I found out a few days ago that I have RA, I am just devastated. I also have Sarcoidosis, rapid cycling bipolar disorder and only 30% kidney function due to total renal failure caused by lithium toxicity , I arrived DOA at the hospital just a few months ago and no one has any idea what happened to me. However I am very restricted as far as drugs go.
I want to take dilaudid for my extreme pain, I have an enormous tolerance for drugs so I have to have a good drug. I hate oxycodone,, vicodin does not work - I have had dilaudid with an IV and it was the first drug that not only took the pain away, it really calmed me down but I have no idea if doctors prescribe it ? Does anyone know ?
I find it strange that I have had dilaudid 3 times via IV in the hospital, why would docs be reluctant to prescribe it. Do you know why ?
My psychiatrist is listed in the magazine BEST DOCTORS IN AMERICA. and he has me as # 1 or 2 of the worst bipolars he has ever seen. It has been an epic journey, the other issues I have is an enormous tolerance for drugs and quirky chemistry.
The two issues that cause all the med problems are that they might interfere with my bipolar drugs, I can never miss those.
The other nightmare occurred when I arrived DOA at the hospital in total renal failure.due to lithium toxsic It was hit or miss for awhile but I made it even though all the docs admitted they thought I could not survive.. I now have 30% kidney function so I have to be very careful. In reality, I am really shocked that doctors I consider incredible will order a test that would kill me.
I just went through the nightmare from hell after having surgery on a gland in my neck.. I was in the medical field most of my career so at least I have info.
I had the surgery and they asked me to stay overnight so they could monitor my kidneys. MD Anderson is the best hospital in the country so I was glad to be there.. The next day I had 102 degree fever and I spent the next six days in the hospital. My next checkup was the following week, the infection was triple what it was before, so back to hospital I went, more antibiotics, Then 2 more infections which were finally cured with massive doses of Cipro. I have to say that MD Anderson is where I would go.
I'll tell you a secret but you have to keep it quiet. As I was leaving MD Anderson they handed me a bag with all my info as well as my medication.
When I got home I looked through the bag and there was a very large container, exactly like the ones milk come in. I took it out and almost passed out, it was a gallon of Oxycoden, I had no idea what to think ? Then I realized that since MD Anderson is the best cancer center in the world so giving me meds was no different..My obnoxious hubby wondered how much we could sell it for. My Irish Catholic brain knows that if you even think of a bad thing a nun will be coming LOL.
Thank you so much for your post, I really need support as I have no friends here. I'm also learning a great deal.
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