This thread is being started for people who have Psoriatic Arthritis. On this form, two of us have discovered that we have the same disease, and would enjoy talking to each other about the "Ups & Downs" of having the illness (is there an up?). PLEASE feel free to weigh in if you have Psoriatic Arthritis, and you will join in the discussion with two people, Kajakat and Dallasemmitt. Each person can tic off the box "Put this on my watchlist and alert me by email to new posts", listed below so that you will know when someone has put a new response on the thread (only if you want, of course). Kajakat: I was diagnosed in 2000, actually December 31st, 1999, so I knew that it was going to be a fun year. Have you ever heard the saying that "Whatever you are doing at midnight, when the year changes from one year to another, that is what will be your focus for the new year". There began my journey, in 2000, and now it is 2012!WOW!!! In 2000 there was not as much information out about Psoriatic Arthritis and some of my other Doctors (I have other medical issues) had not even heard of the disease before....that did not make me feel good. After a rocky start in 2000, and after trying numerous drugs, I was "lucky" enough to be able to try one of the new Biologic drugs; Enbrel. It was not even on the market yet to all, as my prescription was not even on a Doctors prescription pad. Enbrel was not the drug for me, and after many years of trying, I had to leave and move on to a different Biologic; Humira. Due to having many skin ulcers over my entire body (not all the time luckily), I was not able to take Humira on a steady basis, as you are not permitted to continue your injections if you have any form of infection and the skin ulcers were definitely infected. This was a tough time for me, due to the fact that people did not know what these skin ulcers were, including some doctors. Unfortunately, it was a Physician who said that she thought that I "self-mutilated". Due to peoples ignorance, and because a Doctor made the cruel diagnosis, she was believed, and I constantly had to try to explain to people that I was not contagious and it was not self-mutilation! Looking back on the whole issue, and getting a little more back bone, I would now have let people believe what they wanted, as I have come to the decision that I do NOT have to explain myself anymore! Glad to meet you Kajakat Signed, DallasemmittView Thread
Caprice_WebMD_Staff Thank you so much for allowing us to use this form. It is quite a rare disease, compared to other forms of Arthritis, so when you find someone who "shares your pain", it is almost exciting! Tell us to leave at any time if someone approaches you about us having this conversation under PAIN MANAGEMENT....but Psoriatic Arthritis, is a real "pain in the.... backside" (isn't it Kajakat?) Signed in pain, DallasemmittView Thread
Dear Kajakat My Aunt had two birds and she would talk and sing to them so much, that the grandchildren asked her if she liked the birds more. She gave the correct answer. Every night after supper, she would let them out of their cage and fly around the apartment, and it was amazing at 9:00PM, she would call them, usually hanging close to her, and they would go in their cage. Yep, I saw it with my own eyes!!! I had two cats named Dallas & Emmitt, and if you are fans of the Dallas Cowboys Football team, you will know where the names came from. Growing up we only had dogs at our house, so at 32, I have to be honest and say that I was nervous of getting the cats. I have alot of medical issues, so I am off on Disability and both cats would always come around me, or sit on my lap etc. Dallas I had for 10 years and Emmitt just passed away almost a year ago at 15 years old. I SWEAR, that they are like us except they have four legs and we have two, and we speak different languages, but lots of people speak different languages! I tell people when I get my migraines, I am sick to my stomach about 80% of the time (sorry for details but it is part of the story) and Emmitt would ALWAYS come and sit by the toilet. I would shoo him away and tell him he didn't want to see this. Sometimes I would physically pick him up and put him outside the bathroom door and pull the door almost closed, but I needed fresh air. Yep, he was back at my feet every single time. That is just one story of how I tell non-animal people, that pets know us, and they want to be with us and "take care of us". All they ask in return is unconditional love.....and that, I have lots to give. Kajakat, I understand the Depression and constant crying. Sometimes I would get so that I could not breathe because I would think and cry so hard, it just took my breath....just like Dallas & Emmitt did. I waited six months, and then I went to a rescue centre and adopted a cat who had been left at the centre for 8 months. Can't talk about those circumstances yet, as I would start to cry and would have to mail each one of you kleenex. Her name is Charlie and she is in the best place ever....for her little life! Thanks for letting us talk about Pain and our Pets. Kajakat: I would love to talk to you sometime about your Psoriatic Arthritis, as I have it to! It is hard to find people who have it, and you are the first person I have met online who has it. People do not believe much about it because it is the rarer kind of Arthritis, therefore, people have the mentality to think if not many people have it, it can't be that bad! It has changed my life 360 degrees. It is just not the same when family, friends, even medical staff feel that since it is not close to any specific arthritis, just call it Rheumatoid Arthritis. THAT DRIVES ME CRAZY!!! We are individuals with pain and we just want to be validated...believed by our "loved ones", so thank goodness for our pets! Sorry it is so long, but thank you very much for the opportunity. DallasemmittView Thread
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