TDXSP08 :- Pain Management Community -: Support Group

TDXSP08

Joined: 02/05/2010

My Story:

Starting from the top of my head the things that contribute to my Chronic Pain Conditions and my Disability Follow below , My Pain Management Doctor does not want to speculate on a single possable cause for my pain but has no doubt when i tell her i get days when my pain is off the chart and all i can do is stay in bed even my wheelchair is to much to handle.
Now mind you this all started in 2004 with a game of ping pong paralysis between my left hand and my right hand over the course of 2 weeks it bounced back and forth until finally in the fall of 2004 my entire Right arm and hand became paralyzed and i was admitted to the hospital for observation and testing after two long days of testing i went to sleep one night ( i have been taking Dalmane or Restoril for many years to sleep) and awoke the next morning in a room of a different color with no furniture steel screens on the window and wondering where in Gods green earth was I (at that time i could walk and ambulate just fine and walked out to find myself on the Mental Health unit all locked in and all the nurse would tell me was your Doctor will be here shortly to have a serious talk with you and he had you moved here for your protection and i said to her "oh great i was abducted by aliens and got the anal probe thing last night huh he could have told me that with less drama" and i could see she wanted to laugh but she held back. So about forty five minutes later the Doctor arrives and tells me i have Lou Gehrig's Disease(ALS) and i had between 2 & 5 years to live i'm like "ok let me out of this cage and i'm gonna go run around and do all the things that i have wanted to do before the clock runs out" he's like thats not the usual reaction, people usually get very depressed i said "I dont have time"so anyway when i started having pain My PCP and i worked the Pain Pyramid somethings worked for awhile somethings did not work at all until finally i ended un on Fentanyl and Roxcy and everything was fine until she accepted an incredible job offer in Florida and everyone of my other doctors seemed like they could not even spell Drug let alone Narcotic and i went thru 8 months of misery until i found the Pain Management specialist 200 miles away , so here is my pain.
C-5-6-7 narrowing and stenosis on the central canal w/ foraminal tear
Extreme kyphosis resulting in shoulder dislocations when arms are fully extended[thats why my chair has a chest harness to pull me back into the chair]
Entire spine shows degenerative disc and Joint disease
Lumbar Spine has collapsed and upon EMG lumbo-sacral nerve plexus lacks nerve activity resulting in drop foot on right ,incontinence and a host of other problems
Chronic Inflammatory Demylienating Polyradiculopathy all nerve roots on my right side are being killed off
I have Myotonic Muscular Dystrophy
Hereditary Neuralgic Amyothrophy
And lest we Forget The Two Myocardial Infarctions and the type 1 Diabetes
or the Dilated Cardiomyopathy w/ Left Ventricular failure
Epilepsy, Hypertension, Enlarged Prostate, E.D , GERD ,Hypothyroidism ,PTSD w/ CCSS (Concentration Camp Survivor Syndrome) It comes from a severely abusive childhood endining with me surviving instead of being the second victim in a double homicide where i saw my Mother shot to death.

To Put it simply I am A Real Mess

I can be contacted at tdxsp08@neo.rr.com

Peace

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Reply: When Pain Interrupts Your Sleep

http://www.webmd.com/sleep-disorders/living-with-insomnia...

I did forget to say that Miltown in the Soma is a Barbiturate and normally it is...

i have no small step for man, but i have 6 tires for mankind,Watch your Toes!

Posted by TDXSP08

20 Replies | ReplyReport This| Share this:When Pain Interrupts Your Sleep I did forget to say that Miltown in the Soma is a Barbiturate and normally it is...

Reply: When Pain Interrupts Your Sleep

http://www.webmd.com/sleep-disorders/living-with-insomnia...

You have reopened a 1year old message thread DawnnaBee but you are talking about something...

i have no small step for man, but i have 6 tires for mankind,Watch your Toes!

Posted by TDXSP08

http://www.webmd.com/sleep-disorders/living-with-insomnia...

