Spine surgery with cage and hardware May 2006 left me in chronic pain: Fibromyalgia, nerve pain, lots of arthritis. Constant pain. I am on Duragesic patch 100 mcg and oxycodone 60-80 mg a day. Not enough to control pain but pain doc won't give me more or any additional meds to take with what I have. Quality of life sucks.
I have COPD. No oxygen but I am on four medications for lungs. All contain steroids which just make my pain worse. Every day, worse. Doctor will not give me oxygen. Says I don't need it. But since breathing is difficult, I am always more tired than I need to be. The fatigue is bad. Quality of life sucks.
Question: I don't want to take steroid meds anymore. They are so bad for my pain level. I was thinking...what if I had oxygen and antibiotics. Would they work on helping me breath and protecting my lungs? Has anyone ever done this? Does anyone have a solution for not taking breathing meds? Theft are all inhaled. All four are steroidal.
I am desperate.View Thread
Sarahi, I am in same boat and have been unable to find doctor in NYC willing to give me enough of whatever to cover the pain. And I am just so frustrated. I have been In Pain Management since failed spine surgery in 2006, when I finally was able to get my records bec. I wanted
To move, there was all kinds of information about me that i was never told. Such as I have Diverticulitis. Which I have just now in 2013 been given meds for.- Topiramate. Yes I am so angered. I want to live in Florida and can't get a pain med doctor because on every page of my records it says that I am an alcoholic. No. It does not say on every page that I detoxed in 1986 and have been a successful and active member of AA/NA ever since. The doctors in Florida won't even touch me. WHAT AM I SUPPOSE TO DO? Spine Surgery 2006 left me with bad nerves in my legs. Diverticulitis; Fibromyalgia, COPD from the pain meds (my previous pain doctor gave me too much) a Fatty Liver and I forget what else. I do not have a quality of life. That's for sure. Any suggestions?View Thread
Willow, I am so there with you. I have just moved to the Florida Keys on the Gulf of Mexico and I am starting all over again to try and get help for this horrible pain all over my body. Your lucky if your pain doctor is willing to work with you to try and medically control your pain. My pain doctor in New York cut my meds in half when I developed COPD and then would not help me to look for other solutions. He just said, and I quote "Live with it!!!" I do have hopes here with the doctors in Sarasota. Right now, my favorite place is the hot water jetted tub in my apartment. It is so hard to accomplish anything at all when I am in pain 24/7 from a combination of everything. Much like everyone else here.
Hello to everyone. I look forward to being a part of this group.
2006 failed spine surgery left me with nerve damage, pain all over, fibromyalgia, arthritis and a lot more spine damageView Thread
I am currently on oxycodone and the duragesic patch (fentynal). i also wear lydoderm patches. My last steroid shot, last week, acually worked so far. for the past week i have been pretty happy about this. I am wondering how you can be allergic to all opiate drugs? How and why is this? Why can't you take the narcotics? I also have fibro. All this as a result of failed spine surgery in 2006. Sucks big time. I wanted to die because of the pain before they finally put me in pain management. I hate being on narcotics but i hate the horrible pain more. MarshaView Thread
Swank, i have the same issue of being in cronic (horrible) pain all the time and it cannot be fixed. i would like to know what drugs you are using to control your pain if you don't mind sharing. Thanks, MarshaView Thread
c. weinbl. Great response. I wasn't concerned with what other people felt, however. I was concerned with how i felt. Having detoxed off of all kinds of pills almost 25 years ago and having been an active member of AA/NA since, i never thought i would see the day i would put another narcotic in my body. But of course, this is not the case. And it has been a hard adjustment for me. I have shared at meetings about being on narcotic meds. I do not want it to be a secret ever or be treated as a big secret. But everyone I know in my daily life had a terrible time with me being on narcotics and also it has taken a long time to get the meds in place and the pain controlled on an even keel somewhat so that my mood swings and behavior became more rational. There were times i had negative reactions and there were times when i had been over medicated. I am good now. And I have begun sharing at meetings, when i can get to them atbout needing more emotional support of the pain and less concern about the narcotics themselves. I have had good reaction to this It is rough, though, on a daily basis. Living in chronic pain is a bitch. Before i started with pain management, i lay on the couch and cried and didn't want to live anymore. Now i most definitely want to live. It is just a much different life from the one i had prior to the failed spine surgery, etc. etc..View Thread
oh my goodness, archer 1111. i wasn't sure if you had written the letter or i had written the letter. everything you said is so true and familiar. Are you also in recovery? as i am? the worse is that instead of asking how i feel, they want to know when i am getting off the drugs. Like i have a b ig choice here.View Thread
hi, the medical system can be difficult, my suggestions would be, if you are not getting good answers from your current doctors then switch to new doctors. but i would strongly urge you to hold off on the narcotics. they are only as a really last resort. i have avascular necrosis in both knees. for the last 24 years or so. what i have done to avoid surgery is bicycling in the gym. the recumbent bicycle. 1/2 hour on low tension. several times a week. this to strenghthen area below and above knees to take stress off knees. I ice my knees every day. this is the best. i bought wrap around ice packs at the drug store. ice packs will kill the knee pain. advills are the best for the pain. but be careful for your stomach. Advils beat narcotics for the knee pain. and Physical therapy of course. Also, once i started taking glucosamine sulphate plus chondroitan, bought at a vitamin store, my knees started to regenerate a little. they got much better. i take 5 pills a day of this. Also, if you are overweight, you might want to take a look at that. and swimming is always great. as for your spine, is your posture the best it can be. are your stomach muscles strong? it might help to get some good physical therapy for this. strong stomach and butt muscles will help decrease the pain. These are my suggestions based on my own experience. good luck with this. it takes hard work to get your health back. but i will never, ever have back surgery ever again. MarshaView Thread