You & your Husband sound like you need immediate intervention . Have you tried talking with a " Pt. Advocate " of the local hospital you go to ? A well informed advocate can usually point you in the direction of a Dr. that can begin to help your husband once he gets all the facts - medical files etc , I so hope you've kept a list of medical procedures , the year they were done & by which Dr. an the end result = A medical synopsis . ...I wish I could help you more as the situation you describe is not the way to live - While you are in search of " better care " sometimes trying natural remedies can temporarily help . Slow deep breathing = yogic breathing , meditation , prayer if it suits you and very slow stretching so your husbands muscles don't atrophy . I know when your in the midst of this , the above may sound foolish but , temporarily they can help with depression / stress . Even a change of scenary can help with the day in /day out survival mode you sound like your in. As a care-giver you also need to chat this out with other caregivers - you'd be surprised what you can learn to help both of you. The USA is failing people in pain miserably with these new health care changes - it's down right inhumane that many Dr.'s don't want to help complicated cases especially if your health insurance is lacking . Unfortunatly , with no forsight these Dr.'s are setting themselves up for the same if not worse treatment . There are millions of people suffering needlessly - I pray that your lives will change . Prehaps some research in other types of medicine would help - accupuncture etc . Open yourselves up to the non-tradional . Regarding nutrition , small , slowly chewed bites of food , nutrient drinks etc. may help ...Go easy on yourselves emotionally , hyper-stress can do great harm / Reach out to your community and don't be quiet about it until you both find some help . Know your not alone an people do care . Good Luck . PS; Have you checked out the Mayo Clinic on-line ? Also , they are a "free" hospital and one of the best . May the Almighty bless you bothView Thread
Hi Broice - O'Boy I read your letter and feel for you - I'm in a similar situation in another state . But , this is about you ...if your allergic to suboxone - your other Dr. should have that on his list of your allergies. Have you gotten your medical history from your past Dr. ? It does help if , this Dr. wants to help you - your allergies need to be respected , it can be dangerous ! All over the US healthcare is changing and pain is being viewed differantly but , Hon you need to be your own advocate . If this Dr. is not respecting your allergies or you , request another - but , first reaserch your local Dr.'s through this site , RateMD's is another . Some " pain clinics" are run by Family Practice / Primary Dr.'s , try and make sure you have someone who is an expert in pain . Also . tell the Dr. what else you do for yourself other than the medication - diet , any exercise , therapies ...also , if you have any friends in medicine and you think they'd understand your situation don't hesitate to contact them . If there's any local "pain groups " that could help with names of Dr.'s as well ...I know your probly thinking " where do I get the umph to do this !!! " , do what you can and go easy on yourself but , at the same time you do need to help yourself - it's a quandry = you feel lousey yet , your suppose to have your act together . I'm there , I know ........I wish I could help you more ...do you have a " medical synopsis " ? It's a simple list of date - Dr. - health issue - what was done & result . This is handy for your Dr,'s to look up tests and files .........Take a deep breath , your not alone and you'll rally through this ...I wish you the very best ...View Thread
Dear An_251054- So sorry to hear your going through this emotional upset , pain & not knowing what to do ....I'm going through a very similar experience but , this note isn't about me !. Have you tried looking for a " Pain Specialist " in your area ? Through this website or RateMD's ... as some of the " pain clinics " are run by Family Practioners etc , you can find out about your Dr.'s history through the above sites . You have to be your own advocate - other then the medication also tell the Dr. what you do for your pain as well= diet , exercise , spirituality , therapies etc .Also , it's good to keep a daily " Pain Journal " - it will show your peaks an valley's of pain , where you need to pace yourself more etc. A " Medical Synopsis " is handy for the Dr. to show your history of treatments , dates , Dr. & outcome ( if you want more info let me know ) As with any Dr. if he isn't listening move on , if he's associated with a hospital you can also contact "Patient Advocacy " dept . and tell them your looking for a specialist in the field & what your diagnoisis is .. Meanwhile , hang in there & do what you can for yourself ...I know it's scarey but , know your not alone . I've been experiancing a very similar situation since last June an reaching out is a good step ..Deep belly breathing helps with the stress your feeling , eating right and exercise as much as you can so you can stay as limber as possible . Talking , writing , reaching out to those you think can & will understand helps allot. I wish I could help you more , I know how your feeling . There's been allot of changes in Healthcare throughout the US and the view on pain has changed as well ....Be true to yourself , research and try not to be intimidated by the Dr.'s . After all they are suppose to help you !! Be open to new suggestions using your research , commen sense & any connections you can make locally - how about your old Dr. , does he have any suggestions or contacts ? My heart goes out to you , if you want to know about anything I've mentioned or just write whatever you'd like, feel free to reply to this email ...Please remember , your not alone ...Take careView Thread
