Hi marv05, I have chronic pain and have for about 40 years now. My daughter is in her early 40's and when she started having all kinds of things that caused pain she got the same answer as you. "Oh, you are so young and to be on pain meds that are addictive". She heard that so many times that you could record it and hit 'Play".
Many years ago, was in the hospital for yet another jaw surgery and my roommate had broken her back. Boy, did they help her. I am not sure exactly what they did, but she was in a real mess with the pain. I do not understand why your doctors won't order an MRI or some other type of x-ray to look at your back.
In my daughter's case she kept calling the doctors office and it seemed to tick them off. Now, I really do not understand that when you want to have a special test done or you need answers.
I don't think that it is right for the drs. to tell a patient "well you are too young, to have pain meds" or something like that. We that suffer with chronic pain know that it will never go away (at least that is my opinion) and the best approach is to have some pain medications that really work.
You should see a different orthopedic dr. When you find one that really does seem to care, then maybe you will get the right treatment.
I understand about how it is so hard to do the normal every day things. I can't do them anymore. It is very frustrating. Since you have small kids, maybe these drs. are afraid that they might get into your pain meds if you had some. I am only guessing. I keep all of my pain meds in a lock box and I have no young kids and no grandchildren. It is just a safe thing I think.
Have you gone to the ER and seen a dr.? Maybe that might get you some temporary help and maybe they can refer or recommend a good orthopedic dr. I just don't know.
Whatever you do, do not give up. I pray that you will find the right dr. and very soon.
Hi Tom, I am very sorry to hear that your dr. took you off of the Percocet. I don't know why some of these pain mgt. drs. take something away when it has been helpful to a patient. There was a time that I used the Fentanyl patches, but as you said they really do not last 3 days like they say. Maybe for someone else that works, but it sure did not for me and you.
It is hard enough to find a pain mgt. dr. and even more difficult to find one that really gives a da.... if you know what I mean. Most of them are in it for the money if you ask me. Although, I think that some of them really do care about their patients. It is a hard thing to figure out.
I sure am glad that you did not go through ending your life. That would have been awful.
You try and hang in there. If you have to find a different dr. then make your plans to find one. I wish you lots of luck and hope that your pain improves.
P.S. You can talk to me on this message board anytime you are up to it.View Thread
Hello cweinbl: I am very sorry if I made any of you feel bad. That was not my intention. You are right when you say that we need a place to vent and make our complaints known to all that are on this web site.
I thought that in another message I had made it clear, but I guess that I "missed the boat".
Some time ago, there was a person that was talking about committing suicide and I sent him/her a message because I had a very good friend that did that. I hope that the other person got my message.
I am not a school teacher, just a chronic pain patient. I have lived with many different types of pain since my early 20's and now I am in my early 60's. In my 20's I had endometriosis and had a hysterectomy when I was 27 yrs. I am very grateful that I already had one child. She is the light of my life. She also had major brain surgery almost 2 years ago and recently had neck surgery. If you only knew the "life challenges" that my daughter has gone through you would be shocked. I only hope that she will find some happiness and love with a wonderful man one day.
By the way, I am aware of what the DEA is doing in regard with the medications that many of us take for our pain. I also know that the FDA recently approved the meds that have hydrocone in them to be a Schedule II instead of a Schedule III.
I receive many messages from the FDA and other groups that keep me informed. If it were not for the FDA, I would have never known that the jaw implants that I used to have were very dangerous and caused severe pain. The FDA recalled the Vitek implants in 1990 and I had mine removed. When I am talking about jaw surgery I mean a very long surgery. My last jaw surgery was in 1995 and lasted for 13 hrs. I almost died. When I first looked at my face I almost passed out. My face was swollen terribly and I had black eyes and they had to shave the hair on my head in one place in order to get a skull graft. The oral surgeon I had was making an implant that was different from all the other ones. It also had coral, some fat from my stomach and then metal, screws, and bolts. These were implanted on both sides of my face.
I have always been a woman that goes out of my way to look the best that I can. After I saw how I looked after this last surgery I can tell you it was complete hell. It took about a year for everything to improve. Of course this is partly why I need a pain management dr. The jaw pain is horrific and it never improved over the years. The drs. that I had NEVER told me the truth about the side effects and how much pain I would continue to be in. Now, that is where I draw the line. There are some wonderful doctors, but there are also some awful ones too.
I hope with this information that you have a better idea what I have been through. You can still google and do a search about the VITEK jaw implants. When I had mine removed, I contacted the local FDA office and they wanted mine and they were sent to sent to Washington, D.C. They wanted one of the drs. there to analyze my implants. I spoke to this particular dr. many times on the phone and after 1 year he finally had the results of my jaw implants. I was involved in a Class Action Suit also along with my best friend. Sadly, many years later she committed suicide.
