I certainly have sympathy for you and your husband. I used to have debilitating migraines until finally one day my daughter drove me to the Kaiser medical center and a PA gave me muscle relaxers called Norgestic Forte. Took two, slept for 10 hours and woke up and never had a migraine again! If he hasn't tried muscle relaxers before, it's at least worth a try. I wish I could find some other method of getting MY neck to stop hurting. Pain killers do not do the job except for maybe a couple of hours, then the pain is back. Good old Arthur has me in his grips. It's HE-- getting old! Good luck to you both.View Thread
Find a fibro-friendly doctor, especially a Rheumatologist. I've been using a Microcurrent Stimulator to help my adrenal glands, which often have trouble functioning well in people like us. It's been giving me more energy. I also just starting taking an Ionic Mineral liquid from my doctor. It's supposed to help the stimulation come through better.View Thread
I too suffer from pelvic pain (actually it became classified as chronic about 20 years ago). Fortunately for me, after 5 surgeries and years of living in sever pain, a surgeon sent me to a pain clinic. A pelvic pain clinic. Guess what, that figured out and treated my pain. Don't give up!View Thread
have had fibro since 1986..i have been on flexeril since 1997..with no weight gain, no flares, no steroids..sleep is just ok..but its non habit-forming..and it relaxes muscles..duh..stamina is great but i am functional enough to work ptime..try it!!View Thread
As many of you, I have been prescribed and tried Lyrica, which caused weight gain and no pain relief, Cymbalta, which caused weight gain, pain relief, yes, but extreme sleepiness and a total dissociation with reality, and since I have to drive a lot with my work, taking that medication was not feasible for me. I have always wanted to see auras, but spiritually, not drug induced! Both meds made me very, very sleepy and lethargic which probably contributed to the weight gain. The best thing I have found is staying totally away from caffeine, sweets and spicy foods, taking long hot baths, and deep meditation. I started taking a class in meditation for spiritual purposes and was amazed at the pain relief (temporary relief). I have a LOT of spinal arthritis from my neck to my lowest back and my dr. thinks that this may be causing a lot of the pain he formerly ascribed to fibromyalgia. I had a spinal fusion and am I am currently getting epidural injections, but have had no relief as yet. My heart and prayers go out to anyone living with fibro on a daily basis. It is a horrible, tiring, depressing condition. A big issue with me is trying to get family, friends and clients (I am a self employed artist) to understand how it effects me, and trying to get them to be a little understanding. Blessings to you all-View Thread
after several years of searching for answers for my deep muscle aches I was finally diagnosed with fibromyalgia. I am still not completely sure that this is the problem but all signs point to this. over the years I have taken hydrocodone and valium down to nsaids and muscle relaxants. I have lbeen dealing with this chronic pain for so many years. it is more my familly that thinks it is all in my head cuz they think I am too young to be experiencing pain everyday like I do. I also have slight curvature in my spine, arthritis in my lower back, bursitis in my hips, well you name it everything from my shoulders down to my knees and my toes. My doctor says my pain leads to stress and depression. I also suffer from anxiety. right now I am being treated with cymbalta which I hear is the only anti-depressant that helps control anxiety and pain associated with fibromyalgia. For the past year I have been taking cymbalta which is quite expensive for me cuz we have one of those high deductible insurance plans.it's ridiculous. I have to pay for everything out of pocket till a 6,000 deductible is met.(unless it's preventative care) along with the cymbalta i take tramadol. This is a drug that is similar to a narcotic but it's not. it somehow controls how your body reacts to pain as fibromyalgia is an overactive nerve disorder. just a few days ago my doctor also added wellbutrin to my diet per say to help with my seasonal depression.. so now it is cymbalta which she says I will probably always have to take it till something better comes along for fibromyalgia, tramadol, naproxen, and wellbutrin. I am told that I need to keep my eye out for symptoms of serotonin syndrome. what? ok. now I know there has to be some other treatment for fibromyalgia pain. I have to say that the tramadol is one of the best pain meds I have been on though. I get no buzz or high off of it. It just helps me feel better. I just wish I didn't have to take the cymbalta too. It's too expensive. Anybody out there that suffers fibromyalgia pain I would love to hear about your treatment.View Thread