Here's to a future without a repeat performance of that unprofessionalism - if , you are going from an old Dr. let's say , to a new Dr. . A " safe bridge " is suppose to be provided for you . Here = ME. , it is highly frowned upon if it isn't and months ago I went through that as well . At the time I was told by the Dr.'s employer- a large medical center " what he's attempting to do isn't legal " and thankfully called his office that day an remedied the situation so I was physically able to get to the new Dr.'s office . I just had my 2nd appt. with my new Dr. - since June 2012 my HX has not been viewed an I was hopeing that would change .No , once again my case is being shuffled off to another " specialist " and though the last " Specialist " wrote that my patch can be prescribed @ 48 hour intervals - new Dr. didn't change it..I was told "it could be awhile before you can get in to new specialist " ....and I am to remain in the state of being house/bed bound til then- does commen sense ?'s enter into any of this ? As in - how does one maintain a clean house , laundry , groceries , responsibilities you have for others etc.. No....Throughout the years I have tried many therapies , some worked awhile an some not at all . I've always looked to each new therapy with optimism & inner drive to push ..All attempts don't seem to matter - HX doesn't matter ...I just don't understand the empathy regarding all of it as , I originally wrote . With all of the differant technologies being discovered everyday , wouldn't it be great if a tech..was discovered that allowed a Dr. to let's say put on a headpiece that allowed him to experiance your body be it an illness or pain - aka " walk in my shoes " as the old saying use to go . When you get so little sleep the imagination can be a saving grace ! Hope your feeling your best today , take good care .View Thread
Lordy , 2 weeks can be a long time , I hope you provided yourself with some coverage to avoid complete withdrawals - that's very dangerous . God forbid this happens again but , "if" try reaching out to a Pt. Advocate . It's against the law to just throw you under the bus without meds. to atleast withdraw slowly . Thanks for your support an good wishes , I hope today your feeling your best ! SeabreeznView Thread
Hey tuloud54 - Glad to hear your feeling okay in your state of body ...I also believe your never alone even in the darkest hours . ..I was indoctrinated heavilly into Catholicism as a young child which lead to the Convent as a teen -outta there ! Studied many forms of religion / spirituality/ cultures but , learned most from my Nana who was very gifted psychically & working in what used to be termed " end stage " care where my job was not only to provide physical care but , to make sure that the person had power an grace as long as possible . Also , my own NDE's taught me quite a bit ..why do you feel this way ? What gives you that internal strength ? .... Must get ready for the 2nd appt. with the new Dr. , though not asked , I'm providing daily pain sheets & info frm; the patch instructs . Thanks allot , hope you enjoy your day ..SeaView Thread
Hi tuloud54 - Tried to click your link but , had a pop that said there was no background story ? I did read some of your replies to others - you have gained allot of knowledge down the path you've walked . To answer your ?- Yes , I found a new Dr. form all places a mistaken phone call to a Dr.'s office where I ended up in the " Finance dept " - the woman asked what I was looking for I told her a brief background and she said I'm placing you on a conference line until we find you someone to help . 6 days later I was in my new Dr.'s office , who said " After hearing your story and checking your files I want to help you "...ahhhhhhhh a finger grip out of the hole from hell . I have another appt. tomorrow so , we can continue . I do have hope . Though my medical friends don't understand why I'd need a pain clinic considering my HX. as I went through the experience of the last 2 sub-human Dr.'s , I thought I had better find out whose good and make an appt. pronto - Long story short , they were able to get me in months ahead , I met with the Specialist in pain - he told me that he would meet with his staff , they would discuss my case and in 2 weeks they would have a plan . The longest 2 weeks ever ! The second appt. I saw an NP who told me forthright " You were dumped " ( frm; the hospital that my long term Dr. left ) and said she was sorry I had traveled to see them as my then Dr. refused to work with them . Therefore no plan . I get the new Dr. and he agree's to work with them so ,I call and asked them to fax the paperwork . 2 days later the specialists secretary called and said " The Specialist & the NP met , they decided I should stay on the patch with no break thru med. and they could do nothing for me "???? This said 2 things to me A- they didn't check my HX and B- at my first appt . as I was waiting a man walked in -straight backed with a steady stride as he was waiting he told me about his life . He had been an ill Enson in the Navy , they wanted him to retire early , he wouldn't without his med. benefits - he got them and now "Runs a farm "!!!! A farm , good Gawd I just want not to be house-bed bound as before 6/12 , run a farm !!! I thought that I had landed at the right clinic....there is an acute difference between us , he has med. benefits frm; the Navy . After years of fighting my Dr.'s to keep working they " retired me " = disability . No matter how well your pension is stocked etc..eventually it dissappears and your left with medicare and if your fortunate an insurance for RX . As you've read the Dr. said a staff meeting would decide , though it boiled down to him an the NP ..the insurance inequality I believe made a big difference . I hope tomorrow with my new Dr. I can get out of BORD# 7 to a 5 again which I can handle - this was never with the patch alone as , has been proven in this past week and years of med. hx. ..........Thanks for your words of support and giving me the oppurtunity to spew my frustrations . May this message find you feeling your best , thanks for reaching out . SeabreeznView Thread