I also have neck problems that cannot be corrected by surgery. I was involved in several car accidents in the 70's and the 80's. There are other things that cause me to have pain. I have tension and migraine headaches and have a great neurologist. I also have RA. Shall I go on?
Sorry, for being sarcastic but after what you replied to me, I feel as though I need to explain a lot more.
I am very fortunate that my husband is still with me. I have no idea how I would live if we were not together. He has been my rock thru all of this.
So, with this info, I hope that you do understand that I have been through a lot and have compassion for others.
Hi 77grace, I know that many times when I am having a really awful pain day I probably say way too much or bitch and moan more than I should. Having said that, it is also important to be able to have someone that really does understand how we are feeling and what we are going thru. That is why I feel comfortable posting my concerns here. There are many of you all that have some great ideas or just understand and that helps so very much.
This group of pain patients are "normally" very helpful to each other. I do not have a personal complaint with any one person.
I just wanted to clarify that with you all. Our doctors give us plenty of info but sometimes I feel as though I get a lot better information from other fellow chronic pain patients.
I have read most of the posts and replies about the most aggravating topic of Patients and Doctors and the amount of meds.
What is wrong with you all? Normally, I see most of you being very helpful and supportive to the people that post on here. Now, it looks as though there are way too many of you that want to point the finger at the DEA or some other group when it comes to pain mgt.
I have suffered for almost 40 years with chronic to severe pain. I need to have access to pain medications to treat me. I am grateful that my current pain mgt. dr. prescribes enough pain meds to keep me as comfortable as I can me. If I did not have a pain mgt. dr. like her, I do not know what I would do.
All of us are different and especially how we treat out chronic pain. Some people can add some light exercise to help and there are others that can't and are not able to do that. Instead of being so darn critical of some people, why don't we offer advice that we think may be of help and stop making judgement calls when we don't have all of the facts. Everyone is different and everyone's pain is also different. This Pain Management Community is supposed to be an outlet for pain patients and also to vent and get feedback from others here.
Come on, you all, you know what I am talking about.
Hi avanti88, My pain mgt. dr. has a message posted in the waiting room and it says if you are 15 or minutes late, then you will not be seen. Now, in my opinion, that is crazy. Every time I have been to their office which is every month, I wait more than 1 hr. and sometimes 3 hrs. to see my pain mgt. dr. These docs are so busy that they can't even keep up with all of their patients. That is obvious.
I would not change pain drs. because this particular one is the best one that I have ever had. So, when I go to my appointment I just expect that I will be there a long time. Sometimes I am surprised and I don't have to wait a long time, but that is rare.
Sorry, about your situation. I understand. If you have changed pain mgt. drs. then that is good. I hope all goes well for you.
Wow, you have had a lot of procedures done and now you do not have a dr. that will prescribe you the pain meds to take by mouth. I do not know what to tell you except have you tried seeing a pain mgt. dr. that would help you?
With your degree in aerospace and more it sounds as though you are a very intelligent person. I hope that you can find a pain mgt. dr. to help you with your pain.
I have had 6 major jaw replacement surgeries with prosthesis in my face on both sides. I also have migraines and neck pain and more things that cause me pain.
I have a wonderful pain mgt. dr. and I would not trade her for another pain mgt. dr. ever. She is so kind and caring and most of all she is extremely intelligent and certainly knows what pain is all about. She has been my pain mgt. dr. now for about 2 years. Prior to that I had another dr. that was difficult and not very helpful to say the least.
Maybe if you could stop using the marijuana it would be easier to get your pain medications. I just don't have any more ideas than that one.
Wow, you sure have had a lot of tests done. They can't figure out what is causing you so much pain either. That is very strange. Have you seen a orthopedic dr.? I read your long message. I can't remember if you did. The neurologist could not find anything else going on either.
I would suggest that you find a pain mgt. dr. They are far much better in treating pain and especially when it is hard to diagnose. I don't know what state that you live in, but most pain mgt. drs. are the best way to go when you have pain and you don't know why or what is causing it.
Try and find a pain mgt. dr. and see if that helps. I have been going go a pain mgt. dr. now for many many years. Currently, I have a wonderful lady dr. that is terrific. She is from another country, but that does not matter. What matters is that she is very smart and knows pain mgt. and how to treat my problems.
I am so sorry that you are in so much pain. I would never wish that on anyone. It is true hell to be in so much pain.
Please find a pain management dr. and let us know what happens.
I have had huge problems with Walgreens. They had a new pharmacist that did not know me. When my prescription was taken there she would not fill it. I had been going to Walgreens for many, many years and could not believe that. I asked to have my scrip back and went to CVS and they filled it without any problems.
I have heard that Walgreens has been sued for 85 million dollars. If that is true, then they have some real big problems.