am 50 years old and want to be treated by a physician who is knowledgeable about this disease and treats me with dignity. I will welcome any assistance.View Thread

Posted by jph48

4 Replies | Reply | Watch This Discussion Report This | Share this:HELP WITH RSD Hello. I have decided to join this forum in an effort to gain information about my disease and what I should do...

Desperately seeking pain management help

I am a 42 year old female who has been diagnosed with neuoropathy, peripheral neuorpathy, osteoarthritis and...

Posted by catzzzz

1 Reply | Reply | Watch This Discussion Report This | Share this:Desperately seeking pain management help I am a 42 year old female who has been diagnosed with neuoropathy, peripheral neuorpathy, osteoarthritis and...

T4-T3 Compression Fractures With Spinal Artiritis

The spinal fractures happened after a seisure while I had the seat belt on.The arthritis I just found out...

Posted by rickie106

3 Replies | Reply | Watch This Discussion Report This | Share this:T4-T3 Compression Fractures With Spinal Artiritis The spinal fractures happened after a seisure while I had the seat belt on.The arthritis I just found out...

My Pain Medicine stopped Working

I have Fibro and also issues in my joints. I have been taking Vicoprofin for almost 2 years and also Ms...

Posted by loveofcraft

3 Replies | Reply | Watch This Discussion Report This | Share this:My Pain Medicine stopped Working I have Fibro and also issues in my joints. I have been taking Vicoprofin for almost 2 years and also Ms...

Sharp abdomen pain when doing situps

I noticed about two weeks ago that I am getting a sharp pain in my abdomen (top left-hand side) when I do...

Posted by An_245276

1 Reply | Reply | Watch This Discussion Report This | Share this:Sharp abdomen pain when doing situps I noticed about two weeks ago that I am getting a sharp pain in my abdomen (top left-hand side) when I do...

Chronic pain

I have pain every day. I have been diagnosed with degenerative disk disease. My L-4 and L-5 disks are...

Posted by Allaboutmegal

8 Replies | Reply | Watch This Discussion Report This | Share this:Chronic pain I have pain every day. I have been diagnosed with degenerative disk disease. My L-4 and L-5 disks are...

Arch pain

I am not sure what I did to be honest. I used to get this pain often but I havent had it in a while untill...

Posted by Kacie123

2 Replies | Reply | Watch This Discussion Report This | Share this:Arch pain I am not sure what I did to be honest. I used to get this pain often but I havent had it in a while untill...

Intermittent Pain in outer thigh above knee

I've had intermittent pains in my left thigh. I've had it for a few years every once in a while. Now it's...

Posted by PMarie123

1 Reply | Reply | Watch This Discussion Report This | Share this:Intermittent Pain in outer thigh above knee I've had intermittent pains in my left thigh. I've had it for a few years every once in a while. Now it's...

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Discectomy

Had a discectomy two weeks ago and am feeling very good. The only issue is a little tightness in the muscles...

Posted by 6aaaa

1 Reply | Reply | Watch This Discussion Report This | Share this:Discectomy Had a discectomy two weeks ago and am feeling very good. The only issue is a little tightness in the muscles...

Includes Expert Content

Demerol

Hi all hope everone is doing well. I just recently started comming here again and I have a question. I have...

Posted by REDDOGG43

7 Replies | Reply | Watch This Discussion Report This | Share this:Demerol Hi all hope everone is doing well. I just recently started comming here again and I have a question. I have...

Don't worry the books I read are AMA backed, and w...

Its the original poster here. I know well enough about what I'm doing and have done what I can to dial back...

