Hello, I am a long term chronic pain patient. I worked ALOT of hours over 27 years managing my own fast food restaurant. Eventually, this was the end of my great health ! Starting in 1988, I bulged a disc in my lower back, but was young enough to recover well enough to go on. Over the years, things progressively got worse. I have degenerative disc disease, and have so far had cervical fusion, lumbar fusion, and soon will have to address my thoracic spine. I feel as though I am pretty tough, independent, and take care of my own. But, very slowly, over time, these back issues, along with repeated inguinal hernias, 12 so far, I am near bout defeated. I understand now my limitations. I cant hold down a job, and activities are very limited. It is definitely a wake up call. I have learned how to manage my pain, enjoy the pain free moments, have a team of great doctors, and do as they say. Things are NOT the way I ever thought they would be, but, with the Lords help, I am a survivor !! You cant let it win !! My life path is just different now not a failure. I spend more time with Church, and family, and volunteer when I am able. Never before did I have time for that. I definitely have severe bouts with pain, even though I am on some very heavy pain meds. I wish I didnt have to take them at all !! I have been having problems getting two of my scripts filled since January, 2014. I dont know if Obamacare has anything to do with it or not. I am ahead on my meds, but, going around trying to find which pharmacies have them isnt something I wish to do. I was using a small chain for all of my scripts, but, now, they tell me they arent able to get the two pain meds from their supplier? Walgreens and Walmart didnt have them either? CVS had them, but I had to go to two different ones to get them filled. Ever since January, CVS has filled them every time, no problem. My old pharmacy would hold my extra months scripts until time to fill them. I know, by law, they arent supposed to. I dont ask CVS to. I am very aware of keeping them safe until filled. It is very frustrating for chronic pain patients, especially those without a support system, to have to run around looking for their scripts. The stress alone can cause pain flare-ups. I pray for those who are having these problems.I want to get away from taking these strong meds!! I have had a slew of different treatments, some help, some do not, but you gotta keep trying !! My Pain Mgmt Team has protocols that I have to follow and I have no problems with that. They HAVE to have control over what they do. I do believe in my new team. I have been there for the past 5 years, and am having ALOT better results because I fully BELIEVE that mt doctor BELIEVES WHAT I AM TELLING HIM .They can read people. They know what they are doing. Just find you one that you can relate to and be honest with him or her. Thanks for listening and if anyone has any suggestions to help me, I am ALL EARS !!!! May God Bless you all !!!!View Thread
Hello, I am a long term chronic pain patient, with alot of surgeries under my belt. I was on Lyrica for over 5 years and I became very swollen from it. The meds worked great for the nerve pain, sciatica. But, eventually, I had to stop taking it. My kidneys started wanting to shut down, couldnt handle it. I changed pain mgmt doctors and he put me on neurontin. Over time he has had to increase the dose. It definitely got rid of the swelling !! I lost 30 lbs.! I was on 600 mg , 3 times a day. Then I had my 11th inguinal hernia repair and they caught my femoral nerve up in one of the dissolvable stitches ! My right leg is numb, plus tons of tiny lightening bolts shooting through my leg. VERY PAINFUL ! They said the stitch will dissolve in 6 months, which has come and gone, but now the damage is permanent. It is sooo sensitive to touch, even clothes are unbearable against it. My pain mgmt doctor doubled my neurontin to 1200 mg 3 times per day, added valium, elavil, and a miracle cream which is ketamine/ lidocaine base. AWESOME FOR NERVE PAIN !! This happened Oct. 2013. Just recently, he added the lidocaine 5% patches to also help.The side effects, along with my pain meds, are terrible. I am groggy and have no energy. I started just taking the valium at nite to help me sleep. I dont know if any of this helps you, but, for me, the extra neurontin plus the other stuff was the ticket to make it more bearable. May God Bless you and care for you !!!View Thread
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