I wanted to also say one thing about methadone. When you find the right dose for you, you dont have to constantly change your dose because of tolerance. You get to a dose where it manages your pain add a little breakthru if you need it but in the 5 years in Montana I stayed at the same Roxi dose and methadone dose the entire time and I kicked the two by myself and just tapered myself down. I kicked Roxi first and then tapered my 2 months of methadone I had all the way down to two and half milligrams and then jumped. Went on Norco after a month being off all meds due to pain and having to raise a chilld but at least I tried...to keep my pain meds at a minimum because i didnt want to become an addict and I knew if i kept on and thinking my meds were not working, my healh records allowed for more than 10/325 norco 4 pills a day. So I stayed and suffered at that for a year then found the shmo out here with the dilaudid and morphs, and now my doc in Cali and hopefully the one I just sent my whole life to. otherwise its cali every month. i wont give him up ill find a way to make it work. but please I wished I saw more patient determined about what they think they deserve from their doctors and what kind of level of care no matter your insurance,medicare, medicaid or nnone for that matter. they are your clients.....its much nicer when you hold the deck. just demand whhat you want and if he isnnt gonna give it to ya, tell him he's takin it out for free and you will get it done elsewhere. i tend to get bitchy when it comes to hard earned money going to doctors who think they can play g-d with your life. We are the little guys who worked our asses off breaking every g-d dam bone in our bodies so they can party in the hamptons? live on an island? (new york) have offices the size of a 3 bedroom 2500 sq ft home? No. Well you know..i think i really did take this a bit too far here but I get so angry and with all the personal stuft going on at my home (and you will know one day how Ii got to here and why im kind of angry psycho, I really needed a vent and hearing about your doc just took me off and running. I apologize for being such a bully..lol. Just do whats right and stick to your guns ok? Best of luck to you. sorry again for my rant....guess I should have been 7yearsofpsychobabbleandpainclinics.. take care.View Thread
Tofu,, I dont know your what is going on and reallyhave not been able to figure out how to navigate this place yet, but can you tell me whats going on with you? Savella, Lyrica, make me think you have Fibromyalgia. Do you have any autoimmune illness? Back issues? Joint pain? Dr. Arthuritises?
So in the state of MT. 13 meds for 5 yrs. Lyrica-puffer fish with cankles, savella? what did I take that? I didnt know it did anything. Plaquenil for 5 years? not much of anything nd whole bunch of other meds on and off, try this , get rid of it, i gain weight well we cant have that, gone...it was hit or miss ith me for 5 yrs at the same PC. lots of docs who all had heir own opinions about my care
My new doc this time since my separation and living in Cali for the time i did, a PCP doctor who really cares and looks at every symptom, very thourough with his exam and note taking, and LISTENS TO ME, i cant tell you how that makes me feel , this is why I love him and hate to have to give him up but cant keep flying out there. Anyhow...he has me on a combination of Lamictal, prozac, klonopin, flexeril as needed and it has settled me down. I dont know if its the combo but its working for me right now and has been about 3 months knock on wood. I also take methadone for pain 60mgs a day. I do need something for breakthru but he is kind of reluctant because he knows how many different meds I have been on and have actually become hyperalgesic from some of the short acting and really he's right, we are trying to make a go of this with as little meds as possible. For my fatigue he gives me a small dose of Provigil (which they give to Narcolepsy patients and are actually using it for persons who had cocaine and speed addictions) but I have such bad sleep apnea with hypoxia that it really helps with the 20mgs of prozac I take to help me stay awake all day and try to get on some sort of regular sleep schedule so I dont sleep 15 hours a day cuz I would. I take Cartia, Clonodine, Klonopin, Provigil, Methadone, Flexeril (gives me 30 a month, I use like 10-morninngss are my most stiff times and hard parts of the day), prozac, Lamictal, Lasiix for when I swell up and get those cankles now and again and I have some pills left over from the old pain doc before I left for Cali so if I need one of those on the real bad days I have them...Morph 30mgs long acting. I hardly take them tho....for emergency use only. I have not battled this for 7 years and not learned all the tricks to the trade..LOL Currently I am looking for a new reputable pain doc in my state and I hope the one I sent my records to will accept me. Why am I talking about me??????????? I do that sometimes, just smack me ok?
