Thanks, Beth! And yes I am sure we will be discussing SCS a lot in the future as 2 surgeons have declined actual surgery. I feel as though I am half way to having my pain under control and at least now I can sleep. It still takes me a long time to fall asleep due to pain but once I get there I can get a good 6-8 hours now.
I had an EMG of my upper body 2 years ago which was negative and I didn't think it hurt at all compared to the pain I was already in but I have heard that the lower body EMG is a lot worse but that too shall pass and I will have more answers when it's done.
All I ask for is answers as to my body's self destruction and adequate pain relief a simple request in my book and thankfully I think between my regular doc and the neuro I may just get there. The light at the end of the tunnel is getting a little bit brighter for sure!View Thread
Well, I went to my appointment the other day and saw my doctor instead of the nurse practitioner. We made a lot of changes to my medications, we dropped everything except for my Klonopin for RLS and he put me on Soma. So far, once I get to the point where I can fall asleep, the Soma helps my stay asleep. I don't wake up in pain every time I roll over and the muscle spasms are now gone. His office is supposed to call me tomorrow with a referral to a neurologist for an EMG of my lower extremities and a consult for a spinal cord stimulator.
When I talk to them I will let them know we are getting there but I need some day time pain relief for the neck/back/joint pain that the Soma doesn't cover. Hopefully it will only be temporary if the SCS is a success I am hoping I can (maybe) eliminate the need for pain medication.
While I am sleeping better and longer of course with fibro I still don't feel well rested when I get up and I still have the morning stiffness. I do however feel that we are finally on the right road to getting my pain under control so I can be the best me that I can be.View Thread
Thank you Dave I am writing down a bunch of stuff that I want to discuss with my doctor for my appointment and all suggestions for things to try are welcome. I am willing to try anything at all to at least get this down to a manageable level every day. Today the pain is almost manageable for the first time in months so I am being very cautious so I can keep it this way as long as possible.View Thread
Thank you Beth. My hubby is very understanding and we do talk about it. He is frustrated too because he knows I hurt and can't sleep and he feels powerless to help me. He goes to all of my appointments and he brings up the stuff I forget to mention thanks to fibro fog. I just miss sleep and it has been over 3 1/2 years since my pain has been at a manageable level. A body can only handle so much pain combined with lack of sleep before the mind slowly starts to snap. I have been using every non medical tool in the toolbox and no matter what I cannot get comfortable nor can I seem to relax my muscles and ease the pain despite the medications I already take. I am tired of poisoning my body with chemicals that don't help me.
My primary care doc is a good guy and I have always had a good relationship with him in the past. Unfortunately it is easier to get in to see the NP so I have been seeing her for a few years. I insisted on seeing the doc this time because she is starting to roll her eyes when I discuss symptoms and she blows me of and blames it all on the FM. If that wasn't bad enough the straw that broke the camel's back was the dreaded "you have FM you can't possibly be in that much pain" that did it for me and I will discuss that with my doc.
I will try to remember to e-mail you. I'm not good about checking mine very often so I tend to forget I have one.View Thread
I am so beyond frustrated and upset. I was under the mistaken impression that pain management doctors were supposed to try to manage your pain. Apparently I was very, very wrong. I called my pain management doctor again on Friday and they called me back today to tell me that since the first epidural made my lumbar area worse and the cervical epidural did nothing for me that he is done with me and I have to go back to my primary care doctor. Well, I called his office and I can't get in until the 24th of this month. So in the meantime I guess I will continue to suffer the constant pain and the sleeplessness and restlessness. I really feel like I am slowly going insane from the constant suffering with no relief. I am seriously at the end of my rope. I would go to the ER for temporary relief but they are a joke. When I went on Christmas for the concussion and bruised tail bone the doctor asked me what medication I wanted. I told her I don't know I am not a doctor but I can tell you what hasn't been working. So what did she do? She gave me the same medication I told her didn't work. I tried it for one day, even doubled the dose and it was like taking a sugar pill so I said screw it and stopped taking them. I REFUSE TO LIVE LIKE THIS FOR EVER! I am hoping my regular doctor will help. I insisted on seeing him this time in stead of a nurse practitioner but the having to wait is not making me very happy.
I don't know if the pain I am dealing with is from the DDD/arthritis or if it is from my FM. The current FM med and antidepressant I am on aren't working either. I feel exactly the same whether I take them or I don't. I honestly don't care what my doctor does to get me some relief I will try anything to knock the pain down to a manageable level.View Thread
Hey every one. Well some of our Christmas miracles happened and some did not. We were able to have a nice Christmas with the children and pay some of our bills. We celebrated today due to other things that happened over the week. My dear, wonderful father in law passed away on Christmas Eve after a long battle with heart disease and diabetes. Then late on Christmas day, I was dancing around trying not to step on one of my sweet little doggies when I took a nose dive in my kitchen. I got a small laceration on my forehead (not deep enough for stitches thank goodness!), a concussion and a very bruised tail bone. Between the stress and the fall I am in a terrible fibro flare and am very sore all over and the impact to my spine sure didn't help the pain from the DDD either. I went to the ER and after x-rays and a CT scan they gave me a shot of morphine which helped for all of an hour and a script for 12 Norco which is like taking a sugar pill. I have an appt with my family doc this week so I will be taking in the pain journal I started to see if he will be willing to adjust and or add/subtract meds to try to get me on the right combo for me. We had the funeral for my father in law on Friday and an hour and a half each way in the car and 4 hours split between a chair at the funeral home and a pew at the church was a study in misery.
We had our Christmas dinner and celebration today so I of course over did it trying to get all of the gifts wrapped and food prepared and I am paying for it tonight. I will take all of my meds, including the Norco, take a hot shower and head to bed shortly in hopes of getting a good nights sleep.
I hope you all had a Merry Christmas and best wishes for a Happy New Year!
I am in much the same boat you are. My pain is caused by different issues but I have 3 doctors treating me for my issues and am having difficulty getting sufficient pain relief in the first place. I have started keeping a pain journal and will be taking it to each of my appointments in hopes that maybe, just maybe I can someday get my pain to a more manageable level.View Thread