Posted by An_241165

Its the original poster here. I know well enough about what I'm doing and have done what I can to dial back the challenge I set before my body, and the idea of potentiation with grapefruit juice to prevent the body making enzyme cytochrome P450 isoform CYP3A4 the benadryl helps with the process of potentiation and helps with my allergies. Also the benadryl helps to prevent any kind of adverse histamine reaction that may be uncomfortable. I didn't just do this so lightheartedly as you might think, and considering studying this kind of stuff is what I want to do with my life I'll know if something is wrong. Not to mention the full medical exams I get regularly(than god for insurance). Now the particular type of pain that I experience is something more along the lines of neuropathic so its not exactly what you're thinking here. I don't like opiates, they don't do anything for me other than make me feel and act stupid, and I know already the meds they would give me for the type of pain I have would completely destroy my liver. I do digress, the grapefruit juice just allows more of the medication to pass the blood-brain barrier by taking away some of the body's ability to break it down and destroy it fully. If I wanted I'm sure I could figure out how to extract the exact enzyme blocking chemical in grapefruit juice but that would be dangerous. Now I'm not doing this every day, and in fact it would seem the longer I keep with this the less I need to do it. So what ever it is doing it would seem its fixing something in my nervous system, and as far as I'm concerned that's better than living in constant pain or being constantly doped up. Quality of life is what is important to me, because I know the difference between living and just being alive. If you are just struggling along then you aren't living, and if you live in such crippling pain that you can't barely get around then that sure as hell isn't living. Again it is quality of life; if I'm in a constant fog then that isn't living either. I'm living now and loving it, and I have nothing more to say about that. To put your worries to bed though its been 7 months and I do this half as often as I used to(twice a month or less) and I have none of the problems that I used to. My legs seem to respond to me fully, it doesn't feel as though there are burning needles in random parts of my body at random times, and now I can exorcise regularly. If anything I've become much MUCH more healthy. I've lost about 50lbs, my whole body feels better(minus the being sore from running lol), and all in all I'm in a much better state. Besides idiots abuse this combo all the time to much higher extents and while it is true that different people react differently there is this little thing called threshold dosing, which anyone should do if they are to try anything like this. This IS NOT for everyone, but I had just about given up so any hope was better than none. I simply refuse to rely on opiates and since NSAIDs don't work on me either this was all there was. I meditate as well and for some reason that seems to help, but as I said I'm slowly starting to not need this anymore. I can say with full confidence that this would not have happened with conventional treatment, and I know this because I know other people who've been struggling with things of this exact nature their entire lives. So rest assured I've read every research paper from every archive I could find, and this seemed safe enough. Again rest assured it would seem I won't need this much longer anyways.View Thread

Posted byAn_241165

1 Reply | Reply | Watch This Discussion Report This | Share this:Don't worry the books I read are AMA backed, and wiki is just a quick point of reference. Its the original poster here. I know well enough about what I'm doing and have done what I can to dial back...

What could my stomach pain be? What do I do?

Last summer I had a stomach ache for about a month and I had to go to the ER twice because of the pain. I...

Posted by speedknitter

1 Reply | Reply | Watch This Discussion Report This | Share this:What could my stomach pain be? What do I do? Last summer I had a stomach ache for about a month and I had to go to the ER twice because of the pain. I...

American Pain Foundation will cease to exist

For financial reasons, the APF leaves with a message: http://www.painfoundation.org/

Posted by bren_bren

0 Replies | Reply | Watch This Discussion Report This | Share this:American Pain Foundation will cease to exist For financial reasons, the APF leaves with a message: http://www.painfoundation.org/

Impact of Your Pain on Others

We've often talked how our/your pain impacts ourselves in our day-to-day lives and how it has...

We must let go of the life we have planned, so as to accept the one that is waiting for us.
~Joseph Campbell

Posted by Caprice_WebMD_Staff

11 Replies | Reply | Watch This Discussion Report This | Share this:Impact of Your Pain on Others We've often talked how our/your pain impacts ourselves in our day-to-day lives and how it has...

been on oxys for 8yrs.

ive been with a dr. for 8yrs.now and he recently retired and i dont have another dr to go to.i was pres....

Posted by An_245205

14 Replies | Reply | Watch This Discussion Report This | Share this:been on oxys for 8yrs. ive been with a dr. for 8yrs.now and he recently retired and i dont have another dr to go to.i was pres....

Rib Pain

I have had this pain for 18 years now (39 now). The area just below my breast line all the way around has large...

Posted by jnt96

0 Replies | Reply | Watch This Discussion Report This | Share this:Rib Pain I have had this pain for 18 years now (39 now). The area just below my breast line all the way around has large...

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