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And here's my take on using opiates for a lifetime. As long as you use them as directed, there seems to be little reason for concern. I expect to use Fentanyl for the rest of my life, or until something even better arrives. So, I don't worry at all about withdrawal. In fact, I feel fortunate to have an internist who will let me try anything and who will prescribe Fentanyl. I sometimes wonder why people are so concerned about using opiates for decades or longer. As far as I can tell, there is no abundant research that reveals problems in this regard.
Finally, most of the best results that I've heard about come from a millieu of treatments. Start with long and short-acting opiates. Add mind-body therapy (I can reduce my pain by about 20% with biofeedback alone). Add PT, if it helps. Add off-label drugs, if appropriate (anti-depressant, anti-convulsant, anti-inflammatory). Add anything else that you have tried successfully, including THC. BTW, if you live in a state without medical marijuana laws, you can ask your doctor to prescribe Marinol (Elan Pharmaceuticals). The active ingredient is THC. Consider TENS, kniesiotherapy, acupuncture, hypnosis, injections, rhyzotomy, etc.
If all of these fail, and medications no longer help, you can consider the spinal cord stimulator and the intrathecal infusion pump.
If decide to go through with Prolotherapy, good luck. And please keep us posted on how you are doing.View Thread
Thanks.
View Thread
Went to hospital the other day and they told me that my heart rate was barely in the 50's. I dropped from mid 70's to 50's. I can't imagine what my heart rate is when i have episode =/ My blood pressure was low normal. from what the doctor said is that she can hear my heart "trying* to pump, but slowly. If anyone knows anything please let me know. I am open to anything, cause I' have noticed that it is getting more frequent. It pisses me off sometimes cause I can't do anything to prevent it.
I go to cardiology 5/8/12View Thread
Please contact me anytime and I would be happy to tell you what your options really are.... Good Luck..
Michaela Wagie
Pain Survivor
snowshoesiamese@gmail.com[br>View Thread
neuropathy for two years, I have been taking hydrocodone 10/500
and gabapentin 900 mg 4 times a day. It barely touches the pain.
I have had every test done to find the cause, even had neck surgery
to no avail. Any suggestions anyone?
Thank you
NancyView Thread
So begins a three-part series in the Huffington Post by Radly Balko (http://www.huffingtonpost.com/radley-balko/prescription-painkillers_b_1240722.html ). Balko states, "Despite the recent headlines about the rise in sales of prescription painkillers, chronic pain is still significantly under-treated in America . There are a number of reasons why. For one, there's no diagnostic test to diagnose pain, so doctors must rely on patient descriptions of what they're feeling. That can be tricky, because tolerance for pain varies widely from person to person. Culturally, pain has also long been viewed as something we encounter and endure as part of the human condition. In many religions, noble suffering is considered pious. Pain treatment is also a relatively new medical specialty; it didn't have its own medical society until the early 1980s.
But the biggest barrier to effective pain treatment continues to be bad public policy, much of it driven by the war on drugs. Opioids -- morphine, oxycodone, methadone, and other drugs derived from the opium plant (or synthetically structured to mimic it) -- are the most effective way to treat severe and chronic pain. Emerging (but still controversial) treatments like long-term, high-dose opioid therapy have shown particular promise with chronic pain. Just this month , an article in the journal Science described another promising new therapy, in which large doses of the drugs delivered over a short period of time, shortly after an injury, may help prevent chronic pain from developing at all.
But pain patients and their advocates say the bigger problem is that drug control has taken priority over ensuring access to effective treatment. ... what ought to be a research-driven debate among medical professionals has been corrupted by policies aimed at preventing addicts and drug pushers from obtaining painkillers, not what's in the best interest of pain patients. Police and prosecutors now dictate medical policy."
Do you live with chronic pain and face difficulty getting proper medical treatment? Email radley.balko@huffingtonpost.com and include a phone number if you're willing to be interviewed.
