I also have FMS, I have not been pain free for about 15 years or so.
Stop wasting your time hating what it has done to you, you are in charge of your own life. Exercise as much as your doctor says is okay, apply for whatever SSDI you are eligible for, continue making the jewelry and please post where we can go so see it!!
My pcp doctor has ALWAYS managed my pain, it has been well over 15 years that I have been treated for FMS, and migraines before that. I have been prescribed around the clock opiates for over 15 years now. I have no idea what you mean by a "low dosage", the dosage varies from person to person and over time also. Tolerance is usually the case with opiates, and over time everyone will need a higher dose to get the same effect. But, this varies a lot, I have only needed increases in my dose every 2-3 years at most.
The federal agencies do not have a dosage level for opiates when prescribed by pcps to my knowledge. Where did you get this info, please post a link if you have one?
This sounds more like what poorly informed doctors tell their patients rather than just saying they don't feel right about increasing a dose. It is frequently blamed on the FDA or some other federal agency. It is my understanding that if a doctor sees his patients regularly, and documents their cases properly, there is little to worry about with federal agencies. Some doctors either don't want to take the time to do that, or are not given the time by their employers.
I also do volunteer work, always have but to a much smaller extent while I was working and raising my son. It has saved my sanity. It makes me feel more useful generally also.
Since I stopped working, I have volunteered tutoring reading to adults, helping check in books on the computer at the local library, at a food bank, nine years twice a week at a free clinic as a nurse, now at the animal shelter once a week taking adoptable dogs outside for a bit.
Everyone can find something to do. One community I lived in even had a program for the housebound. They would call each other once a day to make sure they were okay. Kids at schools need tutoring. Reading at the library to kids is easy to do once a week for most folks. If you are of a religious bent, check at your house of worship. Just do it!
Well said. I also went through the transition from working as a full time RN to being disabled. My mom always said you can have money or time, but seldom both. She was right, but now I enjoy the time I have been given.
I got a walker, a commode chair, and a shower chair from the thrift store for my husband when he had hip surgery. All for less than $35. His insurance would have paid for new stuff, but I think it is kind of dumb, rather wasteful. I just donated them back when he was done with them.
A friend of mine has had several knee surgeries, and has multiples of the above in her shed. She gets new ones every time she has surgery.