Glad to find this group! I hadn't done an internet search since I was first dx'ed about 2.5 years ago. I developed PLMT after surgery on my right foot to repair a torn tendon. It has really affected my life, unfortunately. The pain never goes away, but it does get better or worse at times. Right now it's in a "worse" phase...hence the google search! I was really glad to see the suggestion about the toe separator -- went out and bought those yesterday and I was skeptical bc my toes already spread, they don't have a problem being together. But it definitely gave me some relief while watching TV. I also realized yesterday that biking is a good distraction -- something about the constant pressure of my foot on the pedal either stops the movements, or keeps me from thinking about them. I have got to try to simulate that with some sort of footstool while sitting at the computer for work.
I have tried Botox twice. The first time it seemed like it helped some. The second time the shots hurt a lot more (the neuro said he though it's because my nerve was repairing -- also had nerve damage during the surgery), and I don't think it helped. I may try them again sometime, but they were not the great cure I was hoping for. It takes up to 2 weeks to see the effects so you're just waiting to see if it will work, and then you have to get them every 3 months if they do.
Let's see, what else have I tried... Acupuncture -- hard to say if it helped any, but lying there without any distractions is the worst for the pain so it wasn't worth it for me.
Neurontin -- made me psycho. Not sure if it helped the pain any, but after screaming at my kids (which is not like me), it wasn't worth it.
Voltaren gel maybe a little, but could have just been the rubbing. Flector patch - made me nauseous which is weird since it's the same med as Voltaren, I think. I am really sensitive to meds, though.
Lidocaine patch -- I get a little relief from wearing this at night.
I will have to try heat and ice.
Yesterday I felt like stabbing or shooting my foot so at least the pain would make sense. Anyone else know what I mean? LOL. Hoping today is a good day for all of us!
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