I had to get a different brand of fentanyl this last go-round (Mylan) & it sends me into awful withdrawals about every 40 hrs. I don't know what to do about it but hope I can turn it in tomorrow to my pain doc & get a different script to get back to my old brand (Sandoz).
Did your doc offer anything to combat the withdrawals?
It's nice to see you are so hopeful & capable of maintaining such a positive attitude-that's refreshing. I have been trying to look up but so far the physical is disrupting any attempts.
Thanks for the encouragement. I was asked to get off the fentanyl in 60 days. That was about 2 weeks ago-a slow taper makes more sense. I worry about my mental state because of depression history, and my father took his life after dealing w/ chronic pain for many years.
I have no problem coming off the med's as long I get relief from the prolo.
I'm just a bummer tonight, sorry. But will keep in touch. Btw, I'm receiving the same prolo methods.
Take great care,BView Thread
Thanks Charles. My MRI a few years ago revealed a slight disc bulge at L-5 S1. Steroid injections yielded no relief. What's most disheartening is that I have no diagnosis. Just had an MRI w/ contrast to rule out a labrel tear in my hip. If I could find a good doc to give me a diagnostic pudendal nerve block, I would be thrilled.
I'll keep you posted. So far I am struggling. I also didn't appreciate the psyche profile the doc gave me my last treatment. I think he may be of mind that narcotics interfere w/ emotional healing, another contributory factor in the mind-body healing connection which he also deals with.
My best, BView Thread
Hi Livea, I responded to your post but it didn't show. I have been experiencing pretty intense pain & haven't taken much time to write. I was told stretching is a big no-no. I take a plethora of supplements to help along w/ treatments. Also take testosterone, progesterone, DHEA, hydrocortisone(energy), prolo max, and looking into diet changes. Its all so exhausting.
I tried prolo w/ a different doc a year ago & it made my pain worse. This new prolo doc knows what he's doing but since my diagnosis is foggy I think he may be a bit overconfident in treating me.
It was the prolo before & my tolerance that landed me w/ such a high dose of fentanyl in the first place.
I hope you are ok and have great results. Please keep me updated on your progress.
I still don't know how to cope w/ these intense pain bouts, just from being at rest, and managing a child. I feel for you being a single parent- that has to be a challenge in itself.
Best of luck, BView Thread
Thanks for taking the time to write Charles. I have been in bad shape since my last treatment. It brought about the worst pain I've ever had. I can't even describe the depressive thoughts accompanied by the pain that have contributed to a lack of ability to write. And I'm still taking 75 Mcg's of Fentanyl. When the levels taper down, the dark hole appears- you may be familiar w/ that.
Because no doc has been able to offer a true diagnosis, I cannot say whether or not this treatment will work. It feels like pudendal neuralgia, burning in the leg, SI joint pain. Everyone has DDD to an extent & mine Doesn't seem significant. I slipped off my bike pedal & slammed onto my bike seat while cycling 6 years ago & there was a slow progression of sciatica-like symptoms. My pelvic floor will not relax, my ischial tuberosity is tender, my pubic symphysis is tender, my piriformous is compromised; myofascial pain along the hip, etc. it feels my ligaments are bunched up, cross-threaded from my sacrum to my pubic symph. That's the best description I can come up w/ so prolo makes sense to me in most regard.
I have been given a list of resources from the prolo doc (though outdated) that I have yet to pursue because of my current state. I can't imagine dealing with the amount of pain I have had after treatments w/out Fentanyl & don't like where my mind goes when levels taper.
My PM doc is shaking his head but focusing on titration.
I'm now left with the "don't you want to get better, (yes) then get off the narcotics". It's ok to have muscle relaxants but the prolo doc wants me off fentanyl.
I tried asking the other pm docs on the pm board but maybe they havent seen the question, or simply don't know.
I appreciate you taking the time to write-I value your opinion. I don't know who else to ask. My husband trusts what the prolo doc says because he has been doing this for 20 yrs, and I guess he expextcts me to have the same faith-a rift exists there too because we have run out of treatments options & my situation weighs on us heavily.