You have reopened a 1year old message thread DawnnaBee but you are talking about something that is happening to Pain Patients everywhere everyday across the country because of the Current DEA enforcement actions going on everywhere and the scrutiny they are putting on Doctor's, soon everyone who needs pain medication will only be able to get from Doctor's who have extra training and have attended all the REMS classes on the drugs the are prescribing & I would not be surprised at all in the near future if we the patients where required to take classes on the use of our medications. Taking Soma for 6 years thats a recipe for disaster Baclofen is a much safer medication i use it myself . and being bitter or mad at celebrities who have money to buy and corrupt Dr's to give them whatever they desire is fruitless although i will admit that i dislike the women myself because every year they mark the anniversary of her death with shows about her and all that garbage and i sit alone mourning for something more precious i lost that day my Mother who was not a rich celebrity drug abuser. if you are on Opiods and where taking Soma at the same time Many doctors now know that is a recipe for trouble and are switching people off of one or the other, also concurrent use of Opiates and Benzo's are really fallen into dislike in combination, I am my Pain Management Dr's practice that is allowed to take both because i was able to give her records from my sleep pathologist proving i have severe sleep disorders that can not be controlled or corrected any other way,so i get a pass on the no benzo's rule. and the reason that Soma is not liked to be used with Opiates is because Soma itself has a high abuse potential and when it breaks down in the body a part of it turns into a small dose of the sedative/hypnotic Miltown so Baclofen is going to do the same thing without the sedative and without the high risk of abuse. Your Internist is right if you are now Going to be going to a Pain Managment Clinic you could end up starting back at the "baby aspirin" stage and working your way up , there are NO guarantees that the Pain Management Doctor will want you on the doses or meds you are taking or even think that you need Med's it all depends upon why you are taking them and what kind of documentation and test results and such that you have and also the examination that the Pain Management doctor does, I know on my first visit i had to first see PT,OT,Psychiatrist, Psychologist , Physiatrist, Addiction Therapist, Neurologist, Anesthesiologist, Nurse Practioner THEN if i passed all of those physical exams, questions and answers, i got to see my Pain Management Doctor who was absolutely worth the feeling like theres a circus in town and you are the star of it, i have had her for the last 5 years and would never ever leave her because she truly cares.

so you may have to join the circus to get you meds you may not in any event it's not time for thoughts of self harm it's time of thoughts of forging new relationships and new connections and a healthier you. if you Dr. gave you a Pain Doc to go to your all set if not you can use this link to look for doctors near you that specialize in Pain Care .

http://www.doctorsforpain.com View Thread

i have no small step for man, but i have 6 tires for mankind,Watch your Toes!

Posted byTDXSP08

20 Replies | ReplyReport This| Share this:When Pain Interrupts Your Sleep You have reopened a 1year old message thread DawnnaBee but you are talking about something...

Sites to find Pain Management Doctors Anywhere in ...

http://www.vitals.com/doctors/pain_management_local.html

vitals is good but the best one , or i should say the one i feel is most powerful and has...

i have no small step for man, but i have 6 tires for mankind,Watch your Toes!

Posted by TDXSP08

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0 Replies | ReplyReport This| Share this:Sites to find Pain Management Doctors Anywhere in the USA vitals is good but the best one , or i should say the one i feel is most powerful and has...

Reply: What is Fibromyalgia

http://altmed.creighton.edu/fibromyalgia/what_is_fibromya...

Well it like Lyme disease by the time it manifested itself as a problem the tick was long...

i have no small step for man, but i have 6 tires for mankind,Watch your Toes!

Posted by TDXSP08

20 Replies | ReplyReport This| Share this:What is Fibromyalgia Well it like Lyme disease by the time it manifested itself as a problem the tick was long...

Reply: What is Fibromyalgia

http://altmed.creighton.edu/fibromyalgia/what_is_fibromya...

Yes but caprice Old information does not change look at the work with bacteria 100 years...

i have no small step for man, but i have 6 tires for mankind,Watch your Toes!

Posted by TDXSP08

20 Replies | ReplyReport This| Share this:What is Fibromyalgia Yes but caprice Old information does not change look at the work with bacteria 100 years...

Reply: What is Fibromyalgia

http://altmed.creighton.edu/fibromyalgia/what_is_fibromya...

have been hearing from my Care team that Fibromyalgia is right on the boarder of being...

i have no small step for man, but i have 6 tires for mankind,Watch your Toes!

Posted by TDXSP08

20 Replies | ReplyReport This| Share this:What is Fibromyalgia have been hearing from my Care team that Fibromyalgia is right on the boarder of being...