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Pain Management Community

Reply: New Opiate laws are effecting people with pain man...

CTBeth, Unfortunately I totally agree with you about suicide and illegal drug traffic,...

Posted by cybil53

44 Replies | Reply | Watch This DiscussionReport This| Share this:New Opiate laws are effecting people with pain management CTBeth, Unfortunately I totally agree with you about suicide and illegal drug traffic,...

Reply: Frozen Shoulder

Hi gina, I had frozen shoulder and yes it is very painful! I didn't have surgery but I...

Posted by cybil53

5 Replies | Reply | Watch This DiscussionReport This| Share this:Frozen Shoulder Hi gina, I had frozen shoulder and yes it is very painful! I didn't have surgery but I...

Reply: Vulvadynia

Hi debwen2153, I am so sorry to hear you aren't getting any relief. I also have...

Posted by cybil53

11 Replies | Reply | Watch This DiscussionReport This| Share this:Vulvadynia Hi debwen2153, I am so sorry to hear you aren't getting any relief. I also have...

Reply: rhizotomy

Marjoy5, Thank you for your reply now we know it is normal to have pain/discomfort after...

Posted by cybil53

4 Replies | Reply | Watch This DiscussionReport This| Share this:rhizotomy Marjoy5, Thank you for your reply now we know it is normal to have pain/discomfort after...

rhizotomy

Hello, I was wondering if anyone has had Rhizotomy procedure done and if they had...

Posted by cybil53

4 Replies | Reply | Watch This DiscussionReport This| Share this:rhizotomy Hello, I was wondering if anyone has had Rhizotomy procedure done and if they had...

Reply: Interstitial Cystitis

CTBeth, I just wrote a long Post and lost it! Anyway, I have not had the epidurals but I...

Posted by cybil53

14 Replies | Reply | Watch This DiscussionReport This| Share this:Interstitial Cystitis CTBeth, I just wrote a long Post and lost it! Anyway, I have not had the epidurals but I...

Reply: Interstitial Cystitis

Hi I am so sorry you are suffering with IC, I too have had it for many years. I have not...

Posted by cybil53

14 Replies | Reply | Watch This DiscussionReport This| Share this:Interstitial Cystitis Hi I am so sorry you are suffering with IC, I too have had it for many years. I have not...

Reply: Hi All , Im a newbie here

So sorry to hear what you are going through, I have been there I also have IC, Fibro,DDD...

Posted by cybil53

So sorry to hear what you are going through, I have been there I also have IC, Fibro,DDD and a few other diseases. I was surprised when you stated you had to quit taking your pain meds because you lost your insurance. I too lost my insurance but there is no way I could go without medication. Are you aware that the pharmacutical companies have programs so you don't have to go without your meds? That is what I did and I received my pain meds along with all my maintenance drugs. The program is wonderful and is very little paper work. I continued to get my meds from them until my disability was approved last year.
As far as your IC have you seen a urologist that specializes in IC? I went to 3 urologist before finding this one and he is practicing cutting edge treatment, has written many articles and has been a guest at the National IC Foundation and has just founded an IC womens center where I am being treated. He has many trial studies he also does. After seeing him the first time it was the first time I had hope. Have you had all the treatments like instillations, Elmiron,vagina valuim, etc? and when is the last time a doctor has done an exploratory of your bladder? Do you have hunners ulcers present all the time? Also with your other diagnosis has the doc told you that you have pelvic floor disfunction?
We know for right now there is no cure but we have to try every option out there. Believe me I understand how painful this is and how it effects your whole life.It has taken quite a toll on my marriage. As far as your family no they can't even fathom what our life is like with this disease. I have come to that conclusion and try not to talk about my pain to them or tell them what pain meds I take. It is just to frustrating, because they just don't get it. Until they are peeing blood and screaming because it hurts so bad they won't know.
I just had another exploratory 2 months ago where my doc went in and scraped the hunners ulcers and inserted med to calm things down. .Also I donated tissue from the bladder for his study as he is determined to find a cure. I went for physcical therapy , am on meds and use a tens machine. Don't get me wrong I still have constant pain and then there is always the major flares but I am much better since being treated by this doctor. It is quite a drive for me to go see him 1 1/2 hours but it is worth it.
I have read on the IC site where some women have had their bladders removed. I hate to see you do that and just wondered if you have seen a doc that truly specializes in IC.
My heart goes out to you as an IC suffer, I hope you get some relief from this dreadful disease. Take Care!View Thread

Posted bycybil53

4 Replies | Reply | Watch This DiscussionReport This| Share this:Hi All , Im a newbie here So sorry to hear what you are going through, I have been there I also have IC, Fibro,DDD...

Reply: Pain question

I know your struggles I too have IC, along with fibro and a few other things. I went to 3...

Posted by cybil53

3 Replies | Reply | Watch This DiscussionReport This| Share this:Pain question I know your struggles I too have IC, along with fibro and a few other things. I went to 3...

Reply: When I ran out of Fioricet w/Codeine, My pulse rat...

Goodmorning, I am also on Fiorinal #3 which I normally take 4 times a day for...

Posted by cybil53

14 Replies | Reply | Watch This DiscussionReport This| Share this:When I ran out of Fioricet w/Codeine, My pulse rate went thru the roof!! Goodmorning, I am also on Fiorinal #3 which I normally take 4 times a day for...

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