hi I can tell you in the USA pretty much nothing but the whole drug thing. I take a lot of drugs, ex. 600mg Lyrica, Cymbalta, Methocarbanol 3 x's a day, Etodolac 2 x's and of course hydro-codon 7.5-325mg 4 x's a day. if they can't figure it out they figure they can keep you numb. SorryView Thread
my symptoms began in late 2007 with lower back pain and my right leg/toes started getting numb. I had back surgery in May 2008. the Dr told me I would get the feeling back in my toes within 6months , if not by then it was not gonna happen. it didn't happen and has only gotten worse. I now officially have neuropathy in both feet and legs. the right is much worse. the pain is always with me. I try and explain it like this " imagine you were to wrap your legs in twinkle lights, and every time they twinkled it was a ache or pain. the pain can encompass my entire leg from hip joint to toes" sorry for the bad news. can I ask you if your Dr has diagnosed PLMT or just talked about it? I can't even find a Dr to talk about it. I've even emailed and called the office of a Dr Mhoon at Duke University, who wrote a paper on PLMT. he has not answered my email or called me. I am in Las Vegas and even told him I was willing to come to Durham, NC. May I ask you who your Dr.is?View Thread
Hello, my husband found this site while searching for an answer to my PLMT, while PLMT has not been diagnosed by a my Doctor. I have all the symptoms. I did show the case study publication from the Mayo Clinic to my family Doctor and she said it sounds spot on. I take 600mg of Lyrica daily, 60mg Cymbalta, Methocarbanol, Etodolac, hydro-condone and still all my Doctors have "written me off" there is no more they can do for me. I have had both hips replaced, my left knee replaced, a laminectomy and a spinal fusion. I live in Las Vegas and have even gone to UCLA and that Doctor gave me the "it could be Fibromyalgia" I am at a loss as to what to try next. One Neurologist saw my toes twitching and said out loud "I wonder what that is" I am nearly in constant pain and while the meds help a lot I don't want to spend the rest of my life living on these meds. thanks for letting me let off some steam and please keep us all posted if you hear of any advancement in treatment. I will do the same.View Thread
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