starting next year 34 states have signed up to a new Federal Information System that will give Police Doctors and Pharmacists the ability to see what Doctors and what medications you have been RX'ed in 34 states and climbing. which for abusers and pill poppers well thats just bad news, but for US i think it will be a great thing it shows we are honest in our historys and what not in the future when we lose a Doc to retirement or insurance issues and things like that, Showing un tamperable proof from our pharmacist is good but this will take it to the next level and show almost nationwide we where not getting med's from other Docs.
I had issues with my Fentanyl patches not staying on my skin. They would come loose in the shower, or in the night. So now I use a great product called "Tegaderm Film" which can be purchased over the counter at the Pharmacy. They are very thin, and don't irritate the skin, but hold the patches on very well!! Good Luck!View Thread
I use the slcka packs or freezer gel packs that you put in a picnic, when I am in serious trouble. I lie down with 1 wrapped over each thigh, and they dull the pain sufficiently to sleep. I am on lyrica, clonazepam, nortryptalline, and neurofen zavance only as required. I will look up the drug names I see you others taking to see what they are and if available here. Cymbalta has not come to New Zealand yet, I had read about it and thought it might be worth a try when it gets here. But the frozen gel quietens down the nerve pain, altho I must have a hot bath before bed also to relax sufficientlyView Thread
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| ReplyReplyReport This| Share this:Freezer PacksI use the slcka packs or freezer gel packs that you put in a picnic, when I am in serious trouble. I lie down...
I have been seeing a Naturopath doc for about the last year. He has helped me to get off my last 2 RA medications. I am taking a supplement to help control my active viruses. I recommend also seeing a Naturopath in addition to your RA doctor.
For about 10 years I took Arava, Naproxen and Hydroxychloroquin for my RA. I also started taking Rhinocourt nasal spray at the same time for allergies I developed and later added Zyrtech to control the hives I started breaking out in.
Over the last 5 years these main things have helped me to control my arthritis and allergies, and get off all 5 medications: gluten-free diet; eat very little sugar; eat mostly whole foods including lots of veggies; adding supplements like fish oil and flaxseed oil; adding coconut oil to my diet; and exercising regularly.
All those changes were over time and worth it. I hope this information can help someone else too.View Thread
I have tried two clinics-they don't manage pain, they give cortisone injections & muscle relaxants---which does nothing to help. The injections wear off and they are bad for you, long term & when you take the muscle relaxants, you are useless. I had surgery recently and I found that one 800mg Motrin, 1/2 a percocet, with 1/2 tab "muscle relaxant-baclofen, flexiril, etc.) gave me enough relief to function through the day, be coherent, do calculations, etc. That was the first relief I have had in almost a year, but-good luck getting ANY doctor to prescribe so much as a tramadol. I was "offered" Neurontin, but I don't like the hefty side effects. I don't understand the problem with doctor supervised narcotic pain management. Without it, I am so "sore", I can't even focus on my work.
Since no one will prescribe those things that ARE effective, I am in a never ending state of pain, to some degree- 24/7. Also, I'm not stupid- as you can see, I'm pretty sensible. I think it is my age (this pain started with car accident in Nov 2009 & I am 49 yrs old)? I know someone who is in their 60's and the same doctor I went to prescribed them a drug cabinet, but he is an alcoholic (stopped drinking for going on 30 years, now) and he didn't fill the prescription.
I just don't want to see anybody wasting their time on pain management doctors, when the truth is-they don't manage pain, they only give you high priced procedures that make them the most money, with the least liability. These doctors don't want to prescribe something cheap and effective like percoset-and they don't want legal ramifications for those who abuse the prescribed drugs. This leaves us to pot (which just makes you sleepy and pretty useless & for me doesn't control the pain) or alcohol-which doesn't control pain or hot baths, herbal remedies or obtaining potentially lethal drugs on the internet that may or may not be "real" and may have dangerous ingredients/not FDA approved.