Do you like being on methadone? Can you stay on that? Its long acting, few side effects, safe if your not opiate naive and you take properly and keep a heallthy fear of it....your getting it prescribed out patient and dont have to use a clinic to get it because of docs not prescribing it as much as before when all the deaths happened once kids got a hold of it and were taking doses of it being opie naive. Methadone for me has been the best long acting pain reliever for me due to all my illness and back pain and head pain. To add to the injury I already had going I was nailed by a drunk driver with my son 11 miles from home after a 3 day drive from chicago to Montana by a drunk driver with no ins. I was on methadone 60mgs and 120mgs of Roxicodone for breakthru. that was 5 years...kicked that to re-asses pain, went on Norco for a year, which was utter hell but I was moving all over the place and was not settled,moved to rockys and doc put me on Opana first,, then i could not afford that with no script coverage so he put me on dilaudid and moriphine I got 8 8mg dilaudids for breakthru pain a day and I was on 120mg of Moriphine long acting so 4 30's a day till I got sick and tired of just being handed pain pills and getting no help.View Thread
I hope that your not comfortable for fear they put the stimulator not in correctly. I have always wondered about those. Hey listen your still taking meds, why not just get a med pump instead, you go in once a month and they fill the meds in the pump and get a little something for breakthru and move on with your life. this is placed in your side/stomach and they fill via needle so no infection can get in and they change it I think every 3-6 months or so...not sure but can ask my friend. He has RSD so bad and a hernia and other problems that if his doctor never suggested the pump to him he probably would be dead today along side his wife. (his wife died right after putting on a fentanyl patch aand was heading to docs office she didnt feel good and she died in his arms on the porch not even out the screen door yet) but this pump has given him some quality of life and he can get around now decent. I was considering a stimulator but even hearing one bad thing, I am gunshy...lol Id rather have the pump.
I would call your doc man and just tell him this is not working for you and you cannot be uncomfortable, t his was the point, for you to finally have some relief...and your not getting any, in fact tell him your getting more pain. He'll get you in...or just walk in and demand to see him. you paid big money for this...dont let him walk on ya. best of luck to you. I am new here so still navigating my way around here. I cant even find my first post...lolView Thread
Whats horrible is in my state, i know of two doctors who handout dilaudid and moriphine pretty freely. I know a lady who gets 1000 8mg dilaudids a month. For what I dont know but yeah there are 2 doctors that I know of that like to hand it out. Its very sad because you know these two clinics are in it for the money and do these people really have pain issues that warrant that much medication unlless A they are selling it or B abusing it. Soon these doctors will be caught as they dont do any kind of exam , you fill out a paper , put your pain level down and doc comes in with your scripts. No help is given to the patient whatsoever. I am so tired of clinics like this. Its all I can ever seem to find. (except for my doc near my sisters but he's a flight away) Anyway I just wanted to let you know there are docs out there still doing that crazy prescribing and who will eventually ruin it for the real patients who need helpView Thread
I have a diagnosis of Lupus SLE, Facet Joint Arthritis, Nerve impingement in the C-spine from an MVA in 2009 incl. a calcified falx in bbrain. I have Fibromyalgia, plantar fasciitis, several bulging discs some bordering the thecal sac. I have neuroforaminal narrowing and congenitally short pedicules with some stenosis. I was dxd with early stage Osteoarthritis all over last year along with Occipital Neuralgia aand papilledema and had an emergency spinal tap done to relieve pressure on my brain. I am a 43 year old MOM of a 7 yr old boy and dont have time to be this ill now that my marriage has fallen apart due to me being ill and him being an ass/alcoholic who could never understand why I was in pain. It was like he never believed me because I dont look ill. I have been on several pain meds , lots of different drugs int he past 7 years, I feel like my symptoms have been treated but we are going nowhere on the illnesses. I know there are no cures but come on, I should feel somewhat better than wanting to be in bed. I know where I live is part of the problem as the climate is too cold and the elevation too high (also have sleep apnea and need 3 liters of 92 with my BiPap. Been to so many doctors, specialists, I dont know who to see anymore, if I am on the right meds any longer and really feel like all there is left to do is make me feel comfortable and do w hatever I can with my son and move to a warmer climate. I feel like I have hit bottom here. i want to find a good doctor close to home (have a great one near my sisters when I first left my husband but thats a 2.5 hour flight each month...gets costly) and the ones here are all 70 miles or more away from where I live but thats better than flying. I want to find someone who is willing to start from day one with my records and go thru them with me and then give me his opinion on what to do and where to go before I just get into that "give up" stage. I cant for my son but damn some days are so effing hard I cant not cry all day long or get out of bed. Well I dont want to go on and on, this is too much already. Thanks for listening to a newbie and I would love anyones opinion if they are willing. thanksView Thread
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