I am sorry if it was misinterpreted. I try very hard not to "attack" when I reply. I was replying to both of you and I should have made that more clear. As for the codeine, I am asked how much do you take, he did not aks how much do you need, or why the other guy wrote for more. I was not given the opportunity to explain it was an average but I can take more depoending on what I am doing. I stay on codeine because nothting else helps only makes me feel terribly drugged. The codeine may help, it is sometimes hard to know if it is tincture of time or the benefit of the drug, One reason I take it, and my doctors know this, when they take the time to get to know me, my situation, that having something to take gives me a false sense of some control over the pain. The new one just would not write for more then the average that I gave him. My pain management guy has nothing to offer which is why he had told me, for years actually, just go to my family doc. I was the one who felt pain management was more appropriate but since he is a 45 minute drive away and is not able to do anything for me, it finally made sense just to go to my local MD. This guy now is the first one, even in that practice who has said he has concerns about the government looking over his shoulder, that is why he did not bother to give more then the 90. The instructions from the last guy who wrote, 2 mths ago was "as needed., every 6 hours", I dont have the bottle in front of me but I assume this guy changed the instructuins as well to meet his 90 count. Part of this is DEA no matter what others here say, they have changed the rules, you have and are experiencing the results of that now sadly, and have made doctors afraid to write and patients often afraid to ask for the amounts they need. And absolutely you dont bother with pain support communities or the humiliation, discomfort, inconvenience, whatever word(s) you choose to sign an opiod contract or have to agree to randonm drug testing, something only those in methadone and recovery/jail have to do, Thanks Beth. (And thanks for the font info. It is not the font it is any movement/usage of my eyes for more then 10 - 15 minutes before I have severe pain.)View Thread
My script is for PRN I tell him I take an average of 3 a day. There is nothing illegal for him to write to the amount that I may need if I have a few days that are not average, I am not sure where you got that idea. When you sign yourself "Peskypain" that tells me that maybe you do not have an understanding of the pain from trigeminla neuralgia, CRPS and others that are devastating and often disabling (as is my trigeminal neuralgia). I could have lied to the doc. and told him I take 4 a day but he did not bother to ask me about my pain. I came in to get the refill and he was not much interested in other then my statement "I take an average of 3 a day." Had he given me the time, because he left the room I would have added however since my stimulator failed I do take more." I am not sure y our background but you seem to have a very specific ax to grind against those who do not use the meds as you do/have. I have no problme with a national database for doctors (NOT the government) I think it would be a very good idea, and for that matter lert us look also at elderly and others who see numerous doctors and are taling many meds that have interactions but one doc does not know the other doc has prescribed. You say "I happen to think". That is not abyting but your personal opinion as to what patients do or do not expect. I invite you to attend some support groups, online/in person and listen to what people say who are in chronic pain and there are no other options left but opiates. We hate the weay they make us feel, cloudy, dry of mouth and body, etc but when there are no other options you take what is left. I personally have had 12 brain surgeries for my TN, there isnothing left but codeine. For way too many of us, and I don;t think, I knkow form my experience of talking to hundreds of pain patients, that any other option would be graetly appreciated if it was there. What always is missing from any of these conversations is that the House passed a national pain care bill in 03 but each time it was brought before the senate they refused to do anything on it, just let it languish. That bill called for mandatory training and money for research so there would be other possible options. (again because my pain is mainly with eye usage I have not spellchecked or edited.)View Thread
Anon, anecdotes are not studies. Do you know where the 30 kids got them? Did ythey rob homes or pharmacies? Most people in chronic pain do not have enough meds to be willing to give them away. Pain patients need to be as careful as gun owners, for sure, in keeping their meds in a safe place where thier own children, as with any meds for that matter, or others can't easily get to them.View Thread
I am codeine #4. My pain management doc told me, "I'm sorry but because the DEA changed the rules on how you can write, how many refills, you must now come in tp see me 2x a year." My case is somewhat different. It never changes. I have had all the surgery there is to be had, or can be done on me, IN fact I am with an experimental brain implant now (13th in world to have it) Many pain conditions do change, assessment is necessary but to go from every 3 months to every month because of DEA rule changes is unfair to many of the patients fro whom this travel to and fro is very difficult and pain provoking. I was amazed when this last doc said he was concerned about how many he wrote for, 90 instead of 120 to give me some wiggle room, not for my health but for government looking over his shoulder. you too. CarolView Thread
Thanks CTB. The problem is when they report on the "epidemic" they do not break down how much is from illicit use and how mich from licit. The number of people who try and con their docs I would surnise is fairly low. I think your take that it is "many" s off the mark. MOst docs can figure out who is needing of opiods and who is not. My doctor never had me sign a pain contract but I have seen them in his office. No other medical condition assumes felonious behavior, agreeing to random urine testing, etc. Pain patients rarely become addicted although they may devekop a physical dependency. If a patient has an addiction issue then it does make sense to require the sampling given their history, which is still a medical issue. If I am diabetic a conract is not required. An insulin dependent diabetic does not sign an agreement that if they run out of insulin, if they lose a dose or need to take extra during the montht they are unable to get more to get through the month. Someone with diagnosed chronic pain should also be able to not worry if they lose a pill