I am in the coastal region of Massachusetts, if anyone knows of a doctor that is not afraid to manage pain, effectively-then let me know-please.View Thread
This is a shot in the dark, but perhaps you should try talking either with an Orthopedic doctor or a neurosurgeon, either one could help you eliminate a number of possible problems that might be affecting you. Also, try and notice how any particular sitting or laying positions that either benefit or bother your condition. Keep a record of any times that you trip, feel very dizzy, if you have pain down the back of your legs. Note if there are any numbness also. But most importantly, "do this right away"! Your pain is a message, and when this message is sharp and hard, you need to act fast. Good luckView Thread
I have lived in Oklahoma for 9 years,and have bulging and thinning disks in my lower back.I mention the word...
Posted by An_223033
I have lived in Oklahoma for 9 years,and have bulging and thinning disks in my lower back.I mention the word pain and get the eyeroll and am dismissed as a drugseeker every time.I have changed doctors a half dozen times with the same results.As I was looking for a new primary care physician,I called a clinic to see if they accepted new medicaid patients,the receptionist asked if I had any chronic illnesses,I told her I was looking for a primary care DR. for all my health issues and what did she mean.She then said that the doctor did not treat pain.So I said"as long as It doesnt hurt the doc will treat me?"She was very rude and said he would not treat chronic pain patients.So here I am in tremendous pain and absolutly no where to turn.I am very depressed.View Thread
My husband has tried everything possible for back pain, you name it, he has tried it. He has tried fusions,...
Posted by An_223032
My husband has tried everything possible for back pain, you name it, he has tried it. He has tried fusions, pain management clinic, etc. He now has a spinal stimulator (implanted May 2010) which does not seem to be working. Does anyone out there have any advice. He is sinking more and more into depression each day, he is on antidepressants...............View Thread
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| ReplyReplyReport This| Share this:What is next?My husband has tried everything possible for back pain, you name it, he has tried it. He has tried fusions,...
Although it has been mentioned in several discussions, I have seen little about RADIO FREQUENCY LESIONING. It is drug-free and long-lasting (6 months to 2 years for me), It is performed by a Pain Management Doctor as an out-patient procedure, with or without anesthesia, depending on the doctor. It probably won't get rid of all the pain, but any relief is better than none. My present doctor is very good, and I always come away with less pain. View Thread
I had back surgery with all kinds of metal put in my back...L4/L5, new disc made out of some new material that works like a cushion, bone graft, fusion, screws, titanium steel rods, and some sort of a cage all inside my body and I am still in pain and still have Sciatica, but the operation went well and has really helped me a lot.I was at the point that I couldn't even walk before the operation. If you saw me now you would never know. It's been five months and I am gardening sitting on the ground for hours and shoveling and planting away. It doesn't matter if I don't do anything. After a while being on my feet the back and sciatica starts in. So I am still in pain every day. My doctors gave me basically what ever I wanted for a three month period. Most of it I am allergic to so I am not helped by it. I itch all night. It drives me crazy. To bad I can't give you all of the oxycontin that I have and the rest of the stuff I have here as well. So all I can do for my self is PT and half of a Vicodin and Tramadol. All are low doses, but if I take more I will start itching with the oxycontin, percoset, percodan, methadone, vicodin, codiene, etc. What a nightmare with meds.. Wish I knew something else to take that didn't make me itch. Any suggestions, anyone out there??? Dr's are afraid to give out meds now. They will be sued and people will die, so we are screwed. I wish I could take small does of morephine or fentanal, but they don't give that out. Two more operations coming my way. Torn rotator cuff and my neck. I'm still not giving up gardening. My joy! View Thread
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| ReplyReplyReport This| Share this:Pain Meds I had back surgery with all kinds of metal put in my back...L4/L5, new disc made out of some new material that...