I had two back surgeries, and had worse pain after than before, I took percocet, and oxycontin, and finally ended up in a wheelchair, because of the pain in walking also much pain in sleeping. I went to Texas to see my daughter in law, who is an occupational therapist. She said that maybe low level laser would help me. I had had both facet nerves burned, and SI joint nerves burned and the pain just increasted. So I had little hope that low level laser would do anything. She gave me two treatments in two days. I went home and suddenly realized that I didn't need the wheel chair anymore. My pain was more than cut in half. and I am slowly getting better each week. II think that it was an Ercronia low level laser 650 that was used. it was a miracle to me.View Thread
You are a wonderful Mom to be on medical sites looking for some helpful answers for your son. I am sure that he really appreciates your help, in all that you do for him. It seems like an individual basis, to find what drug is going to work for exactly each persons body. If your son has access to a Pain Clinic or a doctor that specializes with pain meds, hopefully the trial and effect will work for your son. I have had migraines for 28 years, and finally, the Pain Clinic tried a few things and the drug sounds bad but it really helps me. The name of the drug is Methadone, and it is supervised constantly by two doctors and one nurse at all times. People gasp when they hear the name Methadone, and don't worry, I did too, but luckily, I gave it a try and "voila", it works. I, like others, take four stool softeners a day, but it never really helped, so I know the pain of going once a week, and all of the fun that it entails. The new thing that helps me, and everyone I have ever mentioned it to, helps them as well, and the name is "Flaxseed Oil Pills" @1000 per dose, and I have just learned that you should ALWAYS take it at night time. You need to take all three pills at once and boy are they big!!! Now instead of screaming because it hurts to go to the bathroom, I scream because I am so happy!!! Not the best thing to get excited about, but it has actually changed my life. Good Luck to your son, and thanks for being a wonderful, caring Mom who will help her child at all costs! My Mom is the same, but not all children are as lucky as your son and I. DallasemmittView Thread
starting next year 34 states have signed up to a new Federal Information System that will give Police Doctors and Pharmacists the ability to see what Doctors and what medications you have been RX'ed in 34 states and climbing. which for abusers and pill poppers well thats just bad news, but for US i think it will be a great thing it shows we are honest in our historys and what not in the future when we lose a Doc to retirement or insurance issues and things like that, Showing un tamperable proof from our pharmacist is good but this will take it to the next level and show almost nationwide we where not getting med's from other Docs.
I had issues with my Fentanyl patches not staying on my skin. They would come loose in the shower, or in the night. So now I use a great product called "Tegaderm Film" which can be purchased over the counter at the Pharmacy. They are very thin, and don't irritate the skin, but hold the patches on very well!! Good Luck!View Thread
I use the slcka packs or freezer gel packs that you put in a picnic, when I am in serious trouble. I lie down with 1 wrapped over each thigh, and they dull the pain sufficiently to sleep. I am on lyrica, clonazepam, nortryptalline, and neurofen zavance only as required. I will look up the drug names I see you others taking to see what they are and if available here. Cymbalta has not come to New Zealand yet, I had read about it and thought it might be worth a try when it gets here. But the frozen gel quietens down the nerve pain, altho I must have a hot bath before bed also to relax sufficientlyView Thread
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I have been seeing a Naturopath doc for about the last year. He has helped me to get off my last 2 RA medications. I am taking a supplement to help control my active viruses. I recommend also seeing a Naturopath in addition to your RA doctor.
For about 10 years I took Arava, Naproxen and Hydroxychloroquin for my RA. I also started taking Rhinocourt nasal spray at the same time for allergies I developed and later added Zyrtech to control the hives I started breaking out in.
Over the last 5 years these main things have helped me to control my arthritis and allergies, and get off all 5 medications: gluten-free diet; eat very little sugar; eat mostly whole foods including lots of veggies; adding supplements like fish oil and flaxseed oil; adding coconut oil to my diet; and exercising regularly.
All those changes were over time and worth it. I hope this information can help someone else too.View Thread
I have tried two clinics-they don't manage pain, they give cortisone injections & muscle relaxants---which does nothing to help. The injections wear off and they are bad for you, long term & when you take the muscle relaxants, you are useless. I had surgery recently and I found that one 800mg Motrin, 1/2 a percocet, with 1/2 tab "muscle relaxant-baclofen, flexiril, etc.) gave me enough relief to function through the day, be coherent, do calculations, etc. That was the first relief I have had in almost a year, but-good luck getting ANY doctor to prescribe so much as a tramadol. I was "offered" Neurontin, but I don't like the hefty side effects. I don't understand the problem with doctor supervised narcotic pain management. Without it, I am so "sore", I can't even focus on my work.
