I have now had four acupuncture treatments. The first one resulted in surprising success: My toe movements stopped for close to two days. I was hopeful going into the second session, but nothing changed. Same for the third session. At my fourth appointment, which was the other day, I did get some relief but only during my treatment. My practitioner is going to do some testing on me, for nutritional deficiencies and heavy metal toxicity. Meantime, I am supplementing with magnesium and iron. I'm not sure how long I will continue to try acupuncture. On the plus side, the procedure itself is painless and actually quite soothing and relaxing.View Thread
Sorry it took me so long to respond. I haven't been keeping up with this community as I should have. What other diagnoses are your doctors considering? Yes, it is very debilitating. I have very sore feet most of the time, and the constant movement is maddening. I hope to hear back from you.
I have been having more pain than usual in both feet, although my PLMT is only in my right foot. All the shopping and running around these past few weeks seems to have taken a toll. Hoping to hear from someone out there who has experienced this strange syndrome and can offer suggestions or just commiserate. View Thread
Hello to everyone who finds this new community! I suffer from PLMT, and I am looking to connect with others who have been diagnosed with this strange and rare disorder.
My diagnosis came after tens of thousands of dollars of testing--MRI's from (literally) head to toe, plus blood work, and EEG, an ultrasound of my foot, and a nerve conduction study. The neurologist who finally diagnosed me did so in ten seconds without even looking at the stack of test reports. All he did was watch my foot. He was not particularly hopeful or helpful. He suggested Botox injections as a way to control (but not cure) my symptoms. That was three months ago, and I've not yet made the decision to go forward with that.
Although I do have some pain, it is not disabling. But the constant movement can be maddening. I would love to hear from both fellow sufferers and from those in the medical community who may be able to shed some light and offer hope. Almost all the literature I have found online is scientific and not for patients. Perhaps together we can find answers and bring more awareness to this condition.View Thread
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