Hi Annette 030, I understand what you are talking about. My son-in-law was in the Afghanistan war and did many tours and then he had to have some major surgery that cause him to have chronic pain. I had know idea that he had so much pain either. The VA prescribed pain meds for him and so did a pain mgt. dr. Unfortunately, after he was married to my daughter only for 1 year he took too much pain meds and had an alcohol drink and the next morning my daughter found him dead in their home. It was absolutely shocking. I know that he knew better. He was in so much pain and of course he had PTSD from all that he saw in the war.
My daughter had some surgery and she even hid her pain meds because he would look for them. He died the day after her 40th birthday. It was just awful to say the least.
It is a real shame that a veteran would survive the war, but to come home and die due to an overdose is just a real shock. The VA in Austin was not very helpful with his other problems either. You would think that the VA would do their very best to help. That is not so in my opinion. Some years ago, the local paper wanted to interview my daughter about what happened to her husband and she did share a lot of info that went into that article about Vets and pain meds, etc.
All of this set her back in a very bad way. She finally found a grief support system, but even that was not entirely helpful because other people in that group had lost loved ones due to other reasons.
You would think that the VA would have their own grief support system and a lot more to offer returning soldiers.
I wish that person that is being forced off of their pain meds a lot of luck. There is no excuse to do that if you ask me.
I am really sorry to hear that Kaiser will not treat pain patients anymore. Is there anywhere else that you can go to get your pain meds? Of course we all know that taking pain meds over an extended time can be either addicting or we will bill up a tolerance to the type of pain medicine it is.
Why don't you try finding a pain mgt. dr. that is not connected with Kaiser. Hopefully your insurance will cover that.
It does not make sense to be taking opioids for 8 years and then find out that you can't take them any more. In fact that makes it very serious for you if you have to withdraw from them. Maybe you could go to another close city and see if you can get some help there.
I wish you lots of luck and I hope that you can find another dr. to help you.
Hi 77grace, I am sure that I am not alone with this problem. Do you ever run out before you can get it refilled? That is my biggest problem with that medicine. I would be happy to take another type of medicine that would be helpful, but I am so afraid of discussing this with my pain mgt. dr.
Hi Sunflower1101, I do not think that we are supposed to give that type of info on this website. I am not trying to be rude or not helpful. I am pretty sure that there is a rule about where and whom we see and they do not want that info posted on here.
I would suggest that you check out the Texas area because it is so huge and there are many different doctors there.
I wish you all of the luck that you can find in regards to this.
Hi it's meaningfulc. I meant I would not trade my pain mgt. dr. for another. She is just wonderful.
I have been under a huge amount of stress lately and take more of the valium than I should. I just cannot handle stress. It is so difficult for me to take the amount that is prescribed. I have been trying to not discuss this on here because I hope that no one would put 2 and 2 together and figure that it is me that is having this problem and I mean in her office.
I have been in pain clinics before and taken off of all of my meds, but that was a very long time ago before I was even taking methadone. When I was in the pain clinic that was the better one, they had us doing yoga, walking, other exercises and a very good diet which now I can no longer eat due to my metal jaw.
Well, if any of you have some ideas as how to address this with my dr. please let me know. Thanks, Meaningfulc52View Thread
Hi You All, I am sorry that I have not been in touch lately. So much has been going on that is personal.
Lately, my headaches, jaw, neck and lower back pain has been ruling my life. I am so tired of all this. Of course I have a very wonderful pain management dr. and sure would trade her for another dr.
Have any of you gotten the creepy crud that has been going around? I had bronchitis for more than 2 weeks and then another episode of GI problems. I always wonder will it ever stop.
There is something that I really need to get your opinions about. I have been taking valium for more then 30 some years now. I am so addicted to it and when I run out of it I am in a real mess. I want to tell my pain mgt. dr., but I am so afraid that she will dismiss me and I do not need her to that. I am able to manage the methadone without any trouble, but that valium is a real trouble maker for me. I have often thought of asking her about taking klonopin instead of valium since they are similar.
Do any of you have some good ideas as how to address this one problem that I have.
I sure would appreciate any of your ideas as how to approach this.
Hi marv05, I have chronic pain and have for about 40 years now. My daughter is in her early 40's and when she started having all kinds of things that caused pain she got the same answer as you. "Oh, you are so young and to be on pain meds that are addictive". She heard that so many times that you could record it and hit 'Play".
Many years ago, was in the hospital for yet another jaw surgery and my roommate had broken her back. Boy, did they help her. I am not sure exactly what they did, but she was in a real mess with the pain. I do not understand why your doctors won't order an MRI or some other type of x-ray to look at your back.
In my daughter's case she kept calling the doctors office and it seemed to tick them off. Now, I really do not understand that when you want to have a special test done or you need answers.