If I go down the path of getting off fentanyl & the prolo doesnt work, it's unlikely that my PM doc will prescribe it ever again because of pressure he is under in new hospital clinic setting. He was only continuing to prescribe it to his older patients when he made the move a few months ago, but told me the DEA was not allowing him to prescribe the strength of med's I take anymore because of their "addictive nature".
I call BS on that statement, yet my predicament still remains.
Thanks again, sincerely, BrenView Thread
Hi Charles and everyone else.
I haven't written in ages and was the one who created this forum. Still dealing with pain but trying my damnedest to get things under control.
Calling on you Charles because I have faith that you can help.
I'm trying another round of prolotherapy w/ a new doc who is excellent in his profession. Will go into greater detail as needed in the future, yet just want to get a feel for your presence here now.
I'm on 100mcgs of Fentanyl & roxicodone for bt med's. He wants me off narcotics in 60 days "because they suppress the bodies immune system and will inhibit the body's ability to heal". I need proof/studies of this as I have trouble believing this is so black&white. I am willing to try this (would love to get off fentanyl) but want to be sure I won't want to kill myself in the process. I'm almost being literal.
I hope you are well Charles, and others. I'm just scared out of my wits as I don't want my family to suffer- my suffering is inevitable.
Thanks for reading, BrenView Thread
Missietl19, I want to encourage you to seek out a physician (primary care first) who will explain to you the signs of early alzheimers. Don't be afraid because if caught early, there are many things the doc's can do to slow the progression down - at least that is what I heard on Doctor Radio...love that channel on Sirius 114 or XM
I have never taken methadone so I cannot relate to the memory loss regarding that. How old are you? How many other med's do you take?
I have problems w/ memory loss due to the Neurontin and sometimes oxicodone I take. It could just be a side effect of the medication; because it sounds like you were really focused during your husband's recovery, and once things slowed down, you let it all just flood your brain.
Maybe you should find someone to talk to? I know that I need to as well - but I am finding that the therapists in my small town aren't very helpful - that is according to my GP....interesting. Take great care and update us on your progress, OK? BrenView Thread
Sorry to pass judgement, but your original post just made me think about script forgery. Thanks for clearing it all up and speaking honestly about your interest in education. However, I doubt anyone here will be able to tell you; so maybe you can ask the doc on your next visit. hope you are well, and hope you stay well, BrenView Thread
Hi Annette, how are things going now with recovery? I didn't know what kind of surgery you had, may I ask? I haven't been online much - especially on this site, but I was happy to check in and see you here. Take care, BView Thread
altering your prescriptions is a federal crime = you will get busted
I haven't heard of anyone wanting to impress their physician, so in your case, it appears you are trying to alter a prescription. I hope to disuade you because you WILL get caught; if not at first, eventually. They take images of each script and the DEA has access to the database that ALL pharmacies contribute info to (concerning controlled substances). It is the pharmacy's responsibility to report false prescriptions to their local law enforcement agency - then it will be dealt with on a federal level.
If you truly were wondering how to "write" using their lingo - go to med school, or get into pharmacology.
I HIGHLY discourage any members to post their "interpretation" of such script ----
hi there Pixi, Sorry I haven't gotten back to you. I can't find enough time in the day to come to the board the majority of time. I'm glad you found some insight in what I offered, and hope you are successful your next doc's visit. Please let us know how it goes and if you need some support. I know the changes you have had to make in your life can feel overwhelming. I moved at the time I was "trying" to work, but if I had stayed a little longer I am sure they would have dismissed me for absences beyond my control. I am even afraid to call back to get a reference from them because I barely worked for them the last year I was there. Pain will suck you dry: emotionally, physically, mentally...well, you get it. Just hang in there and rely on the element of distraction as much as possible. Treat yourself from time to time - good movie, great book, blast music in an otherwise empty house, eat a sundae or banana split, take a walk to the mailbox and back (if you can) over and over....my point, find what works for you and what makes you feel better. Many people's pain is a result of an emotional response to the physical pain. I find that if I think about it too much, it hurts more. If I get sucked into a movie, I am more apt to ignore it. Best wishes, and let me know what's up, BrenView Thread
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