Between 75 million and 100 million Americans experience some kind of chronic pain. Many live with it because they fear using narcotics, even though narcotics would enhance the quality of their life. Others decry the social stigma that they perceive will be attached to them by using narcotics. Just one medication added 9 wonderful years to my career. Many others desire to use narcotics, but cannot find a physician willing to prescribe them. These are the true victims of "the war on prescription painkillers." Because the government attempts to punish drug abusers and "pill mill" physicians, millions of innocent Americans with chronic pain are going untreated or undertreated.
Stay tuned for Parts 2 and 3 of this important article at The Huffington Post at the link provided above.
View Thread
I am 100 per cent behind you, it's overdue time for this to
change. Even animals get their pain treated even when they can't talk to ask for it, as humans, we are treated inhumanely.
There is something rotten in Denmark!View Thread
Thank you again .
DawnView Thread
Does anyone here use Acupuncture for these pain conditions? Does it help? Is there anything I haven't tried yet as far as you can tell?View Thread
In the study — published recently in the journal Science [Drdla-Schutting et al. 2012>, and further reported in the journal Nature [Frood 2012> — researchers at the Department of Neurophysiology, Center for Brain Research, Medical University of Vienna, report discovering new effects of opioids when given at a very high dose rather than continuously at typical lower does.
There has been some discussion in the literature that, by treating acute pain of various types quickly and aggressively, the chances of it becoming a chronic condition might be reduced. However, opioids are often avoided if possible as acute-pain therapy, and the current advice of "start low and go slow" when it comes to opioid dosing might actually favor in certain cases the development of long-term potentiation (LTP) that fosters chronic pain. Perhaps, what is most needed is higher rather than lower opioid dosing at the outset, at least for a brief period of time and, certainly, under safe conditions.View Thread
Your doctor works FOR YOU! If he doesn't listen to you-FIRE HIM. And, let him know WHY you are letting him go. Be factual and as unemotional about it as you can be. But first-when you go to your doctor, have your questions written down-ALWAYS ask him what the medication is that he is using and what the side effects and benefits are of using it versus other medications. Trigger point & certain types of injections ARE an effective treatment-TO A POINT. You didn't state what TYPE of back injury you have and what level of injury you had. Have you had a recent MRI (within the past year) that this doctor has reviewed? Have you explored newer treatments such as intrathecal pain medication delivery system? This is a method of delivering medicine directly into the spinal area via a pain pump. I was recently fitted with a temporary Spinal Cord stimulant implant and it worked amazingly well and am awaiting final approval from the VA to be fitted with a permanent one. I CAN'T WAIT!!! I can FINALLY see light at the end of the tunnel. It didn't take ALL of my pain away, but I was actually able to get around and entertain company that I had, sit out at the campfire and enjoy the outdoors for several hours every day for the whole week they were here. Something I haven't been able to do for several years.
These are all things that are available and you should be proactive in taking control of your own treatment. If your doctor is not being aggressive enough, call your insurance company and find out what you can do about finding a new doctor and how many visits they will pay for while you are searching for the 'right one'. Your doctor works for you. He makes alot of money from the treatment that he bills your insurance company for and he needs to realize that you are taking a proactive stance in your treatment. Keep a notebook or journal and take notes on what you talk about and what your treatment plan is. Your doctor-if he is serious about finding help for your pain-will respect you for taking your treatment seriously and will be glad that you are COMMITTED to getting BETTER!
When you go to your doctor with a plan of action-have a list of things that you are willing to negotiate on. List medications that have worked for you in the past and those that have not. List WHY they have not worked for you. Be prepared to COMPROMISE with your doctor as he is restricted in certain things he can & cannot do. Some doctors have personal or professional reasons. Ask him to start you at a reasonable level FOR YOU, until you can work something out that will work for managing your pain. Be prepared to work with him and he will be more inclined to work with you. These are ALL good ides for ANY doctor that you have to see on a regular basis. Doctors don't like to be pushed into a treatment plan without good reasons. LASTLY-Check your doctors background with your state medical board. If he has ever been disciplined for prescribing too many pain medications he will NOT be inclined to prescribe higher doses of pain meds. Actually-I prefer a doctor who will not over-prescribe, it means that he cares about YOUR HEALTH and does NOT want you to become another STATISTIC. He is trying to help you manage your pain without resorting to NARCOTICS that are addictive, hard on your liver and intestinal system, etc.
