You mentioned Prialt in this response. That is the first medication I had when my pain pump was implanted in 2007. I gave it 3 months and I was so miserable. My legs swelled up and were teribbly painful and I went on HCTZ which helped with the swelling, but not the pain. My thought processes were all mixed up and I still had my intercostal pain and got off of it. Another patient with this dr. had the same results, and the dr. isn't using it anymore. I have Morphine and Bupivicaine in the pump and am experiencing pain at the pump site. My only choices left in the pump are Clonidine and Prialt. I tried Clonidine twice and both times had terrible side effects. I don't want to try prialt again. The pump pain seems to be due to at T9/T10 there is a right paracentral disc protrusion which indents the thecal sac and encroaches upon the right neural foramen. I had a disco gram and am waiting on the results as to wear the leak is. I would like to hear from people who are on prialt.View Thread
Hi Grace, Did you find somewhere to volunteer? Please keep me posted as I know you will find it rewarding. The school I volunteer at has a Grandparents day yearly and the first year (they are in year 3) had to ask those already there to leave early as so many people couldn't find parking places blocks away and it wasn't fair for them to be left out! There are 800 students in this elementary school and very few volunteers. I look at all the grandparents attending and if each one volunteered only 1 hour a week, the teachers would be greatly appreciative, and the students would benefit from the extra TLC. I'm not sure of your age, and don't want to offend you, but AARP has a web site and you put in your zip code and they will give you a list of places looking for volunteers. I am going through a difficult pain period and procedures to decide what is causing the unbearable pain at my pump site. Surgery looks as though it will be an answer which weighs heavily on my mind. It is times like this where volunteering is a real plus in my life.View Thread
There are lots of places to volunteer and they are so happy to have you. I volunteer at a school as a helper to a 5th grade teacher. I'm there 9am-12noon and sometimes 1pm, but my pain tells me that is too long. I go once, sometimes twice a week. I'm also President of the Board of Directors of an epilepsy agency, and Treasurer of 4 epilepsy agencies. I visit legislatures in our district educating them about epilepsy and also go the Capitol in Tallahassee, FL. and give presentations. I am active in my church and volunteer for activties there. I am awaiting for my FBI background check to clear to volunteer at the Senior Neighborly Center which is across the street from me. Short commute and I can walk! I'm artistic and will be helping with crafts, and they also need a piano player as they are using CD's. Volunteer work is nice as you set your hours and the time.If you have had a bad night due to pain and need a little extra time in the morning before going in, they don't mind. I find 9-10am to start off in the morning is good for me. Even if you volunteer for an hour, that place will be so appreciative. People always tell me keep busy and you will forget your pain. Those are ones who have not walked in our shoes. My nerve damage is the intercostal nerves between my ribs and breathing causes pain. Lying in bed all day feeling sorry for myself I would have the same kind of pain as if I am out and about. I don't cry over spilled milk. I have been dealing with chronic pain for almost 9 years and keep a smile on my face, and humor helps alot and 3 beautiful grandchildren, one who asks me if I need ice for my owie! SPCA is a good place to volunteer. I decorated their building at Christmas and helped serve at their donor dinner. Ask friends and family, someone will have a suggestion. You also will benefit from it as I sure have. Keep me posted what you decide to do.View Thread
Hang in there and be your advocate and don't feel it is wrong to disagree with the doctor. It is your body and you know what is right and wrong. If he says it's all in your head, change doctors. If you are on lots of pain medications it is good to take a person with you to act as your advocate as I very well know the medications afffect my concentration. Two doctors caused my nerve damage so I saw 4 doctors who wouldn't treat me due to their colleagues making the error. I finally found an excwllent doctor who takes patients like me and we have disagreed at times but he listens to me and I will stay with him even though his office is 73 miles round trip. I have a pain pump so I go regularly every 54 days unless I need to see him earlier.I stay positive, volunteer for 5 agencies, and have a goood sense of humor and always a smile even with an 8 on the pain scale. Good luck.View Thread
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