This is going on everywhere. As of 4 years ago my fibro, DDD and scoliosis pain became unmanageable. I have seen 6 specialists, done PT and have tried to have every non drug related therapy/procedure done in order to get relief. I have also tried numerous medications including norco and tramadol and they are all like taking a sugar pill. Apparently I don't qualify for an SCS or pain pump or even a tens unit. Between the primary care and the specialists I have been on a myriad of anti depressants and nerve pain medications all to no avail. I am down to taking kilonopin for RLS and Soma to relax my constantly tense and sore muscles. Soma works better than flexeril but I am still tight and still spasm and my pain is out of control. I cannot seem to get any doctor to take me seriously and realize the depth and severity of my pain. My primary care doc is the one doc I thought would never let me down yet he has been reviewing my chart for 3 weeks now to try to figure out what he can do for me. All I know is that I cannot and will not live like this. I have taken up drinking for now to try to numb the pain even a little but it doesn't help much. If he says he can't help me then I really don't know what I am going to do or where I am going to turn. I also have to have cubital tunnel surgery in April and considering they will be messing with nerves I am terrified that the post surgical pain medications will be inadequate. If that is the case IDK if I can deal with it even though it would only be for 6 weeks. I have no other recourse and no where else to turn. I have a feeling that when they take away our meds...those of us with fibro and chronic pain there just may be a huge jump in the suicide rate. The only reason I haven't done it is because i am still holding out hope that relief will come. When all of those hopes are gone...well then I just don't know.View Thread
So, I had an appointment with a neurologist today for an EMG and supposedly a consult for a spinal cord stimulator. Well, the Neuro my primary doc sent me to doesn't do pain management of any kind. No pain pumps and no stimulators. She did do the EMG of my legs and she redid my right arm which I had had done 2 years ago with a negative result. The good news is that there is no nerve damage in my legs from the discs pressing on nerve roots (or at least none yet). However when she redid my arm, I have a pinched nerve in my right elbow and she is referring me out for surgery on that elbow. She is also going to refer me to one of her colleagues for the consult for the SCS. Now to wait for the phone calls with the referrals.
Still no pain meds so still suffering but I am trying to be optimistic and hoping for relief soon.View Thread
thanks, Annette. Since I am minus a hot tub (no room here for even a small one) I take a hot shower using the massage feature on my shower head and I have a heated mattress pad which I don't think I could live without. I take my Soma before the shower so it has time to kick in before I go to bed. It keeps most of the muscle spasms and tightness at bay. It helps me so much more than the Flexeril did so now once I can fall asleep I get, like you, between 4-6 hours of sleep. The joint pain in my neck/back/hips/knees/ankle and shoulder are what keep me up late and now that the muscle issues are better its joint pain and stiffness that wake me up too. i am anxiously awaiting a call from my doctor tomorrow to see what he suggests. I have been through every non medication option there is for me so medication is now all I have left for the joint issues. I think I may have my fibro as good as I can get it. Still some stiffness and pain but better than it has been in a long time.View Thread
I also can't use cold anywhere on my body it makes thing so much worse. My elbow/hand only has intermittent shooting pains. For the most part my pinky, ring finger and that whole side of my hand is numb and tingly. Most of my pain is caused by DDD, Fibro, and a cartilage deformity in my knees that causes hip/knee/ankle pain.
I do the rice filled sock thing around my neck a few times a day and I use Icy Hot type of stuff on almost my entire body. It barely takes some of the edge off but for right now I will do anything for even the slightest relief. I also sleep on a heated mattress pad. I am still stiff when I get up in the morning but not as stiff as I was before I had that.
I knew I wouldn't hear back from my doc yesterday, so I hope they call me early on Monday. I did some house work yesterday and as usual I over did it and am still paying the price for it today. I didn't even really do all that much. I want to at least be able to clean my house or take my dogs for a short walk without ending up in bed for the rest of the day.
My mom had carpal tunnel surgery on both wrists/hands and she had the same elbow surgery I am having on the same elbow I think. She took a long time to recover from all of it but I think that's because her diabetes is out of control. My only worry is that Fibro will extend my recovery or make it more painful than usual. All I can do is cross my fingers and hope for the best.View Thread
Oh, Beth I have definitely been in the depths of despair and after the news I got today I am back on the verge. The neurologist I went to yesterday had her colleague review my chart. I was told that I am not a candidate for SCS or a morphine pump. They suggested that I go back and do all of the same things I have done before (PT, injections and meds I have already taken and failed). So now it seems my ONLY hope is my primary care doctor. I just had a very teary conversation with his nurse. She is gong to have him completely review my chart including the notes from the specialists and then call me back with what they want to do to treat me. I likely wont hear from them until Monday and I swear if all they wanna give me is more Norco I am gonna scream.
What little bit of hope I have is fading fast but I am trying so hard not to let it go. If I can't get the help I need from my primary care I will absolutely be crushed. Chronic pain has completely taken over my life and I have been fighting so hard to try to get even a little of it back, but I am tired.
I wish it were easy to just find a different set of doctors to see but in my state with Medicaid to change doctors requires a lot of paper work and hassle and it wouldn't be wise to change primary care docs in the middle of a disability determination case.View Thread
Yep, Beth it sucks I have seen an occupational specialist, 2 ortho spine surgeon, rheumatology, my regular doctor, pain management and now neurology (Those are just the docs, I didn't count the NP's). They all know what kind of pain I am in and not one will prescribe anything other than Norco which to me is like taking a sugar pill so I refuse them. And yes pain management DID make me worse and still he refused to medicate me. I am going to call my primary's office tomorrow and let them know he made a mistake in the referral and see if they will give me something to get by until I can see the other neuro. Now I am sure why you can see why I was in such despair for so long. I am trying to hold out hope that the next neuro can help me....it's all I have left to hold on to. If that doc tells me that he/she can't help me I have no idea what I will be able to do other than turn to illegal street drugs which I really don't want to do since I still have a 10 yr old at home.
tdgibs, I appreciate your input. I know that nothing is guaranteed to work but at this point in time an SCS or pain pump are my only remaining options. I have had fibro and lower back issues (mild scoliosis) for as long as I can remember, and then when the DDD hit my entire spine in full force I have REALLY been suffering and under medicated for the last 4 years. It also doesn't help my back that I have cartilage deformities in my knees causing me to be knock kneed which has caused a lot of hip/knee/ankle issues and now right shoulder issues too...I am just grasping at straws and jumping at any treatment options since all I have tried so far has failed. I will discuss with the neuro a trial of both to see which is the best fit for me.
I am going to try my best to be positive and hopeful and not despair until every single option has been tried.View Thread
I've already been to pain management and all they did was epidural steroid injections and even though he made me permanently worse he wouldn't do pain meds for me....he sent me back to my primary care. I feel like a hot potato...this next neuro I will be seeing will be doctor #9 I will have seen for my back issues.View Thread