I have an assortment of conditions that range from Extremely Painful (Degenerative Disc Disease in my lower back and Classic Migraine that occurs in a cluster format) to Moderately Painful (Fibromyalgia and Diabetic Peripheral Neuropathy), to Mildly Painful (Osteo-Arthritis in my fingers and a bone spur under on my heel UNDER my Achilles tendon making it essentially inoperable (for me as it would require detaching the Achilles tendon and the odds of infection are so high and the lack of antibiotics I am not allergic to makes the odds of losing my foot 50-50).
I am taking Lyrica, Cymbalta, and Topomax which keeps the symptoms of all of the above from being totally disabling.
I recently went to a Pain Management Specialist. I gave him my list of allergies. We confirmed these are TRUE allergies, not sensitivities. My allergist has already told me he cannot desensitize me to any pain medicines.That is a possibility with a few antibiotics, but not with Pain meds. Of the pain medicines my existing Doctors and I are aware of, the only one we knew were safe for me are Stadol NS, and Fentanyl. Obviously, this is not a great situation to be in. I hammered at him to tell me what could I take if I got just a "normal" bad headache, like everybody else in the world gets. EVENTUALLY he saw the light! I have NO options and he began to think. I cannot take a sniff of Stadol for every average headache. I would be dependent in no time. Even worse, I would likely develop an allergy to that too! I must make that teeny, tiny bottle of Stadol last 6 months or I will not get any more! So I use it only in extremis.
Eventually he hit upon Methadone as a medicine I have never taken and therefore I am probably not allergic to it (yet). I am going to take my first dose in my allergists office next week just to play it safe. What are people's experience with it? I was born with a super HIGH tolerance to medicines that make most people sleepy, high, etc. I can take 4 Benedryl and be wide awake. Even the very first time I had anasthesia, after, the oral surgeon who removed my wisdom teeth asked my Dad if I was I drug addict because it took 3 times as much IV medication to keep me under as it ought to have. Other people report all these wonderful sounding effects and I get nothing. Not even pain relief until they run the dosage up nearly to the max. Fortunately the doctors who have been with me for a long time are familiar with this effect and don't try to treat a migraine with a fly-swatter.
(Oddly, things that jazz you up, like epi for an allergic reaction or caffeine, or even Sudafed drive me UP A WALL!!! I cannot stand that feeling! )
Does anyone know anything about this patch I saw mentioned called Butran? Is this related to Stadol (which I have been taking for about 20 years and am STILL NOT allergic to)? The generic name for Stadol is similar to the Generic name for this stuff. I need to ask my Pain Management Doc if this medicine is a possibility!!!View Thread
I fell in my home (I do that fairly often as I am newly blind) and have injured my neck. Now I have a new pain shooting down my arm! I go for an MRI on Tuesday. The Pain Doc was wonderful. He EVEN saw me in the hospital, which few doctors do nowadays. He has given me a prescription for fentanyl patches (which I have locked in my safe) which have made life livable. They are really pretty weak, but in combination with Baclofen muscle relaxer (which he has me using instead of the Soma) I am getting good relief. I actually like the Baclofen better than the Soma.View Thread
My second visit to the Pain specialist was very productive. It was for a procedure, not an office visit. Based upon our discussion, my history and physical, he thought I would benefit from shots that went essentially in the dimples of my butt. These shots were guided by radiograph and he was excellent with the topical numbing medicine. The shots were Kenalog(I thought that was medicine I had given to my dog?). Just as he warned my blood sugars have been high since then so I have been adjusting with short acting insulin to knock it down. He said the Kenalog would take 2-10 days to kick in. That was Friday and today is Sunday and it has kicked in substantially already. I can already move more easily this morning. I like the way this guy works!
I go back in 3 weeks and we will discuss a different kind of shot into my L4-L5. That is where I have been getting them previously but the last 3 shots I tried did nothing. He says he has a different approach. I am willing to listen.
