Good morning, 1st off, Please know I think most of us here know of the issues with pain & how to control it! That is the reason we are here! At any rate, I have had the Pain Infusion Pump Implant! I did enjoy all of the benefits, BUT, it did have it's drawbacks! Which is why I write in the Past Tense! It is wonderful Pain Control given you are a good candidate & you have a Great Dr.! I have seen on Medtronic's Website where they have designed a much smaller device! Perhaps that is where you may find some valuable information? Definitely, your Dr., is the beginning of your search for info before have an implantation I wish you the Best Luck whichever way you proceed, periwinkle.View Thread
O.K.! Well, apparently you HAVE NOT lived here long enough! I know, quite well, the process of which my Government works! WHAT you don't know nor understand, is that it would the sum of The United States Army, Navy, Marines, & Air Force in numbers, that is, to be behind me to get the attention of anybody! You have to do EVERYTHING by the legal steps, But, you Must have plenty of people to back you or your cause will be lost before you make it to your very own State Representative! Thank you so much for your very motivated reply, periwinkle p.s., I would hardly say that The Romans, "sat on their hands!" pps, Why the anonymous reply??View Thread
Yes! I agree 100 %! And yes! The previous nurses' post was way off! One has to wonder if he or she is a nurse @ all! At any rate, it is going to have to be batted back into the Politician's laps for any hope of any of this to change. And THAT is a very scary thing! Thanks for your reply, periwinkleView Thread
Good morning to Y'all! I guess my question to Rhyenn & the previous Nurses' post is... How do we get the attention of The DEA., The FDA., & anyone else whom are the one's making the rules for All of US who know what we are talking about?? We have all posted our issues, cries for help & yet it doesn't do anything because THEY MAKE THE LAWS! We know the pain we are in! We know that there certainly are the trouble makers! BUT, What about us? What can we do? Does ANYONE have the answer to that?? PLEASE, let me know what to do! Where to go! or Anything else I can join in, because Something has to Give!! Thank y'all so very much, periwinkle View Thread
THERE IS NO SUCH THING! At least not to my knowledge! Anybody out there know of one? Perhaps you need a Pain Mangement Dr. good luck to you, I will watch your replies to see if anyone may know anything else, periwinkleView Thread
You are welcome! I feel your pain when it comes to so called friends! I have to say, my "Family" is in the same category. Sometime I wonder, Would I be so crass, as to turn my back on someone I loved & cared for? After much soul searching, I can honestly say, NO! I still, to this day, cater to anyone whom has the misfortune, to be in a worse boat than I! That includes, giving rides, baking goodies, or cooking dinner. Sometimes it may be just listening to their woes, on the phone when I can not make it down my steps to my car! People don't understand how much a good ear, can do for someone whom is in terrific pain or a terrible depression. I really pray you find that Perfect Dr.! (if that exists) I once had one, to only lose him thru a terrible bout of surgeries & misunderstandings.They are few & far between, & I wish the the most of luck!! periwinkleView Thread
Hi there, I'm sorry I guess I don't understand your point toward;s our PCP's or "Family Dr." Where I live, my PCP, Primary Care Phycisian, WILL NOT prescribe ANY Narcotics! They are required by law to have a special licsence to do so. They will refer us to a Pain Management Specialist. Beyond that, they will do nothing else when it comes to pain! Hence, the reason for our Pain Management Dr.'s! My Surgeon only write's meds for Post Surgery Pain! That's it! Again, the reason for Pain Management Dr.'s! ER. Dr.'s only treat for a problem long enough for you to get to whatever Specialist you may or may not, be in need of. At least, this is the way of the world, in my part of the woods, periwinkleView Thread
Well, at least I'm not alone in this world! I have been on Pain Management since 2001 after many surgeries. I had not even been diagnosed with the ultimate reason as to why I was having so many difficulties & had yet reached 40 yrs. old! My diagnosis is a rare illness that even very few Dr.'s know much about it. It is Multiple Endocrine Neoplasia 1. "Many Tumors of the Endocrine System". So, considering our Endocrine System's manage ALL of our Bodies systems, needless to say, my issues are many. But @ this point, my Bones are my biggest problems as mine were robbed of Calcium for many yrs., prior diagnosis. My Hip was the first to go. Then my back stsarted, proceeding with a Fusion of my Lumbar area in 2009. I have had numerous breaks since, but right now, the slowest to mend is the bones in the top of my right foot. Very painful. The Pain Dr. problem started when I left my 1st one after 10yrs. with him! I have since had 2. But, after leaving the last one in early May, it took me until just finally my 1st visit with my new Pain Management Dr. 's last week! That's right! SIX Month's of trying to find a new Dr.! W.T.F.!!! I had no idea in the last several yrs. exactly how bad things had gone! I still have a "Time Magazine" with the Cover Page reading "Pain in America" then, Chronic Pain Patients Right to be Treated!! The article proceeds about how we needed many new Pain Mangaement Experts to treat all the Pain Patients, as we HAVE THE RIGHT TO BE TREATED!!! So somebody needs to explain to the DEA & anybody else about our illness' & our Need to be Treated! God Help Us...periwinkleView Thread
Hi there, I have the same problem. Mine is on my back, exactly in the area I can't reach! Enough to drive you crazy!! But, the Pain Dr., I was seeing @ the time, put me on Neurontin. I would think that your Family Dr. could help you with this. I'm not !00% on this, but I don't think it is a Narcotic although it will make you sleepy if you take too many! The very good news is, IT WORKS! The way I understand it, it works on our nerves, blocking the pain signals. If you look under the "Drug Look-up" in WebMd, it will tell you exactly what kind of Drug it is. I do remember I was prescribed Neurontin once before, for Migrains. Well, I wish you Good-Luck with it & finding the correct Doc to prescibe it! periwinkleView Thread
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