Hi tuloud54, I have had my pump since 2008 and have found it to be the answer for me. You can click on my name with my story. It hasn't been always a smooth road, but oral medications were not the answer for me. I am clearer thinking now as well. I also have a spinal cord stimulator so I am definitely a bionic woman! Those of us with chronic pain have to fight for our lives and stand our ground with the doctors. We know our own bodies and should not accept their saying it is all in our heads!View Thread
I have had a stimulator implanted for 8 years and it is time to replace. I am going to change companies and I was informed before any trial can be done, the patient has to have a psychological exam before. I asked if that goes for me since I already have one and was told yes, the insurance companies are requiring this. Are other people being told this or is it just for we Floridians?!View Thread
Happy Sunday, You were correct with my screen name. We had two cats who died a year apart 3 years ago. One was Casper (all black) and the other Tabatha, an orange Tabby and her picture is what you see.
I am finding intercostal and chest wall nerve damage (I'm sure you read my story) not very common on this web site. I am also a retired nurse, but sadly said good bye to my license after 30 years in 2006. I appreciate your information on your type of SCS. I don't want to go through all the battery changes as I had three repositioning surgeries, one lasting 5 hours, and never again!! You have to be awake and again with my pain, getting stimultion to the correct area is tricky. I began with 2 leads, and am down to one.
I am my own advocate and keep myself educated about my diagnosis. I talked to a patient advocate from St. Jude's and got helpful information from him. He has had his SCS for 2 years. Do you have the paddle? I'm not going for that as I don't want open surgery. A year ago I suddenly began having severe pain at my pump site and tingling down my left leg. The doctor immediately said it wasn't the pump causing the pain. I have had a Myelogram, Discogram and a Discectomy and he feels the SCS lead is causing the nerve pain to go from the right side over to my left!! Next step is to replace the SCS and he likes the St. Jude's one and I like the 10 year useage as I am 65 and don't want to go through lots of surgeries in my life time! I am on the go with all my volunteering and don't mind the charging. If I am on one setting it takes 2 hours to charge daily, another setting 20 minutes. Go figure. Happy Holidays.View Thread
Hi Beth, Confessing to a nose job is nothing compared to what the celebrities confess to!! Thanks for the tips for my upcoming psyc. eval. I do see the reasoning, but I already have the unit, and it is being replaced due to age and not being effective. My daughter 20 years ago had brain surgery due to her seizures and she had a real intense psychological evaluation. That I understood why. I don't like insurance companies doing unnecessary appointments just to get extra money. As you say, I'll swallow my pride and jump through the hoops! Could you please educate me on the re-chargable battery? Thanks.View Thread
I had a stimulator from Advanced Bionics, one of the first battery charged stimulator. Later Boston Scientific bought them out. I was told it was guaranteed for 5 years, but the representative said it would go 8 years. I am at 8 years and can tell it isn't as effective. I am having other difficulties and the dr.who implanted it told me he likes the St. Jude product as it is guaranteed for 10 years and his patients are getting good results. Before he removes the unit, he is going to do a trial with another lead from St. Jude to see if I can get a wider range of coverage. I do see the reasoning behind a psych evaluation as a stimulator is an expensive investment and I have heard of people shortly after the implant, not liking it and having it removed. I have a pain pump from Medtronics and I tease the dr. telling him the implants are fighting over who is better! LOL. Can you give me a hint as to the questions I will be asked? Thanks and happy holidays.View Thread
I believe in 2004 I had a series of 6 ganglion blocks.and they did very little help. I have had chronic pain since 2003 and so many procedures, but I do recall those and they were of little help. It was done in the doctor office and wasn't painful. It was my second year of trying medications and procedures to decrease my pain.View Thread
Can you by chance get help from a local or state legislator? Those are the people who should be hearing your story. I volunteer with an Epilepsy Association and we meet with all the local and state legislatures educating them about epilepsy and they assist us with getting our budget passed by the Governor.
I totally agree with cweinbl in giving those who served our country the best of care. Thank you for your service and I hope you are able to get your pain under control.View Thread
What about suggesting her volunteering? I have chronic pain and find volunteering to be very rewarding and bring happiness in my life. I volunteer at a school; a Senior Center, an animal shelter and the Epilepsy Association. Agencies especially with today's economy depend on volunteers since their staff is so low. A volunteer can say when they want to volunteer and for how long. Maybe if she tried the first time just a short amount of time and gradually work up to a little longer. We all need a purpose to our lives and if she can make that first step,she will find enjoyment and the family will notice a great improvement. If you enter your zip code on the AARP web site for volunteering, they will give you places to select from close to your house. Good luck.View Thread
I have had intercostal and chest wall nerve damage for 9 years. It happened during a finger surgery and the anesthesiologist caused a pneumothorax. A chest tube was inserted but in the wrong place, so had to be re done. I like you have gone through everything. In 2004 a Spinal Cord Stimulator was implanted and in 2009 a Pain Pump. The two together have been belping. Nine months ago I began experiencing pain at my pump site and tingling down my leg. It turned out to be a bulging thoracic disc. Last week I had a discectomy and it will take a few weeks to know if it was successful. I am hoping so as the next procedure would have to be done by a spine surgeon. My stimulator is in its 8th year and was told it would last 5 years and I can tell will need replacing. I have one of the first models which came out that were battery charged and am looking into a more efficient model with another company. I am 65 years old and take into consideration my age and how many more stimulators I will need in my life! I have an excellent pain management dr.which really helps as I found other doctors had dificulty treating intercostal neuralgia. Hang in there, it isn't easy.View Thread