This isn't about you, but I find it disconcerting that an MD would advise a patient to look for health care answers on the internet.
I have had Calmare and experienced the same sort of result: I had wonderful pain relief directly after the hour treatment, but it didn't last more than a few hours.
My insurance doesn't cover it, and it cost me $200.00 per day/ $1,000. per week. For me, it wasn't worth it.
Actually, Tessa, if your MD doesn't have information about Calmare, perhaps you can do a google search.
The web sites can probably give you more complete information than I can .
After you read up a bit, and you have questions that haven't been properly answered, feel free to ask here.
My email address is published in the little "My Story", but email addresses that my program doesn't recognize will go straight away to my "junk" file. If I know to be expecting email from the site, I'll check my "junk" file twice a day.
My MD has told me that his RSD/CRPS patients have done well with Calmare. I was his first SCS patient, so there we didn't have any expectations.
If I could realistically afford a thousand dollars a week, and didn't live so far away from the MD office,
I'd have Calmare don't every morning and enjoy the rest of my day. But, it's an hour drive to the MD, so I'd spend a part of my life :
Each month would equal:
40 hr car
20 hr on the Calmare machine
I hope that your insurance company will pay, in full or in portion.
My MD's prediction is that Calmare may be more- readily covered for the RSD/CRPS diagnosis than SCI.View Thread
It's been a few days now. How are you doing with the withdrawal symptoms?
Have you found a new doctor yet?
Sorry that I'm asking all these questions. I really just want to know how you're feeling, and how we can help you.
Would you be okay with sharing what your pain is from, and how you're doing now?
My pain management MD is a strong believer is SSRIs for neuro pain. I was reluctant to take Lexapro, as I have been fortunate in that I do not suffer from depression, and I was concerned about the potential side effects.
Well, I ended up agreeing to give it a try, and I was surprised at how much it helped the stabbing pain in my feet. I'm also grateful to report that I didn't experience any bad side effects.
I'd imagine that you know that it can take a few weeks to feel the optimum effect.
I have an implanted spinal cord stimulator, but I don't have spinal stenosis.
You can get more information, initially, by googling spinal cord stimulator.
Your pain management MD should answer your questions and have a contact number for the company representative or a patient ambassador, which is someone like I am- someone who has had a spinal cord stimulator for a while.
If your pain management MD thinks that you're a good candidate for this treatment, before it is surgically implanted, every patient has a trial, or temporary unit for at-least a few days.for you to actually feel the sensations and know if this treatment is going to be effective for you.
In my region of the USA, the actual surgical implant is done by a neurosurgeon.
Of what is your rheumatologist skeptical?
This is a well researched, well documented, hardly new or uncommon therapy for neuro-genic pain.
There is plenty for you, as a candidate for spinal cord stimulation, to read, and many academic articles for your rheumatologist to peruse.
This isn't a weird or new treatment.
Spinal cord stimulation has been used for many years as a safe an effective treatment for intractable neurogenic pain.
This, along with the trial that allows the patient to actually know ahead of time if the stim will be effective against his particular pain sensations, can make a significant improvement in quality of life.
I, as most, haven't been able to completely eliminate the need for opiate therapy, but spinal cord stim has enabled me to reduce my mess by greater than 50%
The trial isn't terribly uncomfortable and the implant surgery is done, usually, on an outpatient basis. For me, it was a fairly easy surgery and recovery.
So do the google search, read as much as you can, and talk to as many people that you can (who have implanted spinal cord stimulation).
For me, it has been near to a miracle.
I hope that you can get the mind of relief that I have.
My email address is posted at the end of my story. Click on my name or little picture and you can read about me, and send me an email, if you'd like.
It's nearly three weeks and I'm still kind of lost.
I'm also in the midst of moving, which is a positive move, but lots of work, too.
Three of my four children are grown and in their own homes. My daughter lives with me and helps me quite a bit.
For years, I lived between the two homes, my house during most of the week and Thurs-Mon at Kevin's home, which is out in the country and very relaxing.
He was very kind and good about my physical limitations, and I always stayed with him post -op or when I was having a bad pain stretch.
Kevin retired relatively young (58), and was always " there for me"
Our next move is that I'm selling my house, as it's just too big for me to take care of it, and we bought a beautiful two family, plus a studio apt, home in a lovely village a bit north of where I am now.
My daughter will have one apartment, I'll have my handicapped- equips apartment, and my BFF, Debby, is going to live on the studio.
She is a nurses aide and, in exchange for her paying rent, she's offered to help me with some of the things that I require assistance. We are all hoping that this will allow my daughter a bit of time for herself.
It sounds good, and we all are hopeful, but I'm feeling somewhat burdensome to both my daughter and my best friend.
It was different with Kevin, as he is somewhat recluse and is an artist/ oil painter. He liked to stay home and my "down time" was fine with him.
And I did what I could for him: cooking, cleaning, laundry, that sort of thing. I seldom felt like a burden to him.
Has anyone out there felt burdensome to those who love us? I do not like the way this feels. I'm hoping that when my sense of loss isn't so overwhelming, that I'll be more myself.
It is tough to lose ones independence, isn't it? For me, that piece is harder with which to cope than the physical pain.
Perhaps your neurosurgeon or GP will refer you to a pain management MD.
There are reason that the Norco no longer is as effective as it once was.
Pain management, naturally, includes more treatment options than just opiate analgesia, but opiate management is a significant piece.
The most-effective manner of prescribing for persons who live with significant pain on a daily basis is to take a long-acting opiate to reduce the baseline pain, and supplement with a short acting,
Under which category Norco falls) for breakthrough.
Pain management MD can also discuss spinal cord stimulation/ neuro modulation- a drug - free treatment that many have found effective dory long- term management of severe chronic neuro pain.
It recently had Calmare scrambler therapy. This is another electric therapy for neurogenic pain. It is somewhat new, and I am the only person I know who has had Calmare.
Caveat on Calmare; it is costly and not yet covered by any major insurers.
Only you can decide if elective fusion is something you'd like to try. It can be a painful and long recovery, but, some get amazing pain relief. Sad piece is that there isn't an reliable way to pre-determine if it is going to ease your pain symptoms.
Personally, I would urge you to consult with a pain management MD.