Its a matter of taking things one day at a time. Those days where the pain is less I call the "good days" and I look forward to them. The bad days I dread.
I do a lot of meditation also which helps keep my stress levels down to also help control my pain. Its difficult to de stress yourself while in agonizing pain, but sometimes that's when you need it the most.
Having a support network of good doctors and even moreso, good friends/family who understand your pain also are a godsend. It helps a lot to be able to talk about those good days, as well as the bad ones. It makes you feel just a little less aloneView Thread