I bought them online, but I can't remember exactly where. I'm pretty sure that I got them from a yoga store. Try googling "yoga socks" or "yoga toe socks" and you should be able to find them or something similar. Good luck!View Thread
My doctor is Jacob Sage in New Brunswick, NJ. He did, in fact, diagnose me. It took ten seconds. Then he said, "Well I guess I should examine you." He was very nice. I had all my test results and he didn't even look at them.
I was in contact with Dr. Mhoon also, and he sent me a copy of his paper. I could send to you--not sure how to do a private email off this site. In fact, the article might be of interest to everyone here because it's a study of lots of patients over time. I guess I am very lucky because the little pain I have is manageable.View Thread
It's pretty rare. I can't find any statistics on it, though. My neurologist is a movement disorder specialist affiliated with Rutgers University and the University of Medicine and Dentistry of NJ. He says he sees about one or two cases a year.View Thread
I have not had any issues yet with my hands, but I have read that it can happen. I get the squeezing sensation in my toes that you describe. As soon as I move the toes, the feeling vanishes. It's very strange.View Thread
My PLMT began in my right foot just under two years ago As I've mentioned in other posts, I am relatively pain-free. About six months ago, I began to notice similar movements in my left foot. I would say that the frequency and intensity are only about 5% in the newly moving foot. What has anyone else experienced? Both feet? One foot? If both, did they start at the same time, or did the second foot start later?View Thread
Yes, it's a relief to get a diagnosis, albeit one of a chronic condition. Is the pain that bad that you cannot work? I have twitching toes and achy feet, but very little leg pain. I am lucky, I guess. I've had this condition for going on two years.
I'm curious: Why is your doctor ordering an EMG? You have your diagnosis. Also, would you share with us your treatment plan once you get it? There are no treatments that I am aware of, other than Botox to stop the twitching. Maybe he is referring to pain management? I have gotten some relief with Neurontin. It seems to help with the movements to a degree.
I started this group about six months ago. Since this is a rare condition, there are only a handful of members. Can you tell me how you found us?
Good Lord. Eight years! I'd love to know your secret of ignoring this annoying condition! I find it horribly distracting much of the time.
I'm glad you found this community! I was afraid they'd take it down because there are so few of us here. I wish there were a way to get the word out. It's such a relief to be able to "talk" to people who know what this is like. I'm glad the BFS post led you here. I started out on BFS, and I do suspect other BFSers may in fact have PLMT.View Thread
My doc suggested Botox also, but I have some reservations about it. First, it's painful. Second it's temporary. I think I'd get so depressed when the movements returned. The other thing is that they have to numb up a good chunk of your foot to give full relief, and that could affect your gait. What if that happens? You're stuck with it for three months. What is Newpro? Is it a similar drug? Can you let us know what you decide to do?
Yes, it's very stressful and distracting. I had a zillion tests but thank goodness no spinal tap. All my tests came back fine too. I started with the right foot. After about a year and a half, the left foot started as well, but way less. My pain isn't bad, just mainly aches. I did have PT, and they said my balance was off also and gave me some exercises to correct it. That has helped a bit.View Thread
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