I hope this post find everyone in a low pain day and finds you all well. It seems like forever since I have posted anything and knew exactly where to turn to after my appt this morning. I don't know whether to cry or be happy after this one.
I have been in pain straight for about 7 yrs now and suffer deeply like most of us do, doctors have dx me with FMS and Hereditary Angio Edema. To be honest I don't think they have a clue....
For the last year I have been suffering with major shoulder and neck pain and had an mri done, a couple of months ago. I met with the Ortho Surg this morning to go over the results. My C5 and C6 is showing disc Extrusion and is severely pushing on the nerves and muscles on both sides of my shoulders and neck. He said that alot of my symptoms that they thought was FMS is from this like Migraines, hands and fingers falling asleep pain, swelling in my shoulders, elbows fingers and wrists, Dizziness and so on.
He wants to do multiple trigger point injections to release the nerves and muscles because right now there is very little oxygen and blood flow going to them. I have no reflexes at all on the right side of my body. He said yrs ago,they would operate right away to remove the disc but now they dont like to so wants to try this.
Any suggestions for me? I guess I am not losing my mind and my pain is justified where for yrs felt like I was looked down on because of my pain..View Thread
Hi there, My name is Charity and I am 35 yrs old, I have been suffering from Chronic Pain for about 5 yrs now and still no diagnosis... I have seen so many diff doctors but no one can figure out what is wrong with me..
I have been told so many diff things that it is such as Lupus, Ra, FMS, Stills disease, Familial Mediteranian fever, Poly Myositis, Hereditary Angio Edema and so on but still no one has given me a firm Diagnosis.
I have been tested for everything. I have had a bone marrow biopsy, full bone scan, xrays, ultrasounds, countless blood tests and the only thing the blood tests show is extremely elevated white blood cells and increased Platelets.
My symptoms are full body pain normally on both sides, crippled fingers, weight gain, no energy I don't sleep for days, swelling etc...
I need help I am so tired of feeling this way, I am to the point that I want to give up. The pain is so deep and goes right into the bone it feels like my bones are grinding and there are days I need to use a cane to walk because I can't do it on my own.
Does anyone know what this could be? I do have a pain management doctor who is just treating the pain and trying to keep me as comfortable as possible but he continues to say that whatever this is is extremly rare but can't figure anything else out...
I currently take 15mg of hydrocondone twice a day, 2mg of dilautid every 4 hrs as needed, 225 mg of lyrica, 0.5 mg of nabilone, at bedtime.
Please help me I am so lost and do not know what to do...
Yes he was licensed my husband seen his plaques up and he is licensed to practice in Canada which is where I am at..
It did help one leg but not the other I am going to try and go back to see if he will do my hip next.
Yes, the information he gave me is the first time anyone has mentioned it I am going to ask my PM doc about it and see what he says. I am trying now to see if I can find some diseases that has any of these as a symptom and see what I can find.. Have you heard of anything like this before?View Thread
Thank you so much for your replies.. I was seen last night by a Monk Doctor from Bejien, I am not sure what type of doc he is because he does not practice Western Medicine. He performed electrical acupunture on my knees and ankles..
He was saying that the nerves are bunched together, they are not where they are suppose to be, the muscles were short and extremely tight as well he mentioned that the tendons and my muscles are stuck together..
Thank you so much for your reply.. I have had full thyroid function tests done a number of times, MRIs have been done as well. I have seen rhuematoligists, allergists, internal medicine, Neurologist as well.
I have never tried the muscle relaxers so that is one thing to ask my Pain management doctor.
I have an appt tonight with a Monk Doctor that only practices natural medicine so we will see..