I don't think that it is right for the drs. to tell a patient "well you are too young, to have pain meds" or something like that. We that suffer with chronic pain know that it will never go away (at least that is my opinion) and the best approach is to have some pain medications that really work.
You should see a different orthopedic dr. When you find one that really does seem to care, then maybe you will get the right treatment.
I understand about how it is so hard to do the normal every day things. I can't do them anymore. It is very frustrating. Since you have small kids, maybe these drs. are afraid that they might get into your pain meds if you had some. I am only guessing. I keep all of my pain meds in a lock box and I have no young kids and no grandchildren. It is just a safe thing I think.
Have you gone to the ER and seen a dr.? Maybe that might get you some temporary help and maybe they can refer or recommend a good orthopedic dr. I just don't know.
Whatever you do, do not give up. I pray that you will find the right dr. and very soon.
Hi Tom, I am very sorry to hear that your dr. took you off of the Percocet. I don't know why some of these pain mgt. drs. take something away when it has been helpful to a patient. There was a time that I used the Fentanyl patches, but as you said they really do not last 3 days like they say. Maybe for someone else that works, but it sure did not for me and you.
It is hard enough to find a pain mgt. dr. and even more difficult to find one that really gives a da.... if you know what I mean. Most of them are in it for the money if you ask me. Although, I think that some of them really do care about their patients. It is a hard thing to figure out.
I sure am glad that you did not go through ending your life. That would have been awful.
You try and hang in there. If you have to find a different dr. then make your plans to find one. I wish you lots of luck and hope that your pain improves.
P.S. You can talk to me on this message board anytime you are up to it.View Thread
Hello cweinbl: I am very sorry if I made any of you feel bad. That was not my intention. You are right when you say that we need a place to vent and make our complaints known to all that are on this web site.
I thought that in another message I had made it clear, but I guess that I "missed the boat".
Some time ago, there was a person that was talking about committing suicide and I sent him/her a message because I had a very good friend that did that. I hope that the other person got my message.
I am not a school teacher, just a chronic pain patient. I have lived with many different types of pain since my early 20's and now I am in my early 60's. In my 20's I had endometriosis and had a hysterectomy when I was 27 yrs. I am very grateful that I already had one child. She is the light of my life. She also had major brain surgery almost 2 years ago and recently had neck surgery. If you only knew the "life challenges" that my daughter has gone through you would be shocked. I only hope that she will find some happiness and love with a wonderful man one day.
By the way, I am aware of what the DEA is doing in regard with the medications that many of us take for our pain. I also know that the FDA recently approved the meds that have hydrocone in them to be a Schedule II instead of a Schedule III.
I receive many messages from the FDA and other groups that keep me informed. If it were not for the FDA, I would have never known that the jaw implants that I used to have were very dangerous and caused severe pain. The FDA recalled the Vitek implants in 1990 and I had mine removed. When I am talking about jaw surgery I mean a very long surgery. My last jaw surgery was in 1995 and lasted for 13 hrs. I almost died. When I first looked at my face I almost passed out. My face was swollen terribly and I had black eyes and they had to shave the hair on my head in one place in order to get a skull graft. The oral surgeon I had was making an implant that was different from all the other ones. It also had coral, some fat from my stomach and then metal, screws, and bolts. These were implanted on both sides of my face.
I have always been a woman that goes out of my way to look the best that I can. After I saw how I looked after this last surgery I can tell you it was complete hell. It took about a year for everything to improve. Of course this is partly why I need a pain management dr. The jaw pain is horrific and it never improved over the years. The drs. that I had NEVER told me the truth about the side effects and how much pain I would continue to be in. Now, that is where I draw the line. There are some wonderful doctors, but there are also some awful ones too.
I hope with this information that you have a better idea what I have been through. You can still google and do a search about the VITEK jaw implants. When I had mine removed, I contacted the local FDA office and they wanted mine and they were sent to sent to Washington, D.C. They wanted one of the drs. there to analyze my implants. I spoke to this particular dr. many times on the phone and after 1 year he finally had the results of my jaw implants. I was involved in a Class Action Suit also along with my best friend. Sadly, many years later she committed suicide.
I also have neck problems that cannot be corrected by surgery. I was involved in several car accidents in the 70's and the 80's. There are other things that cause me to have pain. I have tension and migraine headaches and have a great neurologist. I also have RA. Shall I go on?
Sorry, for being sarcastic but after what you replied to me, I feel as though I need to explain a lot more.
I am very fortunate that my husband is still with me. I have no idea how I would live if we were not together. He has been my rock thru all of this.
So, with this info, I hope that you do understand that I have been through a lot and have compassion for others.
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