Good to know about the donation and whether they'll pick up or not.
Yeah, your husband's response would seem a little rude to me -- particularly with close family that has given $$$ gifts, waited during surgeries with husband, generally there for you. But, I've drawn the line, I'm stickin' with it. And I love them very much. After my father died, my Popinlaw stepped into that position voluntarily -- maybe easier to discuss sensitive things with him easier than my Dad, in many situations. But, with most family, when they ask, I just tell them "same old soup, different bowl" and turn the conversation back around to them or kids. It works. Its polite.
So stressed physically and emotionally about this move -- its been an unpleasant situation -- my background (or better known as my past life) is in Mortgage and Title work, so I can easily see when someone is trying to stick it to me. I just tell them, I'm not paying it, and have a backup Title Co. to go to if they don't reduce or eliminate a fee. The only other issue is having to deal with a realtor that we thought understood our situation ($ and medical) - well, she either she was "talking the talk", or she just doesn't care. Don't feel like she's earned the nearly $11k we're paying her - not representing us like I know she should. Oh, well....I just have a little more time to deal with her and then she's out of my hair.
Doc appt went okay, got spinal cord stim. tweaked a little so its covering better. I've got more nerve impingement, but not sure whether from main problem or scar tissue. Will need work up after move. More fun planned! Yippee!
Good to have someone who understands to "talk" to, Annette. Hope things are status quo or better for you.
Not a matter of telling him, he asks and I vaguely answer. I don't know about your family, but after missing Xmas dinner, Thanksgiving, turning down nights out with them, they kind of notice I'm not there because I'm not feeling well. Everyone knows one of the reasons that we moved here is for my treatment at Cleveland Clinic, so they know its severe enough to relocate from Louisiana. (Katrina hit, which wiped out my option for further treatment there.) You go where family is near (for support and help) and where your best shot for treatment is. In this case, it was here.
Family is family - and my very few friends I love and treat like my family. They love me and worry about me. That's all. Not defending anyone, just telling it like it probably is for almost everyone with CPD or any disease for that matter. It's just that now that we live not to far from my Popinlaw, he's got someone close to fixate on. Before (and really, still) it was my husband's younger brother. We split time now. (LOL)
If I ever get well enough, my plans are to write a book entitled "Flight Pattern of the Loon".!!
A retired psychiatrist. I know he means well, and I've even gone to the extent of telling him that I can only be responsible for my feelings about my illness and I don't want to feel responsible about his -- but, he's 82 and a BIG worry-wart. I've even given orders to my husband not to talk about any specifics when it comes to my health. But he knows the questions to ask and my hubby and I don't lie to him. We just try to redirect his attention. Not sure if he's got a little dementia setting in -- but it will happen to us all.
Sorry to hear of the loss of your father. I lost mine in '93, and I miss his very dearly.
Still hate packing and still hate moving. The big move is next week - had our moving sale this past Sat. Got rid of a lot, but still a lot to go. That's what AmVets, Goodwill and Salvation Army are good for, right?!
Just wanted to pipe in about the Morphine Sulfate ER. I'm on Medicare through Humana, and they're pretty good about granting Tier Exceptions so that you can pay a smaller co-pay (still have to worry about getting to the doughnut hole faster though). It's just a moderate headache because the doctor is the one who has to request it and document why its medically necessary to take -- every year!
As to the Methadone, my doc has talked about it but I'm such a freak because I know there is still that stigma attached to the drug -- I know I really should give a "shirt" what other people think, but I've got really nosey relatives -- on both sides! LOL. That and I hate changing meds because it takes usually some tweaking to get the dosage right and I usually go through some moderate withdrawal symptoms.
I'm three weeks from moving into our new, downsized home - and I gotta tell you, I HATE packing and moving! With a passion - I think I'd rather be flogged than this. I told my husband that the next time I move it will be in a ceramic (cremation) jar! Talk about traveling light.
Taking Ultram for the breakthrough and surprisingly it does help a little. Maybe PM doc's come up with a good maintenance combo by accident.
Check back on the flip side in a few weeks - hope all of you are hanging in there at a comfort level that you can deal with.
Hey, Tom: So sorry to learn of your experience. I too had problem with the fentanyl patch not lasting so I know what hell that was like for you. My original site was also C5-6. Now C3-C7.
