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I'm curious as to how the pudendal nerve burning went? Did you find a doc who severs the nerve? Or does he do an ablation? Do you also experience pelvic floor tightness?
I guess I'm asking because I may have to resort to something along those lines in the future. One doc said I had pudendal neuralgia and that was after a diagnostic nerve block.
Did you have a diagnostic procedure done before the PN "burning"? I've shied away from the "severing" (which may be different) because of the risk of incontinence and sexual dysfunction. But who enjoys sex anyway with chronic pelvic pain?
I'm sorry to see you have to deal with this. I hope you have a pain-less day, BView Thread

I've had 3 different docs perform EMGs-the firt two were horrific experiences. The last doc was so gentle I could have napped through it, yet he was the one who "diagnosed" me w/ L-5, S1 radiculopathy. The burning down the back of the leg is hideous. I get it in my groin as well, possibly pudendal nerve involvement. But I barely have any numbness-sometimes it's temporary.
It's tough to sit, isn't it?
Have you had imaging with contrast dye done? I had a CT once during an ER visit a few yrs ago & it revealed SI joint arthritis, but all the other imaging, even those done with contrast, showed just a minor disc bulge. Who knows what form is the most reliable...? I've learned not to put much stock in them
I'm sorry that your prognosis isn't what you had hoped for. I'm struggling with trying to appreciate what I can do rather than focusing on what I can't. Some days it's easier than others.
I hope you can check back in and share your experience. Have a pain-less day, BView Thread


-BView Thread
http://exchanges.webmd.com/pain-management-support-group
It's actually just an exchange I created here on WebMD. Take care, BView Thread

I'm not sure why the "stigma" or "stereotyping" is so bothersome to you? Friends? Family? It seems you have been on opioids for a while, considering your tolerance level. I'm just curious as to why on earth would you rather allow your body to be in physical pain just because of what others think, or may POSSIBLY think. Sometimes I get that way around family, but like a diabetic needs insulin to live a normal life, I need to rely on pain relief.
I'm not trying to oversimplify what you have addressed. But instead hope to encourage you to alter your perception through education. I do so much reading on http://pain-topics.org/ and find studies and physicians who care about the treatment of chronic pain. What are you being treated for?
If you decide to stop the opioid regime, be sure your doc has other treatment options in place. It seems you have a very strong will. More power to ya. Let us know what's up. Feel better soon, BView Thread

I think everyone shows their support in different ways. Some offer words of encouragement, some offer advice based on experience and/or medical background, and some offer insight into the stories provided. The last one can be skewed at times because it's hard to interprate many requests when the stories don't provide enough information; thus there is an exchange of questions galore.
It's difficult to understand many posts because they lack all other forms of communication. We cannot see the person's expressions, hear their tone of voice, pick up on any other cues, etc--we're just relying on the print.
I guess there is always the option of creating your own community that's geared toward more of the emotional aspect of dealing with chronic pain. That's what I did a while back. Things are a bit slow, but it's another option:
http://exchanges.webmd.com/pain-management-support-group
Anyway, I just don't like to see anybody get down while already dealing with the burden of chronic pain. I'm here to talk, support you, whatever you need. I just may not be on often but I'm happy to keep an eye out
-BrenView Thread
http://www.vitals.com/specialists/pain-management-doctors
Good luck, BView Thread

I think you said in another post similar to this that your methadone dose is pretty high & you have already missed a couple doses?
We are not allowed to post physician's names nor specific medical clinics. If I were you I would look up the American academy of pain management to search for a certified pain management doctor.
If you look under "Tips" in this forum there is a link provided by an author, TDX... to help find physicians in your area. I haven't found my own pm on that list so I'm uncertain of its accuracy.
If you manage to get an appt it is extremely doubtful you will get the med/dosage you seek-especially without medical records. Anyone who walks into a docs office asking for a particular narcotic is usually looked at as a "drug seeker", someone looking for med's for a purpose other than treating chronic pain. Just so you know.
I doubt anyone here will be able to help you with your request, but if you want to share what you're going through maybe we can help you in other ways.View Thread

I would just hate to hear that you ended up worse. I hope it turns out ok, BView Thread
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