Hey CTB - I would appreciate those links re; the patch ..I'm new to this site and don't know the protocals ...if I answer you directly frm; my email does that go to you or straight to the overall site ? This is the first time my continuity of care has been interrupted - here , the over-all complaint is that Dr.'s are not taking time to review HX of pt. . Especially if on medicare .. As you know illness happens in a moment in midst of a regular day . Personally , I fought to stay employed until my Dr.'s said " No more " and no matter what your savings , pension , 401K etc eventually they all become drained . Here in ME. ( also in other Notheast states ) the healthcare industry is getting ready for the changes around the corner ..Unfortunately , some people are being lost in the shuffle as Dr.'s are leaving here without proper preperation. At my last long-term care Dr.'s appt . he literally threw up his hands and said " They're saying it's physician abandonment " I said that's a legal term not to be taken likely " I didn't become a Dr. to treat people like they're on a deli line with no indidviduality , I'm young an becoming bitter " ..and I was thrown under the bus even though he worked for a large hospital , they told me " case closed " . Your sick and in pain , how do you fight and continue to search for care ? The next Dr. was a nightmare as I've written before an will be reported . As I've told my friends in healthcare - they were astonished at both of these Dr.'s actions . Last June 2012 I was able to stand upright an lead a paced but , functional life . Then , in a breath , it was ' acceptable " to 2 Dr.'s that I wasn't able to ...I asked the 2nd Dr. " Is there any ethical point in your mind where suffering is not acceptable " she shook her head "No".... Thankfully , by dialing a wrong number to a Dr. office 2 weeks ago searching for an appt . .I reached the finance dept . and she asked me why I was calling so , I told her a brief background and she responded by saying " We're going onto a conference line so I can stay with you until we get you some help " and by God she did . Which lead me to my new Dr. - You never know how help will show up in your life as long as your willing to keep going no matter how bleak it seems . Like this website & you taking the time to reply . Thanks again , take good care .SeabreeznView Thread
Bet - If you live in the Northeast-ME. , you'll find this problem often a subject of discussion an fear . What makes absolutelly no sense to me is - you may have a long health HX but , you have survived an are not amidst these vast problems now . Yes , we carry our long HX's of health issues be it surg's , meds , allergies - however , this is now all uncovered , vital information that I would think would make a Dr.'s job easier - it's primarily on reference check not a pt. in the throws of chaos an then having to discover why ... I was also in the healthfield for many years - doing inhome " end-stage " care an as a Dialysis Clinican ....the old rule use to be 85% of prognosis is history . Yet , even if you walk in with a medical synopsis of date - Dr.- procedure - outcome and allergy list . This has proven at times not to be of any worth .. It's very twilight zoneish to be treated as if you've never experianced anything and very dangerous - plus , totally negatting as a human being . My hope is you have good physicians on board now and stand tall in spirit from all that you've been through . Thanks so much for writing , I appreciate it .View Thread
Your so right on the money about all you mentioned ! The regiment I was on for many years took a-long time to establish because of my brain either not reacting , allergies etc...However , when I was on that regiment before last June , it was all ok'd by every fraction possible insurance -state-gov. as my medication was in high doses . This was not a regiment that grew with time - I was given the high doses all at once because of my brain anomaly> they believe has to do with severe burns at a young age changing the neurons an synapses . After 9 months of pure living hell , I'm with a new Dr. who said on my first appt. last week " I want to help you " ..O' from his lips to God's ear and back again please ! Thanks so much for writing to me , I really appreciate it as you know at times you can feel like your in a hobbit hole looking to climb out but , there's no finger grips ! I hope this reply finds you feeling your best today . Thanks much ..View Thread
The opinions expressed in WebMD Communities are solely those of the User, who may or may not have medical or scientific training. These opinions do not represent the opinions of WebMD. Communities are not reviewed by a WebMD physician or any member of the WebMD editorial staff for accuracy, balance, objectivity, or any other reason except for compliance with our Terms and Conditions. Some of these opinions may contain information about treatments or uses of drug products that have not been approved by the U.S. Food and Drug Administration. WebMD does not endorse any specific product, service or treatment.
Do not consider Communities as medical advice. Never delay or disregard seeking professional medical advice from your doctor or other qualified healthcare provider because of something you have read on WebMD. You should always speak with your doctor before you start, stop, or change any prescribed part of your care plan or treatment. WebMD understands that reading individual, real-life experiences can be a helpful resource, but it is never a substitute for professional medical advice, diagnosis, or treatment from a qualified health care provider. If you think you may have a medical emergency, call your doctor or dial 911 immediately.