Open Q to all - I've got radiculopathy in my right arm to fingers. Thus, the spinal cord stimulator. (The manufacturers haven't been successful as of yet being able to get coverage into necks, but they say their working on it.) Does anyone else with radiculopathy (I guess anywhere) experience bone aching pain when moving air or cold hits it the affected limb? I always assumed it did, but now I really don't know. I have to keep a sweater or blanket over it now that the ceiling fans are on.
Thanks, Tom - I think you're the first that I've read that had a positive reply to pain pump. Did you have to play with the meds before you found the right combo? I REALLY hate withdrawal symptoms whenever we go through opiod rotation. I know quite literally what you speak of when you write those last 4 lines. You have to have someone who's your "lifeline" - even then, there are days, Lord, there are days.
Wishing you continued and increasing relief - BJView Thread
Just read you email again - more carefully this time. I have chronic pain disease primarily due to failed post-laminectomy syndrome, etc. 1 year after my surgery, I walked - rather stridently - into a sliding glass door and would have fallen on my butt had it not been thanks to someone catching me. Following that, life began to suck like milk weed. I not only messed up the original surgical site, but also 2 levels above and 1 below. Neurosurgeon advised that I had 2 options: 1) have the 4 levels fused/re-fused, which would mean extremely limited neck mobility and no assurance that pain would not persist; or, 2) see pain management doctor. Decided to go pain management doc route. Cleveland Clinic (which I assume is not the only medical facility/doctor) does not like to do neck surgeries unless absolutely life-threatening or paralyzing. So on we go.
Hurray, at last -- we have a P.A. on a new home so we're not going to be homeless after all! All kidding aside, we truly did have to sell the home that we do love because of medical bills, meds. etc., but, puts me in a new city where I'll get a fresh approach on without leaving the Cleveland Clinic database.
CTBeth, Cillie and Annette: Thanks so much for the feedback. Sorry for not getting back sooner, but finally have a buyer for the house (hallelujah!). I'm in a significant increase of pain due to packing and such, and I doubt the search for a new home is helping much. I've decided to pack a little each day and come June 29, we should be good to go -- but where is a question now. Have a purchase agreement pending with one seller - hopefully they'll accept the offer. Keep your collective fingers and toes crossed for us. My Pain doc gave me some Ultram for break through pain -- it's helping a bit, but I know I've probably got more diagnostics to come soon. The Osteopathic doc feels that I've got additional impingement of nerves due to my left arm and shoulder hurting with that overwhelming nerve pain into the fingers. He doesn't know however if its due to disc problems or more likely scarring from the past 6 excursions into my neck. But its an addition to my underlying problem. Also, having significant pelvic pain -- I think it may be pelvic prolapse. I'll keep doing Kegel's til after the move when I can see a gynecol. doc. Aaarrrrgghh! It's always something, isn't it? My husband is a hospice social worker and he tells me that I'm on a similar drug regime as some of his terminal patients. That's cheery. Morphine Sulf. ER, Neurontin, Effexor, Nadalol, Amlodipine Besy., Temazipam, Zolpidem, and a partridge on a pear tree! You all must have your own special cocktails, too. I'm just so tired of being sick, taking meds, seeing docs, inability to have much of a simple thing called life...just having a pity party and you all were invited. Sorry. It's just dealing with a major life change (moving) in addition to Chronic pain -- this to shall pass, right?
Bless all of you as my comrades in pain. May your lives be filled with something MORE than pain. One really, really good thing I'm trying to focus on is my new grandbaby girl, Kylie. She struggled into this life and her first few weeks were lived in NICU. If she can do it, Grandma's got to.
I currently see a Dr. Cynthia Bamford with Cleveland Clinic. Love her. I too suffer from horrible migraines. And, for those unaware, migraineurs do have a higher risk for stroke. I recently a Partial TIA (no permanent injury), and it scared the crap out of me. We have to watch for high blood pressure - mine skyrockets with increased pain from the migraines as well as from my CP disease. So she's got me on Norvasc and Nadalol. Still have a few days when it gets in the danger zone, just have to take 1/2 more tab of Nadalol when that happens. If you've been the Imitrex (and other abortive meds), the 3 day infusions, the botox, Radiofrequency Ablation, etc., I've been told that the next step may be a Deep Brain Stim. Not too crazy about the idea of someone prodding my brain, but if it is what stops the pain and lowers my risk of stroke, may have to seriously consider. This too may be the situation with your poor husband. I suggest speaking with your PM doc or your Neurologist (who should have a strong background in Pain Management.) I know Cleveland Clinic has an operation in Florida - maybe you could get a second opinion from them as well. May better fortune and answers come to you and your husband.View Thread