Thank you for 9/10ths of your reply. The other 10th was judgemental & completely unnecessary, wow.
No need for anyone else to reply. If I could have figured out how to delete my post I would have. I' m going to go find another forum that's more active. I want to reply to topics that are hours or days old, not years.
Take care, I wish all my fellow spoonies a few extra spoons here & there. Bonus spoons, if you will. We do the best we can & that' s all we can do. Never let anyone, including yourself, judge you or make you feel guilty about your limitations. You are special, beautiful, & worth it. You deserve support, love, respect, humility, empathy, & every joy in life that people who live pain free lives do. Never forget it.View Thread
I've been a chronic pain patient for several years now due to pain in my back, hip, & leg + fibromyalgia. To top it off, for the past year or so, I've had some problems with really awful pitting edema. It used to show up & then disapear every couple of weeks, but now it' s present 100% of the time. It is mostly in both feet, ankles, legs. I can feel it in other places at times too, in my head even! Sometimes I can' t wear a headband in my hair because I can feel the liquid under my skin being pushed in. I wear very loose, soft ones that I never had problems with til recently. GP did some thyroid, kidney, and liver tests, which came back ok. Rx'ed me some blood pressure meds, they reduce the swelling just enough so that my skin doesn' t feel so stretched out that it is going to crack open. I came back to check in, all he did was refill the med for 6mo and say I had "chronic veinous insufficiency" & watch my salt intake, take the meds & put my feet up whenever I can..... I have the worst 2 year old ever...that' s hilarious...put my feet up...ha! GP offered no other options up but through my own net research & chatting with my PM about it, I've learnt options exist. I'm going to see a vascular surgeon as soon as I can because there' s a chance I need surgery to correct it. So back to all the other pain, PM has me taking the following:
10mg Methadone x 5 times a day 10mg Opana/Oxymorphone x 5 times a day Soma, as needed (gives me 45 a month) 30mg Cymbalta x 1 per day
For the past few months, my pain levels are totally unmanageable! I am barely getting through my day. I am so tired and I take baps with the kid every day when I wish I were doing other more productive things with that time. I keep telling my doctor this but he comments about my doses already being high & I know they aren' t. My neighbor takes over 3x the meds I do. And if the doses people are taking according to other pain forums I've read are truthful/accurate (I assume so), then I am actually at the low end.
I want to be off meds hopefully someday. I am trying RF ablation next month & also going to call some surgery center I' ve seen on TV recently that boasts low recovery time & just a one inch incision. Very attractive to me considering the 2 year old, and the fact that I've got ZERO family & a boyfriend who is incapable of logging off his pc long enough to take care of his child properly or other adult duties. I get about 1/2 a day of recovery time after a surgery, if that. So I' m curious, anyone ever heard of child care being paid for via insurance or anything for someone who doesn' t have other options? & how can I convince my doc to up my meds until and for the bit after RF? I need to live my damn life, pain is ruling me, then the guilt of the messy house, everything compounds together and I wish I could run away for awhile, get some time to myself. I' m starting to feel crazy, seriously. i do everything even when i can barely walk. My bf has pretty much checked out. he comes home an hour before our sons bedtime & on weekends his eyes are glued to the pc screen. if money wasnt a huge issue, i would already have moved out. i feel more like a single parent WITH him than I would without. he knows im in pain and doesnt offer any help, he said one day that he cant handle the kid, too stressful. wow, didnt know a parent could chose to care or not care for thier kid as if they were simply a sitter.