Since no one will prescribe those things that ARE effective, I am in a never ending state of pain, to some degree- 24/7. Also, I'm not stupid- as you can see, I'm pretty sensible. I think it is my age (this pain started with car accident in Nov 2009 & I am 49 yrs old)? I know someone who is in their 60's and the same doctor I went to prescribed them a drug cabinet, but he is an alcoholic (stopped drinking for going on 30 years, now) and he didn't fill the prescription.
I just don't want to see anybody wasting their time on pain management doctors, when the truth is-they don't manage pain, they only give you high priced procedures that make them the most money, with the least liability. These doctors don't want to prescribe something cheap and effective like percoset-and they don't want legal ramifications for those who abuse the prescribed drugs. This leaves us to pot (which just makes you sleepy and pretty useless & for me doesn't control the pain) or alcohol-which doesn't control pain or hot baths, herbal remedies or obtaining potentially lethal drugs on the internet that may or may not be "real" and may have dangerous ingredients/not FDA approved.
I am in the coastal region of Massachusetts, if anyone knows of a doctor that is not afraid to manage pain, effectively-then let me know-please.View Thread
This is a shot in the dark, but perhaps you should try talking either with an Orthopedic doctor or a neurosurgeon, either one could help you eliminate a number of possible problems that might be affecting you. Also, try and notice how any particular sitting or laying positions that either benefit or bother your condition. Keep a record of any times that you trip, feel very dizzy, if you have pain down the back of your legs. Note if there are any numbness also. But most importantly, "do this right away"! Your pain is a message, and when this message is sharp and hard, you need to act fast. Good luckView Thread
I have lived in Oklahoma for 9 years,and have bulging and thinning disks in my lower back.I mention the word...
Posted by An_223033
I have lived in Oklahoma for 9 years,and have bulging and thinning disks in my lower back.I mention the word pain and get the eyeroll and am dismissed as a drugseeker every time.I have changed doctors a half dozen times with the same results.As I was looking for a new primary care physician,I called a clinic to see if they accepted new medicaid patients,the receptionist asked if I had any chronic illnesses,I told her I was looking for a primary care DR. for all my health issues and what did she mean.She then said that the doctor did not treat pain.So I said"as long as It doesnt hurt the doc will treat me?"She was very rude and said he would not treat chronic pain patients.So here I am in tremendous pain and absolutly no where to turn.I am very depressed.View Thread
My husband has tried everything possible for back pain, you name it, he has tried it. He has tried fusions,...
Posted by An_223032
My husband has tried everything possible for back pain, you name it, he has tried it. He has tried fusions, pain management clinic, etc. He now has a spinal stimulator (implanted May 2010) which does not seem to be working. Does anyone out there have any advice. He is sinking more and more into depression each day, he is on antidepressants...............View Thread
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Although it has been mentioned in several discussions, I have seen little about RADIO FREQUENCY LESIONING. It is drug-free and long-lasting (6 months to 2 years for me), It is performed by a Pain Management Doctor as an out-patient procedure, with or without anesthesia, depending on the doctor. It probably won't get rid of all the pain, but any relief is better than none. My present doctor is very good, and I always come away with less pain. View Thread
I had back surgery with all kinds of metal put in my back...L4/L5, new disc made out of some new material that works like a cushion, bone graft, fusion, screws, titanium steel rods, and some sort of a cage all inside my body and I am still in pain and still have Sciatica, but the operation went well and has really helped me a lot.I was at the point that I couldn't even walk before the operation. If you saw me now you would never know. It's been five months and I am gardening sitting on the ground for hours and shoveling and planting away. It doesn't matter if I don't do anything. After a while being on my feet the back and sciatica starts in. So I am still in pain every day. My doctors gave me basically what ever I wanted for a three month period. Most of it I am allergic to so I am not helped by it. I itch all night. It drives me crazy. To bad I can't give you all of the oxycontin that I have and the rest of the stuff I have here as well. So all I can do for my self is PT and half of a Vicodin and Tramadol. All are low doses, but if I take more I will start itching with the oxycontin, percoset, percodan, methadone, vicodin, codiene, etc. What a nightmare with meds.. Wish I knew something else to take that didn't make me itch. Any suggestions, anyone out there??? Dr's are afraid to give out meds now. They will be sued and people will die, so we are screwed. I wish I could take small does of morephine or fentanal, but they don't give that out. Two more operations coming my way. Torn rotator cuff and my neck. I'm still not giving up gardening. My joy! View Thread
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