I am so sorry that you are in such pain but I sure can sympathize with you. I am in a reclined position in bed or a lounge chair at least 22 hours a day. If I take extra bt medication I might be able to go get a quick bite to eat as long as I can get out within an hour, that is my limit. The only thing different is that I do get relief driving my car cause I can adjust my seats to help. I do not have the scoliosis but I do have DDD, spinal stenosis, facet joint arthopathy, radiculopathy and arthritis. May not be as bad as you but I have found help with Duragesic 50mcg q48h and Nucynta 75mg 3x's a day as needed ( allergic to most other meds).
I know I didn't help you with any suggestions but I just wanted you to know that you are not alone. Come back anytime to vent and talk.
Hope you find the answers you are looking for.
Take good care,View Thread
The comment that you made "Some people don't even know what real pain is they just think they do" is really downing a person who's pain is unbearable for them. My level might be a 5 but to you it might be a 10. I guess we CPP's all can write a book on what we have gone through and what we would not do again. Most people would do anything to get out of pain. Books might not teach a doctor everything but with the correct doctor most of us has found some relief that makes our life tolerable through chemistry and procedures. Just because they didn't work for the 1st person doesn't mean the next one won't be cured.
My pain started at age 12 with putting pins in my hip and the pain has never left. I even had a THR and developed persistant bursitis of that hip, worse than before the replacement. That pain at 12yo was the worse I had ever felt.
I did take offense to your above mentioned comment because it's MY pain not yours.
Maybe you need to call the doctor's assistant back and ask her to look up the contraindications on the medication insert. There is no reason that she can't be educated, she is supposed to be knowledgable about medications.
If you don't want to do that then the next best thing is to talk to the pharmacist. Print out the google information you get on the computer and have the pharmacist discuss all of your meeds in conjunction with your Nucynta.
Hope you can find the answers you are looking for.
Take good care,View Thread
I don't know what your condition is that your physician put you on Nucynta but I have been taking Nucynta since about 4 months after it came out. I take this for breakthrough pain and it works wonderfully well for me.
This medication was developed for end stage bone disease and for post-op bone surgery. It does have some side effects. I have spoken to people who complain of anxiety, migraine headaches and rarely hallucinations.
The one thing that you have to worry about is if you take SSNRI's or SNRI's, like Cymbalta. This could lead to an extremely dangerous syndrome called Seratonin Syndrome. If you are taking this medication for the first time please educate yourself on this drug. Nucynta 75mg is equivalent to taking 15mg of Lortab or Vicodin according to my doctor.
I have to say that I have never had any difficulty with this medication since the first day I took it. I got a little sleepy for the first couple of times of taking is but that soon wore off.
It is amazing how much bad you can find on this meds when so many more people take it....you only hear about the bad, I wanted you to hear the good.
I hope it helps you as much as it has helped me. I also hope you find the answers you are looking for.
You should always be upfront with your physician. Maybe your orthopedic physician has a spine specialist in the practice with him that you could go see. If not, ask him how opposed he would be if you went to a pain specialist for your back. You sound like you might need to have a new MRI done so that they can see why your pain has increased. I really doubt if your doc would put off your surgery just because you are having back pain. Hope you find all of the answers that you are looking for.
Bet, I understand your current situation and hope all is going well with you. Take your time,girl, I will still be here when the smoke clears. Take good care of yourself! love ya........JeaneauView Thread
If your friend has a problem with "finding" her medication then she needs to speak to her physician, they will usually be able to tell her where to purchase it.
One problem is that if she keeps running from pharmacy to pharmacy they might be keeping a list of how many pharmacies she is going to. Most pain med doctor have contracts with patients that they use only one pharmacy. If she is not keeping with her contract then she will be out of luck.
Also, why is her doctor not ordering an MRI if she is in such horrific pain? Is she not seeing a spine specialist?
Not being accusatory but what you are saying does not sound kosher, like my community friends are saying. Let your friend speak for herself and give us more information.
I cannot believe that in the whole of South Florida not one pharmacy has oxycodone.....that is why they call them DRUG STORES.
Hope your friend can find the help she needs. Take good care,View Thread
Caprice, excuse me for asking, but if we are not supposed to diagnose over the internet is it going a little to far to suggest it might be a heart issue. As a retired nurse, anytime a patient states that the pain is significant enough to not be able to catch their breath, they should always seek emergent care. There are many things that could cause right sided pain, the heart not usually one of them. LoLo, if you are consistantly having this type of pain you need to either go to the ER or get to your doctor to have him order the proper tests needed for a diagnosis. This is not normal and needs to be looked into quickly. Hope you get the answers you are seeking. Take good care,View Thread
Annette, I worked nights for most of my nursing career and kept a "night shift" life for most of my career. I always had a hubby that worked at home or was able to take care of the kids. I would go to bed when they went to school and wake up when they got home. I never felt deprived of sleep. Oh, every once in a while I would stay up 24 hours but it didn't happen too often. My city was just starting to have groceries that were open 24/7. That really helped me out alot. I loved not having to deal with other people when I was shopping. Hope to talk soon. Take good care,View Thread
I had a percutaneous discectomy in 1993 and thought the pain should have gone away after the surgery was over, NO SUCH LUCK. It did release the nerve to the point that I was able to urinate again. It will take a while for that nerve to calm down and heal. I was back to work in 6 weeks as a NICU nurse. It took several months till all of the pain was completely gone. That surgery lasted for 10years till I started with severe DDD and facet joint syndrome. Still haven't had a fusion as I am starting to autofuse on my own. Hope you feel better faster, it will come in time. Take good care,View Thread