If you ARE serious about getting better-he will work with you. If he DOESN'T-FIRE HIM. There are certain protocols in place that pain management doctors follow to try to narrow down the area of your pain, the scope of your injury and what does & does not work for you. Just realize that MOST doctors are truly trying to help their patients and if you take the time to develop a relationship with him, you might just be surprised what a good doctor you have. Good Luck & keep trying-the right doctor is out there! It's YOUR Body! YOUR Health! Take responsibility for it's management & you will feel so much better for it!!View Thread
CaseyView Thread
But the law does nothing to specifically address the risks of methadone — by far, the state's number-one killer among long-acting pain drugs.
What's more, hundreds if not thousands of patients have been denied life-enabling medications, cut off or turned away by doctors leery of the burdens and expense imposed by lawmakers, according to hospital representatives and consumer advocates.
At least 84 clinics and hospitals now refuse new pain patients, and some have booted existing patients, The Times found.
The growing legion of untreated pain patients has become so troublesome that some clinics, like one in Everett, post signs that ward off walk-ins: "We do not treat pain patients."
Across the nation, the annual death toll from prescription painkillers continues to escalate, more than tripling from 1999 to 2008, according to statistics that federal health officials released last month.
Confronted with this epidemic, health officials in other parts of the country have been eying Washington's groundbreaking law with special interest, says Dr. Lynn R. Webster, medical director of a Utah pain-research center and a national expert on preventing abuse of narcotic painkillers.
But Washington's approach, he says, is not a model worth emulating. He told The Times: "If other states follow suit, many patients could suffer needlessly."
Coupled with new rules passed by medical licensing boards, the law requires practitioners to document patient backgrounds and track behavior; conduct random urine screenings; and — most important of all — consult with a pain specialist if daily doses exceed the equivalent of 120 milligrams of morphine. Cancer and hospice patients are exempt, as are post-surgical patients and those with pain from sudden injury.
Washington has at least 1.5 million people who struggle with chronic or acute pain, the American Academy of Pain Management estimates. The state has thousands of practitioners with prescribing privileges. But as of last month, the state's sanctioned list of pain specialists numbered just 13.
The state's new rules, passed by licensing boards, give a nod to methadone. Yet, at least 2,173 people died in Washington by accidentally overdosing on methadone between 2003 and 2010, a Seattle Times analysis of death certificates shows. Among long-acting painkillers — a group that includes OxyContin, fentanyl and morphine — methadone accounts for less than 10 percent of the drugs prescribed but more than half the deaths. The drug has taken a particularly dramatic toll among the poor, who account for about half of the fatalities. To save money, the state steers Medicaid patients and recipients of workers' compensation to methadone, one of only two long-acting painkillers on the state's list of preferred drugs.
In summary, the State of Washington is restricting patient access from the safest and best array of drugs for chronic pain; moving them to instead to the cheaper methadone, which is the largest single drug contributing to accidental overdoses. The State has at least 1.5 million people who struggle with chronic or acute pain, but only 13 approved practitioners authorized for chronic pain management. Lost in this gigantic mess are those 1.5 million patients who will find it difficult, if not impossible to obtain their prescriptions. Forced to go without their medication or to use one that doesn't help them, these patients will increasingly turn to illegal drugs, theft, forging prescriptions or, sadly, suicide.
Who will help the 1.5 million chronic pain patients of Washington when their proven medications are no longer available and methadone fails to help? Who will help the families of methadone patients who accidentally overdose on it?
Read the entire article here: http://seattletimes.nwsource.com/html/localnews/2016994769_silent12.htmlView Thread
NEED HELP PLEASE......View Thread
Have you been checked for Chosteochondritis? I too was diagnosed with asthma for a raw chest pain. However once I saw a different MD she asked for a chest x-ray and found chronic inflammation of my costal cartlieage.
Just a thought,
TView Thread
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