I just recently joined this newsletter and after reading your entry I really understood what you were saying. For 15 years I told my Neurologist I had horrible back pain. He did do an MRI but the film was so poor the disks at L-4/5 and S-1 did not show clearly. I did have 9 steroid injections, PT and medications. None of these were helpful. It wasn't until I had left foot drop and could no longer walk for more than 15 minutes that he finally listen. I was seen by a Neurosurgeon who found the herniated disk in 20 minutes and scheduled emergency surgery 11 days. The disk had caused spinal cord injury. Had I not confronted my doctor and made him listen to me, I could very easily lost the use of my left leg. If your doctor will not listen, find another physician. Back pain or any chronic pain for that matter can lead to depression which may also have to be addressed. Until you have chronic pain you cannot understand how it controls your life. I am very sorry your doctor won't listen, I hope by now you have found one that does. My advice is have documentation, published medical articles and write down items you want to discuss written down. Physicians are more likely to listen if you have done your homework. I hope you have found relief, back pain just about destroyed by life. Thank goodness I found my Neurosurgeon. For those who thought you were looking for surgical treatment first must not understand when you have chronic intense back pain you would do anything to stop it and must not have ever felt it.View Thread
The MRI is good thing and very informative. Check out a book on Muscular Skeletal Retraining (i got mine thru Shambhala), also there is a yoga book called (something something) Scoliosis. There is a muscular skeletal retraining program in either or both books. BECAUSE once there is pain here there is a compensation there and so on and so on until the whole structure is off balance and painful. This I discovered by notiing that I pulled weeds (or any other activity) by bending from the waist. I do not recall the last time I bent at the knee and there is a lot of retraining I need to do, it is slow and it works. The other thing to consider is a TENS type machine. It can be hooked up to the neck, lower back, etc... and will help to intercept the pain info which, by now, is travelling in a rut and needs a new path or no path. It is a matter of teaching your body (slowly) how a non-pain body works -- because ours have forgotten.View Thread
I've had low and mid back pain for about 15 years. It started 6 years after a 1989 spinal cord injury that didn't hurt at all, even after it was corrected by surgery. But the same degenerative disk disease that caused the original injury is now calcifying my remaining disks, squeezing nerves and causing great pain all up and down, from waist to toes.
I thought that traction might help, and finally talked my dr. into ordering it after physical therapy. I tried it yesterday for 20 minutes before coming home, not feeling much different. But walking through the night, I felt a lot worse than I had 24 hours ago. Today has been just awful, and unless someone can convince me that traction really does help over time, I've had enough!
This is just a cautionary tale, to remind people to start new treatments heedfully, with plenty of analgesics around; and never do anything new on Friday, Saturday, Sunday, or (if Holiday) Monday unless you're prepared to go to the ER!View Thread
Hi Kat, Just writing to let you know I was put on the patch awhile back 50, 75, mcg's. They did not help me to much pain wise, in fact they put me in more pain. The reason why I was allergic to it, strange isn't it?? I had more luck with the Methadone for my illness, everybody has a different pain relief then other's. I know how you feel i was in the same way a few weeks ago. Hang In there things will get better for you!!!!View Thread
Previous research has demonstrated a clearly negative influence of chronic pain on health. Now, a new study portrays a profound link between severe chronic pain and death; inflicting nearly a 70% greater mortality risk than even cardiovascular disease.
Even after adjusting for various confounding sociodemographic factors and effects of long-term illness, patients with severe chronic pain had a 49% greater risk of death compared with all-cause mortality and a 68% greater risk of death compared with all cardiovascular-disease-related deaths.
The most critical information to take away from this research is that withholding appropriate pain medication is a virtual death sentence. Physicians who "don't believe in" using narcotic pain medication must read this comprehensive new research study. By withholding appropriate treatment, these physicians are sentencing some of their patients to an early death.
Secondary to this, families and friends of severe chronic pain patients must never try to dissuade the patient from using all appropriate treatments and medications to reduce pain. Convincing such a patient to avoid narcotics, if and when they are appropriate, is equivalent to pushing them into an early grave.
Instead, physicians and families must encourage the chronic pain patient to employ each and every possible treatment, including comprehensive pain management programs and powerful pain medications. It is no longer a matter of making someone more comfortable. It's a matter of life and death.
This new research is comprehenisve, vetted and validated. The methodology is convincing. The group sizes are well over minimum levels.
REFERENCE: Torrance N, Elliott AM, Lee AJ, Smith BH. Severe chronic pain is associated with increased 10 year mortality. A cohort record linkage study. Eur J Pain. 2010(Apr);14(4):380-386 [abstract here >.View Thread
when I removed the patch it was the worst kind of pain I had ever felt, my oldest child was 7 or 8 and she would rub my legs for hours and I would just cry, that was 5 years ago. Doctors really need to better monitor the way they distribute those things and have a better detox ( thats whats happening) system in place for people to stop using them. Since then I have A mixture of meds and shots that made my life so much better I cant tell you.. Find a rumatologist that knowswhat hes doing and I wish you luckView Thread
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