or run out because they did too much and needed extra meds. There is media coverage to docs who prescribe, say, vicodin, for pain that is not to the level to require an opiod but that is the exception, not the rule. For many pain patients, going often is more then an inconvenience. I do not know how many people you have talked with who have as en example CRPS, For many just being able to get out of bed in the morning is a major acheivement. I was virtually housebound from my trigeminal neuralgia for many years. The DEA was not invoved at that point (and I have been prescribed methadone, morphine, even tincture of opium).I was gven codeine with refill for the year. Having to go out to the doctor every month would have cause me great pain and been very problematic. I write a blog. Aside from character, or word, restriction, I find in the blog that my writing has to be short winded or I have gotten replies" too much too read". Petitions are not the place for long expositions. As long as the DEA makes the rules, how many refills can be written for, then they are in the room with me and my doc. It is a good idea about talking to the state rep, as well as federal. Thanks for your reply. I like you too. ((*_*))View Thread
This is a reply to all 3. Their are only so many words permitted to start the petition. They will not permit a treatise. My PM doctor told me to go to my FMD who could write just as easily as he could for the opiate I take. (I have been a chronic pain patient for over 30 years) I just had a doctor in the same practice with the one who is writing for me who wrote for exactly what I need, not one extra pill for the times when I have to do more and therefore make the ain worse and may need to take an extra pill. He toldme he was writing only for that (20 pills less then his colleague) because he had concerns about the government looking over his shoulder. I have read and heard many other stories of patients whose doctors have said they are leaving pm because the government is setting the rules for how they may treat theiur patients. This is not so with say diabetes or cancer or any other disorders (and chronic pain is the result of specific disorders (for themajority of patients such as rheumatiod arthristi, trigeminal neuralgia, CRPS, MS, and so on. What I read from these replies is anger and disbelief about the level of pain many in chronic pain experience. Doctors are training/getting training to treat us. The DEA is a group of bureaucrats who have no business joining the doctor and poatient in the examining room. I appreciate your responses and of course you make a choice as to whether to sign or not. I am glad that none of you have had to experience the doctor saying well the government is making me do it this way. (I will give you another example. The rules were changed as to how often one had to go to the office for refill rescriptiions. I used to get mine 1ce a year. Luckily for me I only have to go now 2 x a year but some have to go in once a month so they can get a new prescriptiion. Their pain makes it exceedingly difficult for them to get around and now they are forced to go to the doctor when they did not have to before the DEA enacted rules as to how the doctor treated them, i.e. how often he had to see them. If they have private insurance, your premiums go up to help pay for the extra visits. If they get state assistance you pay more to cover their care.) (My pain is primarily eye at this point so I have not spell checked or edited so please excuse any errors)View Thread
I had a dorsal column stim implant but it was for facial pain. It helped about 85% of my pain. I met a child with CP who went from being barely able to walk to being able to run as a result of the stimulator. In the scheme of things it is a pretty benign surgery. IIt has been many years since I had it =, 26 years ago. I lost it to an infection unrelated to the implant, a second one could not be placed in the exact same area so it did not help. I also lost that to an infection, again unrelated to the implant (the 1st infection was after I had 2 surgeries at once, to replace the battery and re-place a wire that had moved and it was just too much at once, the second I had a friend with a severe staph infection and it appears I caught it from him - this was shortly after placement of the implant) I had a 100% experimental implant placed in my brain in 91. It failed a few months back (although I have turned it back on and it may now be working, it is too early to tell). My company is Medtronic and they tell me no one has had one in as long as I have so there is no data on whether they fail after a certain length of time or not. (I could have it redone but since it is in the brain, attached to the covering actually, I am wary of doing that.) Very long answer but I wanted to give you a full disclosure. (as for the meds I reduced mine greatly, from having constant pain as well as spontaneous severe lightning type pain and also triggered by any touch, my disorder is called trigeminal neuralgia, a facial pain disorder, to only having the pain that was in my one eye from any eye usage. I went from up to 14 grains of codeine a day to less then 3, and only that when I was doing eye work, like reading, computer, etc. I am a proponent of the stimuklator so I really have nothing bad to say about it. For me it was literally a life saver. I wish you very good luck and think it is worth investigating. CarolView Thread
The text and click is below. Please consider signing and passing it on. Too many of us have been victims of the DEA where our doctors are afraid to prescribe because of the government looking over their shoulder and creating more and more rules for those physicians who do pain management or treat those with chronic pain. (or any pain for that matter if they choose to write for opiods.)
we petition the obama administration to: protect those in chronic intractable pain from the DEA and its "war on drugs."Those of us living with chronic intractable pain are finding it harder and harder to get the prescriptions for the medications that for many of us are all that is left for helping live with constant/intractable pain. The DEA has taken its 'war" to our doctors offices and our treatments. Many physicians, afraid of the DEA, have stopped or reduced writing for opiods, which in turn has made it even more difficult for us to have the meds we need to get through the day, for some, just to be able to get out of bed in the morning. For many it has made the difference from being able to work to going onto disability, costing more to the gov't and therefore the taxpayers. We are petitioning to ask that our doctors decide what we need, how much and how often, and not the DEA.
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