Folks, I appreciate the support more than I can say. I have a dream to be a writer. Is that crazy? I need a clear mind and must be able to focus razor to accomplish that goal. So I like that this Pain Management Doctor is helping me with knocking out the sources of the worst, constant, sleep-robbing, pain first. He really does seem to know what he is doing.View Thread
Well, darnit! I have taken Fentanyl in patch form (I mention I am not allergic to it in my 3rd paragraph - I realize I wrote a book there so it is no surprise you missed it!). I specifically asked the Pain doc if Fentanyl came in another form than patch because I obviously could NOT slap on a 3 day patch for every ache and pain. His response "No, Fentanyl is for Cancer patients". I have used it after surgery very successfully. I am going to go back at him with this. Thanks for the info!View Thread
I read through all of the above and thought I would add my experience. I have the misfortune to have become allergic (as in "Grab the Epi-Pen NOW and dial 911!!!" type of allergy) over the years of treatment with codeine, morphine, Oxi, tramadol, etc, to EVERY pain medicine you can name. Don't bother testing me, just trust me, ALL of them. I have been to multiple pain management specialists, neurologists, allergists, and on and on that Atlanta has to offer. Then I went to the Mayo clinic when things became desperate. They offered some short-term solutions, but no real long-term answer to my over-active immune system.
Recently I had to have surgery, there was no choice. My Endocrinologist, orthopedist and anathesiologist (sp?) consulted with my latest Pain doc and Allergist and the plan was to use Fentanyl patches along with Benadryl and Steriods for the first few days post-op as my allergy to Fentanyl consisted (so far) of only hives and intense itching. And then transition me to Nucynta. I was terrified. There were so many things that could go wrong. I was figuring I would pick up some dreaded infection, probably some untreatable form of MRSA, with my luck (and given how many antibiotics I am allergic to!).
But it worked like a charm! Everything came off exactly as planned. The Fentanyl patches were perfect. I was neither high nor in pain. I had to watch my blood sugars closely because of the steroids, but I am good at that. Then after the 6th day (2nd patch) the doc told me to not put on a new patch but instead start the Nucynta in the morning. I did and the dose was too light. The pain was pretty darn bad. He upped it to the 75s and I was good again. Once again, out of pain, but not high or "out of it" by anyone's definition. I would not want to drive in that state, as I am certain my reflexes were not what they ought to be, but I was not seeing pink elephants anywhere.
I have had classic migraines since puberty. I have been through menopause and had hopes that they would stop. No such luck. My neurologist found the right combination of meds to keep the frequency low. But the severity remains in the "where is there a bridge I can throw myself off" category. I have tried various alternative therapies. It took me no time at all to learn Biofeedback training to raise the temperature of my hands several degrees. This was supposed to help a migraine? In order to raise the temperature of my hands it requires lying on a bed/sofa and focusing on being on my favorite beach and envisioning the sun beating down on my hands. It requires concentration - got it? How do I accomplish this when my head feels like it WILL explode and the nausea is coming in TIDAL waves so bad I am grabbing the toilet for dear life and well, you know...My neurologist is kind enough to prescribe the only pain medicine I have yet to develop an allergy to. Stadol nasal spray. It is a miracle drug. He only prescribes it once every 6 months, but that is all I need it fortunately. It works very quickly and so far no side effects or allergies. I am now typing with my fingers crossed. LOL! In the past I have traveled out of town without it and if a migraine hits and after the 6th hour of agony I give in to friends who are begging me to please let them take me to the hospital. I just dread being treated like a drug addict. If you ask for a particular medicine, that is the LAST medicine you will ever get. Guaranteed. It doesn't matter if I beg them to please call any of my doctors. It doesn't matter if I present a letter from both my Internist and my neurologist documenting my allergies and saying it is perfectly fine to call them to get confirmation that what I am saying is true. I still am treated like a criminal. I am laying there puking, and crying. But there is no sympathy or leniency. They offer only Demerol in a dose so small it would do nothing even if it would not kill me. And I am paying to be treated like this!!! Yep folks this is modern medicine in America!View Thread
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