I had a colonoscopy in Jan, 2012. Doctor said everything was "fine". I went home and immediately began to "collaspe". Severe pain in my entire pelvic girdle. Hasn't stopped. My GI was useless. He took out a Bible and started reading Sciptures. I have been alone with medical care now. I already have a "Church"; I wanted help from the pain. No answers.I am living in a "nightmare". Been to ER's, hospitals, etc. Nothing. MRI shiwed "nothing" according to the neurologist I saw. He couldn't wait to get me out the door.
I am so desperate for help. I had to go on Internet. Closest match was Interstitial Cystitis. Six months later, no better. Dr. was worth nothing. Never returned calls or listened. Unfortunately, almost every gyno/urologist is in the same practice as she is.
I am so tired of just "existing". I looked forward to summer, but now I can't do anything, so it means nothing anymore. No garden, no beach. Nothing. I've been deserted by some family members, and all friends. The Dr. wanted ME to find "Pain Management Doctors" for her. I don't know... SHE'S the doctor, not me. I've gave up on her after about 3 months. I am devastated by the "lack" of care in RI. I missed my own son's wedding. I begged her and went to hospital ER twice. "Go see your doctor" was the answer. I am in so much pain, I want to die. It's relentless. It could be Interstitial Cystitis or not... I am so depressed. Beyond depressed... I found one doctor, but the appt. is in Sept. I can't walk now. My pelvis and adductor muscles (between your legs) hurt constantly. I barely sleep. The pain wakes me constantly.15 mins-1 hour is it. I went to another dr. I told them on phone what I needed. Do I have IC or not? Only real answers were from the ICA. I found out that there is NO specific test. She hurt me just probing manually. Hunner's lesions are the ONLY difinitive diagnosis, but they only appear in 10% of people with IC. So, probing me more is useless. I feel very strongly that this is no cooincidence that this began immediately after colonoscopy. The pain is beyond words. Mix that with Fibromyalgia... I am useless. My Primary Care Physcian is awful and accused me of being "an addict". I cried right then and there New "policy" he says. I may as well just die. There isn't one doctor in RI who has empathy or sympathy. Thanks to all the deaths from celebrities (RIP), stronger sanctions are being taken. I never even got "high" in my entire life. I am lost. Six months after the procedure, and nothing is better. I take probiotics and Miralax. I either use too little or too much. I am religious, which has no bearing ohn this, but I pray constanly for God to show me the "way". I cannot live my life like this. I'm 57. I had planned to take my grandson places, and do things. Now, I can't even see him. I am bedridden and don't want him to see me like this. Both my children neither bother with me or my husband. It is hard to stand, sit, etc. Icouldn't "walk the line" foot over foot w/ Neurologist. I could before, now I can't balance. So many people try so hard just to make it through another day due to illness. But, most doctors don't care. I've yet to meet one that does.I don't know what to do, anymore. I'm here, but not "living". Medical bills are through the roof. I lost everything I ever treasured; which was my family. I see a psychiatrist to help cope with pain. There is no doctor in RI that is actually "Pain Management" Most call themselves that, but all I have found and called just do cortisone shots. Not being able to walk is killing me. Cnstant pain is just as bad. I cannot hold on much longer. My husband's getting "care-giver" burnout & yells at me constantly. My life is over. Insurance requires I go to only places in RI. I don't know what else to say.. Please pray for me... God Bless you all.View Thread
This is probably in the wrong place... But I have been ill for almost half my life... I can't navigate. I had some people say some rather "mean" things... There's nothing I can do if you choose to hurt me and accuse me of things that were either mistaken or I posted wrong...
Makes no difference, but I ythank God for the "good" people like Bren_Bren & Anon...
I'm sorry, but how could anyone who is suffering say such things. I hope you all get better...View Thread
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